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Khouri, Joseph S.; McCheyne, Melisande J.; Morrison, Clinton S.

doi:10.1597/16-156

Cited by 39 publications

(22 citation statements)

References 9 publications

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“…Healthcare professionals can and do share health information with their patients and the public using social media, 9,10 and many parents, adolescents, and young adults use social media as a source of health information. 4,5,[11][12][13] Reliable and valid worldwide statistics of social media use are difficult to find, but the Pew Research Center surveyed adults in many developed countries in 2016 and found that at least half of adults from the majority of these countries were regularly visiting social media sites. 14 Based upon another Pew Research Center survey in 2018, the majority of adolescents in the United States use social media, with YouTube, Instagram, Snapchat, and Facebook reigning as the most popular platforms.…”

Section: Introductionmentioning

confidence: 99%

A systematic literature review to examine the potential for social media to impact HPV vaccine uptake and awareness, knowledge, and attitudes about HPV and HPV vaccination

Ortiz

Smith

Coyne‐Beasley

2019

Human Vaccines & Immunotherapeutics

149

116

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This article summarizes the findings from a systematic literature review to examine how social media may impact HPV vaccine uptake and HPV and HPV vaccine related awareness, knowledge, and attitudes. Study inclusion criteria was original data collection of at least one data point about social media and HPV and/or HPV vaccination, such that the study provided insight into how social media content may influence HPV and HPV vaccine related knowledge, attitudes, and/or behaviors. A total of 44 relevant articles were identified using the following databases: PubMed, PsycINFO, Communication Source, Sociological Abstracts, Business Source Elite, and the Educational Resources Information Center (ERIC). Most studies analyzed the valence, type, and frequency of social media content about HPV vaccination, and some found associations between potential exposure to negative, anti-vacc`11qine content and lower vaccination rates. Some studies that included primary human subject data collection found that engagement with HPV related social media content was associated with improved awareness and knowledge but not with increased vaccine uptake. The literature overall is lacking in systematic and rigorous research examining the effects of social media on HPV related knowledge, attitudes, and behaviors and needs further examination as social media increasingly becomes a source of health information.

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Section: Introductionmentioning

confidence: 99%

A systematic literature review to examine the potential for social media to impact HPV vaccine uptake and awareness, knowledge, and attitudes about HPV and HPV vaccination

Ortiz

Smith

Coyne‐Beasley

2019

Human Vaccines & Immunotherapeutics

149

116

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“…12 Khouri et al found that 90% of parents of a child with a cleft lip and/or palate utilized social media to learn more about their child's diagnosis, with 8% of parents using Instagram. 13 Adekunle et al identified that 40% of parents in Nigeria researched information about their child's cleft diagnosis on social media, with one parent reportedly using Instagram to access information about their child's condition. 14 None of this research included hashtags as part of their search criteria.…”

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confidence: 99%

Craniofacial Surgery-Related Hashtag Utilisation on Instagram

Kilcoyne

Rogers

Thomas

et al. 2021

Journal of Craniofacial Surgery

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Background: Patients, parents, and carers are increasingly using social media to access and contribute to health information. There are currently 3.484 billion active social media users. Instagram is a primarily visual social media platform for sharing photographs and videos with currently over one billion monthly active users. Limited research has investigated the use of Instagram in healthcare contexts including plastic surgery, and in the treatment of specific conditions, such as fibromyalgia and scoliosis. This study aimed to investigate the use of Instagram in relation to craniofacial surgery. Methods: The authors investigated the use of 12 Instagram craniofacial surgery-related hashtags. Quantitative and qualitative data were collected for each of the “top” nine posts associated with each hashtag. Duplicate posts, posts not in English and those not relevant to craniofacial surgery were excluded. Thematic analysis was then used to qualitatively evaluate the captions and comments of each of the nine “top” posts associated with each hashtag. Results: A total number of 151,738 posts were identified using the 12 hashtags queried in the present study, with #craniofacial being the most popular hashtag (87% of posts). Parents (n = 25, 33%) and surgeons (n = 25, 33%) were responsible for the majority of posts. A heterogenous group were responsible for the remaining 34% of posts. Results indicated that parents and surgeons posted significantly different images (chi-squared with Yates correlation is 25.0519, P < 0.00001). Parents’ posts were predominantly images of their child/patients (n = 24) compared to posts about patients by surgeons (n = 6). Posts by surgeons were predominantly images of professionals (n = 14) compared to images of professionals posted by parents (n = 1). Results of qualitative analysis of captions of posts indicated a significant difference in themes that emerged between parents and surgeons; with surgeons largely using Instagram for information giving, and parents for sharing of experiences (chi-square (n = 108) = 40.83, P < 0.00001). There was a significant difference (two-tailed t test, P = 0.002) in engagement (measured by the number of likes on posts) on posts by parents (mean = 3778) compared to posts by surgeons (mean = 135.4) Conclusions: Results indicate that craniofacial-surgery related posts on Instagram provide a medium to allow individuals and families with rare disorders to connect and share their experiences. The use of Instagram to share information about craniofacial abnormalities via Instagram has the potential to be used by healthcare professionals to educate and support patients and families.

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“…A study by Alnujaim et al [34], involving 310 pregnant women, found approximately 50% of the women were aware of the risk of folic acid de ciency and its relation to CLP. However, the internet was found to be the major source of knowledge (34.8%) with health professionals (8.7%) and public health campaigns (8.1%) less in uential [35].…”

Section: Discussionmentioning

confidence: 99%

Knowledge Assessment on Cleft Lip and Palate among Recently Qualified Dentists: A Cross-sectional Study

Agha

Helal

Al-Khafaji

et al. 2023

Preprint

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Background.The current study aimed to develop a validated questionnaire for cleft lip and palate (CLP) knowledge assessment and to assess the knowledge of cleft lip and palate among a group of recently qualified dentists. Materials and methods. A Multiple-site, cross-sectional questionnaire-based study was conducted. A questionnaire was developed and validated with internal consistency assessed using Cronbach’s alpha and factor analysis performed. The 15-item questionnaire was distributed to 156 dental interns with a response rate of 67%. Results.The overall proportion of correct responses was moderate (73%). The best results were found in relation to CLP treatment including the effect of unfavorable surgical outcomes on speech (89.5%) and the impact of CLP on the occlusion (87.6%). The lowest rate of correct responses (26.7%) was identified in relation to the association between CLP and smoking. Conclusion.A validated CLP questionnaire was developed permitting evaluation of the knowledge of cleft lip and palate and its management among dental students. Given that general dentists are often the gatekeeper for the management of patients with cleft lip and palate, this can be used to inform the curriculum and teaching of cleft lip and palate both nationally and internationally.

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Abstract: Social media is a readily available resource, one that will certainly shape the experiences of our patients and families for years to come.

Cited by 39 publications

References 9 publications

A systematic literature review to examine the potential for social media to impact HPV vaccine uptake and awareness, knowledge, and attitudes about HPV and HPV vaccination

A systematic literature review to examine the potential for social media to impact HPV vaccine uptake and awareness, knowledge, and attitudes about HPV and HPV vaccination

Craniofacial Surgery-Related Hashtag Utilisation on Instagram

Knowledge Assessment on Cleft Lip and Palate among Recently Qualified Dentists: A Cross-sectional Study

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