Clinical self-tracking and monitoring technologies: negotiations in the ICT-mediated patient–provider relationship

Piras, Enrico Maria; Miele, Francesco

doi:10.1080/14461242.2016.1212316

Cited by 66 publications

(34 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…As other authors have shown, intimacy is a practical and always‐partial accomplishment (Langstrup et al . ), and it requires negotiating new thresholds in the social division of care labour between patients and providers to prevent intimacy from becoming intrusiveness (Piras and Miele ).…”

Section: Conclusion: the Making Of Digital Intimacymentioning

confidence: 99%

On digital intimacy: redefining provider–patient relationships in remote monitoring

Piras

Miele

2019

Sociology Health & Illness

Self Cite

View full text Add to dashboard Cite

Remote monitoring has often been thought to lead to a highly structured and standardised care process. Several studies have stressed that patient–provider communication could be hindered if mediated by technologies, leading to an impoverished relationship. We argue that while remote monitoring leads to a redefinition of the patient–provider relationship, it could also offer the opportunity to develop a more intimate acquaintance not possible via only routine visits. The study is part of a clinical trial aimed at assessing the acceptability of a remote monitoring platform for type 1 diabetes. Drawing on practice‐based studies, we focused our analysis on the practice of text message exchange between patients and providers. The 396 conversations were coded with a template analysis, leading to the identification of two main categories: ‘knowing the patient’ and ‘knowing about the patient’. The analysis reveals that the practice of messaging led to the development of a ‘digital intimacy’, a relationship characterised by a thorough familiarity made possible by electronic devices that extends to face‐to‐face encounters. Drawing on our case, we argue that remote monitoring can foster greater intimacy between patients and providers, which is made possible by the overall increase in the quantity and quality of communication between patients and providers.

show abstract

Section: Conclusion: the Making Of Digital Intimacymentioning

confidence: 99%

On digital intimacy: redefining provider–patient relationships in remote monitoring

Piras

Miele

2019

Sociology Health & Illness

Self Cite

View full text Add to dashboard Cite

show abstract

“…General [23,26,54] Irritable bowel syndrome [13,14] Sleep [44,50] Chronic illness [30] Diagnosis [51] Multiple chronic conditions [2,3] Weight loss [11] Itching [29] Hospitalisation [33] Parkinson's [32] Diabetes [39,42] Breast cancer [24,40] Disease prevention [15,26] Mental health [25] Structure Data structure is unfamiliar or inconsistent. Table 2.…”

Section: Barrier Descriptionmentioning

confidence: 99%

Common Barriers to the Use of Patient-Generated Data Across Clinical Settings

West

Kleek

Giordano

et al. 2018

Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

Patient-generated data, such as data from wearable fitness trackers and smartphone apps, are viewed as a valuable information source towards personalised healthcare. However, studies in specific clinical settings have revealed diverse barriers to their effective use. In this paper, we address the following question: are there barriers prevalent across distinct workflows in clinical settings to using patient-generated data? We conducted a twopart investigation: a literature review of studies identifying such barriers; and interviews with clinical specialists across multiple roles, including emergency care, cardiology, mental health, and general practice. We identify common barriers in a six-stage workflow model of aligning patient and clinician objectives, judging data quality, evaluating data utility, rearranging data into a clinical format, interpreting data, and deciding on a plan or action. This workflow establishes common ground for HCI practitioners and researchers to explore solutions to improving the use of patient-generated data in clinical practices.

show abstract

“…This literature suggests that outcomes of transferring clinical technologies to domestic spaces may be unpredictable as they are adapted by users for home settings, and framed within non-clinical understandings of health and healthcare. [10][11][12][13][14][15] There is less research on digitally facilitated self-care as a stand-alone intervention without a 'face-to-face' element. 16 This gap in the evidence has implications for the 'digital-only' or 'digital-first' services that are increasingly part of health policy.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

“…As an early example of 'digital-only' facilitated self-care, we were interested in user experience of measuring and uploading BP, height and weight readings prior to online prescriptions. This is an example of 'pushed' self-tracking 10 or 'clinical' self-tracking, 11 where the service requires self-measurement as a condition of service delivery.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

How do users of a ‘digital-only’ contraceptive service provide biometric measurements and what does this teach us about safe and effective online care? A qualitative interview study

et al. 2020

View full text Add to dashboard Cite

ObjectivesTo describe user experience of obtaining and uploading biometric measurements to a ‘digital-only’ contraceptive service prior to a prescription for the combined oral contraceptive (COC). To analyse this experience to inform the design of safe and acceptable ‘digital-only’ online contraceptive services.SettingAn online contraceptive service available free of charge to women in South East London, UK.ParticipantsTwenty participants who had ordered the combined oral contraceptive (COC) online. Our purposive sampling strategy ensured that we included participants from a wide range of ages and those who were and were not prescribed the COC.InterventionA ‘digital-only’ contraceptive service that prescribes the COCafter an online medical history and self-reported height, weight and blood pressure (BP) with pills prescribed by a GMC registered doctor, dispensed by an online pharmacy and posted to the user.DesignSemistructured interviews with a purposive sample of 20 participants who were already enrolled in a larger study of this service.AnalysisInductive, thematic analysis of the interviews assisted by NVivo qualitative analysis software.ResultsUsers valued the convenience of ‘digital-only care’ but experienced measuring BP but not height or weight as a significant barrier to service use. They actively engaged in work to understand and measure BP through a combination of recent/past measurements, borrowed machines, health service visits and online research. They negotiated tensions around maintaining a trusting relationship with the service, meeting its demands for accurate information while also obtaining the contraception that they needed.ConclusionDigital strategies to build trusting clinical relationships despite a lack of face-to-face contact are needed in ‘digital-only’ health services. This includes acknowledgement of work required, evidence of credible human support and a digital interface that communicates the health benefits of collaborating with an engaged clinical team.

show abstract

Clinical self-tracking and monitoring technologies: negotiations in the ICT-mediated patient–provider relationship

Cited by 66 publications

References 20 publications

On digital intimacy: redefining provider–patient relationships in remote monitoring

On digital intimacy: redefining provider–patient relationships in remote monitoring

Common Barriers to the Use of Patient-Generated Data Across Clinical Settings

How do users of a ‘digital-only’ contraceptive service provide biometric measurements and what does this teach us about safe and effective online care? A qualitative interview study

Contact Info

Product

Resources

About