Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review

Abstract

Background The development of mobile technology for information retrieval and communication, both at individual and health organizational levels, has been extensive over the last decade. Mobile health (mHealth) technology is rapidly adapting to the health care service contexts to improve treatment, care, and effectiveness in health care services. Objective The overall aim of this scoping review is to explore the role of citizen-patient involvement in the development of mHealth technology in order to inform future interventions. By identifying key characteristics of citizen-patient involvement in system development, we aim to improve digital communication and collaboration between health care providers and citizen-patients, including sharing of health care data. Methods The systematic scoping review will follow the Joanna Briggs Institute methodology for scoping reviews by searching literature in 3 steps. We will include literature reporting on the public, citizens, and patients participating in the development of mobile technology for health care purposes in MEDLINE, CINAHL, Scopus, EMBASE, and ProQuest Dissertations and Theses. A preliminary search was completed in MEDLINE and Scopus. The screening process will be conducted by 2 of the authors. Data will be extracted using a data extraction tool prepared for the study. Results The study is expected to identify research gaps that will inform and motivate the development of mHealth technology. The final report is planned for submission to an indexed journal in November 2020. Conclusions To our knowledge, this review will be the first review to provide knowledge about how citizen-patients participate in system developments for mHealth tools and the value that such involvement adds to the system development process. International Registered Report Identifier (IRRID) PRR1-10.2196/16781

Usability Testing of a Digital Assessment Routing Tool: Protocol for an Iterative Convergent Mixed Methods Study

“…Iteration is recognized as a key enabler of successful products but is not included by most developers, where the usability testing of a final version is often immediately prior to deployment [29]. The inclusion of patient and public involvement during mHealth testing allows users to bring their own personal perspectives into the process, giving researchers the understanding of usability issues that would not have otherwise been recognized [30]. This study will combine all these elements into a methodology specifically developed to assess an mHealth triage or symptom checker.…”

Factores que influyen en la integración comunitaria en salud digital: revisión sistemática

“…De la misma forma, las tecnologías de la información y la comunicación han permitido un incremento del acceso de usuarios y sanitarios relacionadas con la salud, sin embargo, su implementación no permite una total accesibilidad a la información entre los diferentes ámbitos sanitarios (Brakefield et al, 2021;Petrakaki et al, 2021). Cabe señalar que los autores más representativos son aquellos que han desarrollado plataformas digitales de código abierto con datos de salud, que son los siguientes: plataforma Dockstore (Yuen et al, 2021) en Canadá, plataforma IC-Salud (Perestelo-Pérez et al, 2020) en España, plataforma TreC (Eccher et al, 2020) en Italia y la plataforma mHealth (Bjerkan et al, 2020) en Noruega; causando beneficios directo a los ciudadanos que hacen uso del servicio de salubridad.…”

“…Tales plataformas, de gran utilidad para la promoción y prevención de los problemas en salud, resultan herramientas básicas para el análisis de datos suministrados por la población (Barredo et al, 2021). Siendo por tanto, medios de gran utilidad para el sistema de comunicación con la comunidad, como la tecnología mHelath referido por Bjerkan et al (2020). Es así, que ante la aparición de la pandemia Covid-19, como lo mencionan Budd et al (2020), se han desarrollado nuevas plataformas y recursos tecnológicos en respuesta a la emergencia sanitaria; así como también la aplicación de tecnología Big Data, que permite consolidar toda la información de la pandemia de manera científica.…”

ConectAR: Collaborative network of patients with asthma and carers actively involved in health research: a protocol for patient and public involvement

“…The patient involvement in the development of Patient-Reported Outcome Measures (PROMs) is essential to ensure that they are relevant and patient-centred, yet patients are not always involved and few studies involve patients in the early phases (6). Likewise, the PPI in the development of mobile health (mHealth) technology is strongly encouraged (7). Patients contribute with a different and complementary perspective to research, by adding personal knowledge and experience, and ensuring research priorities are aligned with their needs.…”