Clinical Research Involving Pregnant Women Seeking Abortion Services: United States Perspectives

Harris, Lisa H.

doi:10.1007/978-3-319-26512-4_15

Cited by 5 publications

(2 citation statements)

References 46 publications

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“…The debate around fetal tissue research is largely a result of its deeply rooted history in the ethically and politically complex discourse around abortion and the moral status of the fetus. 4 Related questions have also been raised on how to handle fetal tissue and appropriate approaches to the informed consent process. In the interest of promoting fetal protection in response to concerns surrounding the vulnerability and potential exploitation of pregnant individuals 5 -especially the worry that a person undecided about pregnancy continuation could be persuaded to have an abortion to donate their fetal tissue for financial compensation or societal contribution 4,5 -federal regulations regarding such research have been adopted.…”

Section: Methodsmentioning

confidence: 99%

“…4 Related questions have also been raised on how to handle fetal tissue and appropriate approaches to the informed consent process. In the interest of promoting fetal protection in response to concerns surrounding the vulnerability and potential exploitation of pregnant individuals 5 -especially the worry that a person undecided about pregnancy continuation could be persuaded to have an abortion to donate their fetal tissue for financial compensation or societal contribution 4,5 -federal regulations regarding such research have been adopted. These include prohibition against the sale of fetal tissue or financial compensation to pregnant individuals and the requirement that physicians defer obtaining informed consent for fetal tissue donation until after the pregnant individual has given informed consent for an abortion.…”

Section: Methodsmentioning

confidence: 99%

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Pregnant Individuals' Views on Fetal Tissue Research in the United States

Spach

Jaffe

Sullivan

et al. 2021

Obstetrics &Amp; Gynecology

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OBJECTIVE: Fetal tissue research has driven significant medical advances but remains publicly contentious in the United States. The views of pregnant individuals in the United States regarding the donation of fetal tissue offer an important and previously unexplored perspective on this issue. METHODS: We conducted a secondary analysis of data from two separate, broader qualitative studies. Pregnant and recently pregnant individuals (N=79) from clinical sites at the University of North Carolina at Chapel Hill, Johns Hopkins University, and Massachusetts General Hospital were interviewed individually using a semi-structured guide addressing a range of issues related to infectious disease research and pregnancy, including the acceptability of fetal tissue research. Interviews were transcribed, coded, and analyzed for emergent themes. RESULTS: Among this sample of predominantly Black (61%), reproductive-aged pregnant and recently pregnant participants, the majority (72%) generally supported fetal tissue research. The following three themes were identified: choice, respect, and meaning. Respondents discussed the deeply personal nature of decisions surrounding fetal tissue research, emphasizing the importance of informed consent and respect for the person's emotional state when approaching for consent. The ways in which participants regarded how to respectfully handle fetal tissue also shaped views about the acceptability of donation, both for and against. For many participants, fetal tissue donation to research represented one way of ascribing meaning to pregnancy termination or loss. CONCLUSION: Among this diverse sample of pregnant and recently pregnant individuals, most were supportive of fetal tissue donation for research. A better understanding of pregnant individuals' views on this topic may lead to policies and practices that are congruent with the needs and values of people facing decisions regarding the disposition of fetal remains.

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