Clinical Application of Digital Technologies in Adolescent and Young Adult Oncology Supportive Care

Puthenpura, Vidya; Marks, Asher

doi:10.1089/jayao.2020.0153

Cited by 4 publications

(3 citation statements)

References 21 publications

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“…Other strategies include engaging AYAs through social media or other technological platforms such as telehealth to promote follow‐up and improve their supportive care 48 . AYAs have been found to be rapid adopters of technology, and social media is becoming an increasing cornerstone for them to exchange ideas and seek support 49,50 …”

Section: Discussionmentioning

confidence: 99%

“…48 AYAs have been found to be rapid adopters of technology, and social media is becoming an increasing cornerstone for them to exchange ideas and seek support. 49,50 Limitations There were many strengths to using the COG data set. The large sample size lends this data to be representative of United States pediatric and AYA clinical trial enrollment with the inclusion of multiple disease types and sociodemographic heterogeneity.…”

Section: Discussionmentioning

confidence: 99%

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Loss to follow‐up of minorities, adolescents, and young adults on clinical trials: A report from the Children's Oncology Group

Puthenpura

et al. 2023

Cancer

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Background:The increasing number of childhood cancer survivors necessitates continued follow-up to monitor for long-term complications. Inequities in loss to follow-up for patients enrolled on pediatric clinical trials have not been well studied. Methods:This was a retrospective study of 21,084 patients residing in the United States enrolled on phase 2/3 and phase 3 Children's Oncology Group (COG) trials between January 1, 2000 and March 31, 2021. Rates of loss to follow-up to COG were evaluated using log-rank tests and multivariable Cox proportional hazards regression models with adjusted hazard ratios (HRs). Demographic characteristics included age at enrollment, race, ethnicity, and zip code level socioeconomic data.Results: Adolescent and young adult (AYA) patients 15-39 years old at diagnosis had an increased hazard of loss to follow-up compared to patients 0-14 years old (HR, 1.89; 95% confidence interval (CI), 1.76-2.02). In the overall cohort, non-Hispanic Blacks were found to have an increased hazard of loss to follow-up compared to non-Hispanic Whites (HR, 1.56; 95% CI, 1.43-1.70). Among AYAs, the highest loss to follow-up rates were among non-Hispanic Blacks (69.8% � 3.1%), patients on germ cell tumor trials (78.2% � 9.2%), and patients living in zip codes with a median household income ≤150% of the federal poverty line at diagnosis (66.7% � 2.4%).Conclusions: AYAs, racial and ethnic minority patients, and those living in lower socioeconomic status areas had the highest rates of loss to follow-up among clinical trial participants. Targeted interventions are warranted to ensure equitable followup and improved assessment of long-term outcomes.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Loss to follow‐up of minorities, adolescents, and young adults on clinical trials: A report from the Children's Oncology Group

Puthenpura

et al. 2023

Cancer

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“…As avid technology users, teenagers and young adults stand to bene t greatly from the integration of digital technologies into care pathways (12,13). The TYA population exhibit unique developmental characteristics meaning that they differ from the paediatric and adult population both in physical and neurocognitive maturation (14).…”

Section: Introductionmentioning

confidence: 99%

Perspectives of Healthcare Professionals on the use of Immersive Virtual Reality in Teenage and Young Adult Oncology: A Qualitative Interview Study

Deighan,

Simpson,

Brigden

et al. 2023

Preprint

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Background: Applications of Virtual Reality (VR) in healthcare continue to grow at a rapid pace, yet the challenges and opportunities associated with VR from the perspective of clinicians and healthcare staff remain underexplored, particularly in the context of Teenage and Young Adult (TYA) oncology. This study aims to bridge this knowledge gap by interviewing clinicians and staff regarding the use of VR in TYA cancer care. Method: Fourteen semi-structured qualitative interviews were conducted with a diverse range of healthcare professionals working in TYA oncology within the United Kingdom including oncologists, hematologists, clinical nurse specialists, clinical psychologists, radiographers, play specialists, clinical social workers and youth support coordinators. Data were analysed thematically with three themes and seven sub-themes developed. Results: The findings reveal that TYA healthcare professionals are optimistic and enthusiastic about the potential of using VR to enhance cancer care for teenagers and young adults. However, they also expressed notable concerns related to the practical implementation of VR in clinical settings. These concerns included infection and safety risks, privacy and security concerns, cost implications, storage requirements and staff burden. Clinicians and staff proposed valuable applications for VR in TYA oncology specifically in patient distraction, physiotherapy, procedure preparation, and the delivery of psychotherapy, including acceptance and commitment therapy. Conclusions: This research has demonstrated that despite an enthusiasm to adopt VR in TYA oncology there are still many challenges, both practical and ethical, that must be addressed to enable the successful implementation of VR in hospitals within the UK. Further research into applications of VR for TYA oncology is warranted, particularly in areas of psychology, physiotherapy, and procedure preparation.

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Enhancing Cardiopulmonary Resuscitation Training with Mixed Reality: Improving Cardiopulmonary Resuscitation Performance and Enjoyment

Sungur,

van Berlo,

Lüwa

2024

Cyberpsychology, Behavior, and Social Networking

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Clinical Application of Digital Technologies in Adolescent and Young Adult Oncology Supportive Care

Cited by 4 publications

References 21 publications

Loss to follow‐up of minorities, adolescents, and young adults on clinical trials: A report from the Children's Oncology Group

Loss to follow‐up of minorities, adolescents, and young adults on clinical trials: A report from the Children's Oncology Group

Perspectives of Healthcare Professionals on the use of Immersive Virtual Reality in Teenage and Young Adult Oncology: A Qualitative Interview Study

Enhancing Cardiopulmonary Resuscitation Training with Mixed Reality: Improving Cardiopulmonary Resuscitation Performance and Enjoyment

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