Clinical guidelines about diabetes and the accuracy of peer information in an unmoderated online health forum for retired persons

Hoffman‐Goetz, Laurie; Donelle, Lorie; Thomson, Maria D.

doi:10.1080/17538150902865136

Cited by 29 publications

(21 citation statements)

References 19 publications

(18 reference statements)

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“…A key element in this process has been unlimited access to and intelligent use of health-related information, particularly that which is widely available on websites and online forums on the Internet and in online social media [3-6]. This movement has consequences for the traditional way of information dissemination.…”

Section: Introductionmentioning

confidence: 99%

Sources of Information and Behavioral Patterns in Online Health Forums: Qualitative Study

Sudau¹,

Friede²,

Grabowski³

et al. 2014

J Med Internet Res

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Preliminary analysis showed that users did not stick to the intended forum behavior of discussing exactly one topic in one thread. Instead, they deviated from the original topic over time, sometimes coming back to the original topic. In short, any topic could appear in any thread. Thus, we needed a way to decide for every individual post, whether it was relevant or not. The simplest approach is to scan every post for a set of predefined keywords. However, we assumed that the context of a post also plays a role when determining the relevance of a post. We thus defined an Information Retrieval algorithm, that extends the keyword-based approach by also taking structural (contextual) information of posts into account. (The following is mostly taken from [5].) Reasoning behind the new AlgorithmApproaches based on linguistic features alone can not be expected to perform well. This is because:

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Section: Introductionmentioning

confidence: 99%

Sources of Information and Behavioral Patterns in Online Health Forums: Qualitative Study

Sudau¹,

Friede²,

Grabowski³

et al. 2014

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…In contrast to traditional printed or Web content created by a single author, user-generated content is created by users and may even be “self-correcting” [5, 18]. Answers to questions posted to online forums appear to be generally accurate [18, 19]. However, we are not aware of any study that directly compares answers posted to online forums and information provided by clinicians in response to the same questions.…”

Section: Introductionmentioning

confidence: 99%

Comparing clinician knowledge and online information regarding Alli (Orlistat)

Nelson

Hwang

Bernstam

2009

International Journal of Medical Informatics

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Background: Many consumers join online communities focused on health. Online forums are a popular medium for the exchange of health information between consumers, so it is important to determine the accuracy and completeness of information posted to online forums. Objective: We compare the accuracy and completeness of information regarding the FDA-approved over-the counter weight-loss drug Alli (Orlistat) from forums and from clinicians. Methods: We identified Alli-related questions posted on online forums and then posed the questions to 11 primary care providers. We then compared the clinicians' answers to the answers given on the forums. A panel of blinded experts evaluated the accuracy and completeness of the answers on a scale of 0 - 4. Another panel of blinded experts categorized questions as being best answered based on clinical experience versus review of the literature. Results: The accuracy and completeness of responses was slightly better than forum responses, but there was no significant difference (2.3 vs 2.1, p = 0.5). Only one forum answer contained information that could potentially cause harm if the advice was followed. Conclusions: Forum answers were comparable to clinicians' answers with respect to accuracy and completeness, but answers from both sources were unsatisfactory.

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“…These socially enabled systems facilitate consumercentered healthcare and permit patients and caregivers to play an active role in providing and consuming health information related to them. Despite the benefits offered by these patientcentered SM, there are concerns about the security, privacy, and confidentiality of the personal health-related information shared on these social platforms; the quality and accuracy of the information shared; and the credibility of individuals who post medical advises and tips [20].…”

Section: Patient-centered E-healthmentioning

confidence: 99%

Social media for patients: benefits and drawbacks

Martino

D’Apolito

McLawhorn

et al. 2017

Curr Rev Musculoskelet Med

132

101

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Purpose of review Social media is increasingly utilized by patients to educate themselves on a disease process and to find hospital, physicians, and physician networks most capable of treating their condition. However, little is known about quality of the content of the multiple online platforms patients have to communicate with other potential patients and their potential benefits and drawbacks. Recent findings Patients are not passive consumers of health information anymore but are playing an active role in the delivery of health services through an online environment. The control and the regulation of the sources of information are very difficult. The overall quality of the information was poor. Bad or misleading information can be detrimental for patients as well as influence their confidence on physicians and their mutual relationship. Summary Orthopedic surgeons and hospital networks must be aware of these online patient portals as they provide important feedback on the patient opinion and experience that can have a major impact on future patient volume, patient opinion, and perceived quality of care.

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Clinical guidelines about diabetes and the accuracy of peer information in an unmoderated online health forum for retired persons

Cited by 29 publications

References 19 publications

Sources of Information and Behavioral Patterns in Online Health Forums: Qualitative Study

Sources of Information and Behavioral Patterns in Online Health Forums: Qualitative Study

Comparing clinician knowledge and online information regarding Alli (Orlistat)

Social media for patients: benefits and drawbacks

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