Clinical relevance of activities meaningful to parents of preterm infants with very low birth weight: A focus group study

Dür, Mona; Brückner, Victoria; Oberleitner-Leeb, Christiane; Fuiko, Renate; Berger, Angelika

doi:10.1371/journal.pone.0202189

Cited by 9 publications

(8 citation statements)

References 48 publications

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“…Therefore, a mixed methods design was applied for the OBI-Care development process, including a qualitative approach for the creation of a set of items to assess occupational balance in informal caregivers, and a quantitative approach for the exploration of its measurement properties and a final compilation of the questionnaire [ 45 , 46 ]. The study was part of a larger project on occupational balance [ 40 ].…”

Section: Methodsmentioning

confidence: 99%

“…For instance, parents’ occupational balance was related to weight loss of their obese child [ 39 ]. Inferring, parents’ occupational balance might be associated with the health and well-being of preterm infants too, and therefore might be clinically relevant in neonatal intensive care [ 40 ]. Thus, it is important to address and strengthen parents’ occupational balance in neonatal intensive care [ 40 , 41 ].…”

Section: Introductionmentioning

confidence: 99%

“…Inferring, parents’ occupational balance might be associated with the health and well-being of preterm infants too, and therefore might be clinically relevant in neonatal intensive care [ 40 ]. Thus, it is important to address and strengthen parents’ occupational balance in neonatal intensive care [ 40 , 41 ]. To address parents’ occupational balance, health professionals in the neonatal intensive care unit (NICU), such as occupational therapists or psychologists need valid and reliable occupational balance measurement instruments, such as a self-reported questionnaire developed for or validated in neonatal intensive care [ 42 ].…”

Section: Introductionmentioning

confidence: 99%

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Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants

et al. 2021

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Background Parents’ meaningful activities (occupations) and occupational balance are relevant to neonatal care. Valid and reliable self-reported measurement instruments are needed to assess parents’ occupational balance and to evaluate occupational balance interventions in neonatal care. The aims of this study were to develop a self-reported questionnaire on occupational balance in informal caregivers (OBI-Care) and to examine its measurement properties including construct validity and internal consistency. Methods and findings A mixed method multicenter study design was employed. Items of the OBI-Care were created with parents of preterm infants based on qualitative research methods. Measurement properties were analyzed with quantitative data of parents of preterm infants. Construct validity was assessed by determining dimensionality, overall and item fit to a Rasch model, differential item functioning and threshold ordering. Internal consistency was examined by determining inter-item and item-total correlations, Cronbach’s alpha and Rasch’s person separation index. Fourteen parents participated in item creation. Measurement properties were explored in data of 304 parents. Twenty-two items, summarized in three subscales were compiled to the OBI-Care. Items showed an overall fit and except one item, an item fit to the Rasch model. There was no evidence of differential item functioning and all items displayed ordered thresholds. Each subscale had good values of person separation indices and Cronbach’s alpha. Conclusions The OBI-Care demonstrates construct validity and internal consistency and is thus a suitable measurement instrument to assess occupational balance of parents of preterm infants in neonatal care. OBI-Care is generic and can be applied in various health care settings.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants

et al. 2021

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“…In a vicious circle, the strained parental physical and mental health can adversely affect the children's development (12,18). Additionally, they have to drastically adapt their everyday lives since their daily routines are predominantly determined by caring activities (19,20) which restricts their own time for meaningful activities (21)(22)(23).…”

Section: Introductionmentioning

confidence: 99%

Associations Between Parental Occupational Balance, Subjective Health, and Clinical Characteristics of VLBW Infants

et al. 2022

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ObjectiveVery low birthweight (VLBW) infants have an increased risk of mortality and frequently suffer from complications, which affects parental occupational balance. Occupational balance is the satisfaction with one's meaningful activities, which include everyday activities that people need to, want to, and are expected to do. In contrast to work-life balance, the construct of occupational balance addresses different activities equally and it applies to all persons, regardless of whether they are working or not. Parental occupational balance might be related to parents' and VLBW infants' health. Therefore, the objective of this study was to investigate associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants.MethodsA cross-sectional multicenter study was conducted in six Austrian neonatal intensive care units. Occupational balance and subjective health of parents of VLBW infants were assessed with six self-reported questionnaires. The following clinical characteristics of VLBW infants were extracted from medical records: gestational age, birthweight, Apgar scores, Clinical Risk for Babies II Score, and complications of prematurity. Spearman's rank coefficients were calculated.ResultsIn total, 270 parents, 168 (62%) female and their VLBW infants, 120 (44%) female, were included in this study. Parents' mean age was 33.7 (±6.0) years, mean gestational age of VLBW infants was 27 + 3 (±2) weeks. Associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants were identified (rs = 0.13 – 0.56; p ≤ 0.05), such as the correlation between occupational areas (rs = 0.22, p ≤ 0.01), occupational characteristics (rs = 0.17, p = 0.01), and occupational resilience (rs = 0.18, p ≤ 0.01) with bronchopulmonary dysplasia of VLBW infants.ConclusionOccupational balance is associated with parents' and VLBW infants' health. Interventions to strengthen parental occupational balance might increase parental health and thereby also improve health and developmental outcomes of their VLBW infants.

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“…Informal caregivers are defined as close family members, relatives or friends that provide unpaid care [ 1 , 2 ]. Informal caregivers often experience physical and psychological burden, stress, and discomfort [ 1 , 3 – 7 ]. Moreover, informal caregiving leads to a restriction of meaningful activities for oneself which affects one’s occupational balance [ 5 , 8 , 9 ].…”

Section: Introductionmentioning

confidence: 99%

Examination of validity, reliability, and interpretability of a self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care) – A Rasch analysis

2021

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Objectives Informal caregivers often experience a restriction in occupational balance. The self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care) is a measurement instrument to assess occupational balance in informal caregivers. Measurement properties of the German version of the OBI-Care had previously been assessed in parents of preterm infants exclusively. Thus, the aim of this study was to examine the measurement properties of the questionnaire in a mixed population of informal caregivers. Methods A psychometric study was conducted, applying a multicenter cross-sectional design. Measurement properties (construct validity, internal consistency, and interpretability) of each subscale of the German version of the OBI-Care were examined. Construct validity was explored by assessing dimensionality, item fit and overall fit to the Rasch model, and threshold ordering. Internal consistency was examined with inter-item correlations, item-total correlations, Cronbach’s alpha, and person separation index. Interpretability was assessed by inspecting floor and ceiling effects. Results A total of 196 informal caregivers, 171 (87.2%) female and 25 (12.8%) male participated in this study. Mean age of participants was 52.27 (±12.6) years. Subscale 1 was multidimensional, subscale 2 and subscale 3 were unidimensional. All items demonstrated item fit and overall fit to the Rasch model and displayed ordered thresholds. Cronbach’s Alpha and person separation index values were excellent for each subscale. There was no evidence of ceiling or floor effects. Conclusions We identified satisfying construct validity, internal consistency, and interpretability. Thus, the findings of this study support the application of the German version of the OBI-Care to assess occupational balance in informal caregivers.

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Clinical relevance of activities meaningful to parents of preterm infants with very low birth weight: A focus group study

Cited by 9 publications

References 48 publications

Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants

Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants

Associations Between Parental Occupational Balance, Subjective Health, and Clinical Characteristics of VLBW Infants

Examination of validity, reliability, and interpretability of a self-reported questionnaire on Occupational Balance in Informal Caregivers (OBI-Care) – A Rasch analysis

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