Chronic pain and fatigue in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study

Johansen, Heidi; Bathen, Trine; Andersen, Liv Øinæs; Rand‐Hendriksen, Svend; Østlie, Kristin

doi:10.1371/journal.pone.0190567

Cited by 11 publications

(16 citation statements)

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“…Fatigue in adults with CUULD has not been investigated previously, and might be important in further studies. In a previous paper [16], we reported severe fatigue among one third of the study population. Furthermore 25% of respondents in the present study reported reduced work capacity.…”

Section: Discussionmentioning

confidence: 86%

“…A high prevalence of chronic musculoskeletal pain has been reported in several studies on persons with congenital and acquired UULD [16–18]. Chronic pain is a predictor for work participation in the general population [13].…”

Section: Discussionmentioning

confidence: 99%

“…In this paper we used data on individuals with CUULD of working age (20–67) (n = 64) from a cross-sectional, questionnaire-based study of adults with CLD [11, 16, 19]. Persons studying full time (n = 9) were excluded, because we assume that they have not yet any relevant experience with career based employment.…”

Section: Methodsmentioning

confidence: 99%

“…A study specific questionnaire was designed in cooperation with the Norwegian Limb Deficiency Association. This questionnaire was evaluated in a pilot study [11, 16, 19]. Variables included were demographic and clinical factors.…”

Section: Methodsmentioning

confidence: 99%

“…In an earlier publication, we reported a greater percentage of persons with CUULD on premature retirement (disability benefits) than in the Norwegian general population [11]. Studies have shown that individuals with CUULD are at risk of developing musculoskeletal pain [16–18], severe fatigue [16] and diminished physical health [18]. The aims of this paper therefore were to: 1) describe the level of education and work participation among adults with CUULD in Norway, 2) explore associations between work participation and demographic factors; age, gender and education level, and clinical factors; limb deficiency characteristics, comorbidities, pain, fatigue, physical and mental health.…”

Section: Introductionmentioning

confidence: 99%

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Education and work participation among adults with congenital unilateral upper limb deficiency in Norway: A cross-sectional study

et al. 2018

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ObjectivesTo describe level of education and work participation among adults with congenital unilateral upper limb deficiency (CUULD) in Norway and to explore associations between work participation and demographic and clinical factors.MethodsCross-sectional study. In 2012, a postal questionnaire was sent to 186 persons with congenital limb deficiency (CLD), age ≥ 20 years, registered at the TRS National Resource Center for Rare Disorders. In the original CLD study, 77 persons with CUULD responded. In this paper 64 persons with CUULD of working age (20–67 years) are included. Data on demographic factors as education level and work participation, and clinical factors including limb deficiency characteristics, chronic pain (Standardized Nordic Questionnaire), fatigue (Fatigue Severity Scale), physical and mental health (SF-36) were analyzed through descriptive and comparable statistics and logistic regression analyses.ResultsSixty-four persons participated, mean age 43.4 (SD 13.7; range 20–67 years), 45 were women. Education level >13 years was reported by 34. Forty- three of the 64 participants were employed, 21 were prematurely retired (disability benefits). 11 of the 43 employed, and 6 of the 21 prematurely retired had completed vocational education. Physically demanding occupations (work activities that required standing, walking and lifting) were reported by 25 of the 43 employed and 13 of the 21 prematurely retired. 17 of the 64 reported need for further adaptions in their workplaces. The strongest predictors of work participation were younger age (OR 0.86) and good physical health (OR 1.21).ConclusionTwo thirds of persons with CUULD were employed; while one third was prematurely retired and had left work earlier than expected. This suggests that persons with CUULD may experience challenges in work participation. Although levels of education were relatively high, several had chosen careers that required physical strain. Younger age and good physical health were the most important factors mediating work participation.

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Section: Discussionmentioning

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Education and work participation among adults with congenital unilateral upper limb deficiency in Norway: A cross-sectional study

et al. 2018

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Frequency, severity, and implications of shoulder pain in people with major upper limb amputation who use prostheses: Results of a National Study

Webster

Borgia

et al. 2021

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Background People with upper limb amputation are potentially at increased risk of shoulder pain because they often perform compensatory movements to operate their prostheses and rely more heavily on their nonamputated limb for everyday activities. Objective To describe the frequency, severity, associated factors, and implications of shoulder pain in people with unilateral major upper limb amputation who use prostheses. Design Cross‐sectional, observational design. Setting National recruitment of people living in the community. Participants U.S. veterans and civilians (N = 107) with unilateral major upper limb amputation. Interventions Not applicable. Main Outcome Measures Shoulder pain (any, ipsilateral and contralateral to amputation), activity performance (Activities Measure for Upper Limb Amputation), health‐related quality of life (Veterans RAND 12‐Item Health Survey mental component summary [MCS] and physical component summary [PCS]), and disability (Quick Version of the Disabilities of the Arm, Shoulder and Hand Score [QuickDASH]). Results All participants completed a comprehensive in‐person assessment. Participants were 97% male with a mean age of 57.1 years and a mean time since amputation of 23.4 years. The prevalence of any shoulder pain was 30% (15% ipsilateral, 25% contralateral, 10% bilateral). Shoulder pain intensity (0 to 10 scale) was moderate for both ipsilateral (mean 4.9, SD 2.0) and contralateral (mean 4.2, SD 2.0) pain. No significant difference in shoulder pain frequency was observed by amputation level. The prevalence of any shoulder pain was greater in those using a body‐powered prosthesis (38% compared to 18% in externally powered users). Each additional year since amputation was associated with an increased likelihood of having contralateral shoulder pain (odds ratio: 1.05, confidence interval: 1.01, 1.10). In linear regression models, those with contralateral shoulder pain had worse PCS (β = −7.07, p = .008) and worse QuickDASH (β = 18.25, p < .001) scores. Conclusions In our sample of predominantly male veterans with major upper limb amputation, shoulder pain was a common condition associated with functional and quality of life implications. Among prosthesis users, the shoulder contralateral to the amputation was at greatest risk, with risk increasing with every year since amputation.

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Helping to shine light on the Dark Ages: Applying the bioarchaeology of care approach to remains from the early Anglo-Saxon cemetery at Worthy Park

Tilley¹,

Cave

2023

International Journal of Paleopathology

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Chronic pain and fatigue in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study

Cited by 11 publications

References 48 publications

Education and work participation among adults with congenital unilateral upper limb deficiency in Norway: A cross-sectional study

Education and work participation among adults with congenital unilateral upper limb deficiency in Norway: A cross-sectional study

Frequency, severity, and implications of shoulder pain in people with major upper limb amputation who use prostheses: Results of a National Study

Helping to shine light on the Dark Ages: Applying the bioarchaeology of care approach to remains from the early Anglo-Saxon cemetery at Worthy Park

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