Chronicity of Challenging Behaviours in People with Severe Intellectual Disabilities and/or Autism: A Total Population Sample

Murphy, Glynis H.; Beadle‐Brown, Julie; Wing, Lorna; Gould, Judith; Shah, Amitta; Holmes, Nan

doi:10.1007/s10803-005-5030-2

Cited by 205 publications

(142 citation statements)

References 50 publications

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“…9,10 Findings from the current study confirm that reported elopement is common in community settings, that children who elope face many dangers, and that elopement adds to family stress.…”

Section: Discussionsupporting

confidence: 70%

“…One study of challenging behaviors among 166 children with severe intellectual disability and/or autism found 23% and 16% experienced minor and marked wandering problems, respectively. 9 Another study of 161 severely affected adults with ASD living in an institution found 34% of those with autistic disorder (AD) and 19% of those with pervasive developmental disorder (PDD) not otherwise specified exhibited elopement behavior. 10 The objective of the current study was to provide a preliminary estimate of the reported occurrence and characteristics of elopement among children with ASD in community settings and to document factors associated with elopement.…”

Section: Introductionmentioning

confidence: 99%

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Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders

2012

PEDIATRICS

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Objectives-Anecdotal reports suggest that elopement behavior in children with autism spectrum disorders (ASDs) increases risk of injury or death and places a major burden on families. This study assessed parent-reported elopement occurrence and associated factors among children with ASDs.Methods-Information on elopement frequency, associated characteristics, and consequences was collected via an online questionnaire. The study sample included 1218 children with ASD and 1076 of their siblings without ASD. The association among family sociodemographic and child clinical characteristics and time to first elopement was estimated by using a Cox proportional hazards model.Results-Forty-nine percent (n = 598) of survey respondents reported their child with an ASD had attempted to elope at least once after age 4 years; 26% (n = 316) were missing long enough to cause concern. Of those who went missing, 24% were in danger of drowning and 65% were in danger of traffic injury. Elopement risk was associated with autism severity, increasing, on average, 9% for every 10-point increase in Social Responsiveness Scale T score (relative risk 1.09, 95% confidence interval: 1.02, 1.16). Unaffected siblings had significantly lower rates of elopement across all ages compared with children with ASD. Permissions & Licensing:Information about reproducing this article in parts (figures, tables) or in its entirety can be found online at: http://pediatrics.aappublications.org/site/misc/Permissions.xhtml Address correspondence to Paul A. Law, MD, MPH, Department of Medical Informatics, Kennedy Krieger Institute, 3825 Greenspring Ave, Painter Building, 1st floor, Baltimore, MD 21211. lawp@kennedykrieger.org. Drs P. Law and Anderson designed and implemented the survey instrument and were responsible for data collection; Drs Daniels, Anderson, and P. Law conducted statistical analyses; Drs Daniels and Anderson drafted the first manuscript; Drs Rice, Mandell, Hagopian, and K. Law made substantial contributions to interpretation of the data and critical review of the manuscript for key intellectual content; and all authors approved the final version to be published.Financial Disclosure: Dr Daniels was employed by Kennedy Krieger Institute through the submission of the manuscript. On February 26, she started a position with Autism Speaks. Autism Speaks is a financial supporter of the IAN Project, the study through which the elopement survey was implemented. The other authors have indicated they have no financial relationships relevant to this article to disclose. Elopement may be a significant contributor to mortality in individuals with ASD, which has been reported to be nearly twice that of the general population, 3 especially mortality owing to accidents, such as suffocation and drowning. 4 Despite reports of injuries, fatalities, and increased family burden, little research on elopement behavior in individuals with ASD has been conducted. 5 HHS Public AccessStudies examining elopement among individuals with ASD have been very small, of...

