Chronic illness – a disruption in life: identity‐transformation among women with chronic fatigue syndrome and fibromyalgia

Abstract

Thus, the biographical disruption and illness experience comprised both losses and illness gains that had consequences for identity.

Social participation in young people with nonepileptic seizures (NES): A qualitative study of managing legitimacy in everyday life

“…However, this is probably a detrimental strategy because social isolation may have negative consequences for their sense of connectedness with others [33,37]. Furthermore, social isolation limits the possibilities for positive self-validation [28][29]37]and may cause a loss of self-esteem [28].…”

“…Sick leave from school, college and not being able to be with friends results in them being excluded from society [24]. This is unfortunate because social participation is a source of self-belief and confirmation of self [28,29]. Winger and colleagues [24] describe the young people experiencing alienation, meaninglessness, and loneliness.…”

Chronisch-vermoeidheidssyndroom

“…161 In some cases, illness was described as a reason for divorce or separation with family members. 159 …”

“…Some patients also withdrew from social life when they could not cope with meeting people or participating in various activities due to fatigue and poor health or found it difficult to plan activities in advance when their condition was unpredictable from one day to the next. 155,159 When patients felt that they were called into question by doctors or caregivers, they hesitated to seek care or waited as long as possible before contacting them again, preferring to turn to caregivers within alternative medicine. 155 …”

Resilience in Chronic Obstructive Pulmonary Disease and Chronic Heart Failure

“…Resilience for the purpose of this paper refers to an individual's ability to "bounce back" and adapt to or recover from an adverse event [17]. This has been explored as a potential mediator in a range of adverse or traumatic experiences including those experienced as a result of living with and managing long term physical and mental health conditions [18][19][20][21][22][23][24]. Resilience has been suggested as an underpinning reason that determines a person's ability to selfmanage their disease [25] and so may play a significant role in shaping psychosocial support offered to patients with COPD and CHF in the future.…”