Citizen Science Platforms

Liu, Haiying; Dörler, Daniel; Heigl, Florian; Grossberndt, Sonja

doi:10.1007/978-3-030-58278-4_22

Cited by 39 publications

(45 citation statements)

References 24 publications

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“…Since participating in research has a very long history in Germany for volunteers and citizen science has been well established for about fifteen years [14][15][16][17][18][19][23][24][25], we, the authors, were partly surprised that the projects recorded very little information about their volunteers in a systematic way. About two-third of the projects asked for a registration and therefore had contact data of their project participants.…”

Section: Discussionmentioning

confidence: 99%

“…Such platforms help to increase the visibility and outreach of citizen science projects to citizens, the media, policy-makers, and funding bodies at the national level. They also offer project managers a variety of opportunities for networking and professional exchange through annual conferences and working groups [23][24][25].…”

Section: The German Citizen Science Platform "Bürger Schaffen Wissen"mentioning

confidence: 99%

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The Known Unknowns: What Citizen Science Projects in Germany Know about Their Volunteers—And What They Don’t Know

2021

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The citizen science landscape in Germany offers an enormous range for participation. More than 170 projects currently present themselves on the national citizen science platform. In 2020, we conducted a survey among 140 projects (participation rate 56%), and they provided information on the organisational framework and characteristics (disciplines, initiators, funding, and project goals), as well as on the academic researchers and the volunteering citizen scientists involved. A surprising result was that the level of knowledge about the volunteers is very low overall. Many projects deliberately do not collect personal data (e.g., on socio-demographic variables, knowledge, and behaviour), partly for data-protection reasons and partly because they are unsure about how to collect it due to a lack of instruments and standards. We aim to illustrate the complexity of this issue and discuss various dilemmas arising between theoretical aspirations and the pragmatic and procedural realities in practice. We conclude with suggestions for developing project-specific strategies to increase diversity and inclusion. We argue that the task of conducting accompanying research on participant diversity cannot be borne by individual projects alone and consider the development and implementation of co-creative and qualitative approaches suitable for this purpose.

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Section: Discussionmentioning

confidence: 99%

Section: The German Citizen Science Platform "Bürger Schaffen Wissen"mentioning

confidence: 99%

The Known Unknowns: What Citizen Science Projects in Germany Know about Their Volunteers—And What They Don’t Know

2021

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“…The platform of an online citizen science project [212] may offer one or several services on the internet such as the gathering, processing, searching, discovery, and sharing of UGC, presenting UGC and other related data, describing tasks and guidelines, providing educational and technical materials and tools, making the potential target audiences aware of the volunteering opportunity in the project, registering the volunteers, and providing social networking, communication, and discussion features for the stakeholders of the project.…”

Section: Social Media As a Platform For Citizen Science Emergency Response Projectsmentioning

confidence: 99%

Digital Citizen Science for Responding to COVID-19 Crisis: Experiences from Iran

Vahidi

Taleai

Yan

et al. 2021

IJERPH

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The Coronavirus Disease 2019 (COVID-19) pandemic has so far been the most severe global public health emergency in this century. Generally, citizen science can provide a complement to authoritative scientific practices for responding to this highly complex biological threat and its adverse consequences. Several citizen science projects have been designed and operationalized for responding to COVID-19 in Iran since the infection began. However, these projects have mostly been overlooked in the existing literature on citizen science. This research sheds light on the most significant online citizen science projects to respond to the COVID-19 crisis in Iran. Furthermore, it highlights some of the opportunities and challenges associated with the strengths and weaknesses of these projects. Moreover, this study captures and discusses some considerable insights and lessons learned from the failures and successes of these projects and provides solutions to overcome some recognized challenges and weaknesses of these projects. The outcomes of this synthesis provide potentially helpful directions for current and future citizen science projects—particularly those aiming to respond to biological disasters such as the COVID-19 pandemic.

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“…One way for obtaining data at scale in research is to involve citizens in the research through the voluntary engagement of citizens in scientific inquiry, also known as citizen science . In these initiatives, citizens act as data donors, who can be nowadays supported by digital technologies to aid scalability ( 1 ). Internet of Things (IoT) devices including mobile phones, which come equipped with all sorts of sensors and powerful cameras as well as connected devices like wearables, fitness trackers, and medical sensors have made this type of research feasible and desirable ( 2 ).…”

Section: Introductionmentioning

confidence: 99%

“…Several digital platforms for citizen science exist, such as the EU-Citizen, science website, or the SPOTTERON app ( 1 ). In health-related fields, citizen science is very young and still largely controversial even if a few successful examples exist ( 4 ), for example, in the context of the Sars-Cov-2 pandemic ( 5 ).…”

Section: Introductionmentioning

confidence: 99%

Privacy Personas for IoT-Based Health Research: A Privacy Calculus Approach

Maus

Salvi

2021

Front. Digit. Health

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The reliance on data donation from citizens as a driver for research, known as citizen science, has accelerated during the Sars-Cov-2 pandemic. An important enabler of this is Internet of Things (IoT) devices, such as mobile phones and wearable devices, that allow continuous data collection and convenient sharing. However, potentially sensitive health data raises privacy and security concerns for citizens, which research institutions and industries must consider. In e-commerce or social network studies of citizen science, a privacy calculus related to user perceptions is commonly developed, capturing the information disclosure intent of the participants. In this study, we develop a privacy calculus model adapted for IoT-based health research using citizen science for user engagement and data collection. Based on an online survey with 85 participants, we make use of the privacy calculus to analyse the respondents' perceptions. The emerging privacy personas are clustered and compared with previous research, resulting in three distinct personas which can be used by designers and technologists who are responsible for developing suitable forms of data collection. These are the 1) Citizen Science Optimist, the 2) Selective Data Donor, and the 3) Health Data Controller. Together with our privacy calculus for citizen science based digital health research, the three privacy personas are the main contributions of this study.

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Citizen Science Platforms

Cited by 39 publications

References 24 publications

The Known Unknowns: What Citizen Science Projects in Germany Know about Their Volunteers—And What They Don’t Know

The Known Unknowns: What Citizen Science Projects in Germany Know about Their Volunteers—And What They Don’t Know

Digital Citizen Science for Responding to COVID-19 Crisis: Experiences from Iran

Privacy Personas for IoT-Based Health Research: A Privacy Calculus Approach

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