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“…9,10 Findings from the current study confirm that reported elopement is common in community settings, that children who elope face many dangers, and that elopement adds to family stress.…”

Section: Discussionsupporting

confidence: 70%

Section: Introductionmentioning

confidence: 99%

Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders

2012

PEDIATRICS

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“…Challenging behaviors occasioned by academic demands cause stress for parents, interfere with instruction, and impede learning (Baker et al, 2003;Cipani & Spooner, 1997;Davis & Carter, 2008;Gunter et al, 1994;Reichle, 1990;Sprague & Rian, 1993). Taken together, these factors point to a need for behavior intervention strategies that parents can use to prevent and minimize challenging behaviors and to increase appropriate responding (Matson, Boisjoli, & Mahan, 2009;Murphy et al, 2005).…”

Section: Introductionmentioning

confidence: 99%

Parent Education Intervention Results in Decreased Challenging Behavior and Improved Task Engagement for Students With Disabilities During Academic Tasks

Lequia

Machalicek

Lyons

2013

Behavioral Interventions

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Children with developmental disabilities and attention deficit hyperactivity disorder often engage in challenging behavior when presented with academic demands. Parents of school-age children with such diagnoses are commonly asked to assist their child with academic tasks but may struggle to do so as a result of challenging behavior. This study evaluated the effects of a parent education intervention on the challenging behaviors and task engagement of three school-age children with disabilities during academic activities. Parent education consisted of (i) weekly didactic instruction; (ii) modeling; (iii) role-play; and (iv) in vivo coaching and performance feedback. Using a non-concurrent multiple baseline across participants with embedded individual multi-element design, this study demonstrates that a parent education intervention results in decreases in challenging behavior and increases in task engagement. These results suggest that parent education focused on addressing challenging behavior during one-toone instruction may facilitate completion of academic tasks. Implications for practice and suggestions for future research are discussed.

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“…Researchers have suggested that problem behaviour may not only have negative consequences on a child's overall development but also create significant challenges to the child's parents and other family members (McCracken et al, 2002;West & Waldrop, 2006). Given that problem behaviour is likely to persist and become chronic without appropriate intervention (Khosroshahi, Pouretemad, & Khooshabi, 2010;Murphy et al, 2005), this highlights the importance of interventions for addressing problem behaviour in children with ASD.…”

Section: Problem Behaviour In Children With Autism Spectrum Disordersmentioning

confidence: 99%

Do maternal attributions play a role in the acceptability of behavioural interventions for problem behaviour in children with autism spectrum disorders?

Choi

Kovshoff

2013

Research in Autism Spectrum Disorders

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The present study explored the relationship between parental attributions and treatment acceptability of behavioural interventions for problem behaviour in children with autism spectrum disorders (ASD).Mothers of children with ASD aged 3 to 9 years (N = 139) completed survey measures that assessed demographics, parental attributions, treatment acceptability of parent-focused and child-focused behavioural interventions, severity of their child's disruptive behaviour, and severity of their child's ASD symptoms. The results showed that parental attributions of parent-referent stability, but not the other attributional dimensions, negatively predicted treatment acceptability of a parent-focused behavioural intervention, even when severity of disruptive behaviour was statistically controlled.Conversely, no associations were found between any attributional dimension and treatment acceptability of a child-focused behavioural intervention. Preliminary analyses also revealed that mothers' ratings of the severity of their child's disruptive behaviour were significantly negatively associated with the acceptability of both parent-focused and child-focused behavioural interventions.The findings have potential implications for professionals to identify and challenge distorted attributions of parent-referent stability to promote parental acceptance of a parent-focused behavioural intervention for problem behaviour in children with ASD.Keywords: treatment acceptability, attributions, behavioural intervention, problem behaviour, autism Do maternal attributions play a role in the acceptability of behavioural interventions for problem behaviour in children with autism spectrum disorders?

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Chronicity of Challenging Behaviours in People with Severe Intellectual Disabilities and/or Autism: A Total Population Sample

Cited by 205 publications

References 50 publications

Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders

Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders

Parent Education Intervention Results in Decreased Challenging Behavior and Improved Task Engagement for Students With Disabilities During Academic Tasks

Do maternal attributions play a role in the acceptability of behavioural interventions for problem behaviour in children with autism spectrum disorders?

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