Chronic Disease Among African American Families: A Systematic Scoping Review

Ellis, Katrina; Hecht, Hillary K.; Young, Tiffany L.; Oh, Se‐Young; Thomas, Shikira; Hoggard, Lori S.; Ali, Zaire; Olawale, Ronke; Carthron, Dana; Corbie-Smith, Giselle; Eng, Eugenia

doi:10.5888/pcd17.190431

Cited by 22 publications

(20 citation statements)

References 52 publications

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“…It is possible that when caregivers were experiencing increased physical distress (which could be due to health issues and/or the stress of caregiving), dyads were able to mobilize resources from their support networks to compensate for the challenges caregivers were facing. It is also possible that family members and friends had previous experience providing support for cancer caregivers' ongoing health concerns, and this support continued following the cancer diagnosis 13 …”

Section: Discussionmentioning

confidence: 99%

“…Considerable research has highlighted the need to investigate experiences of patients and caregivers as a dyad, acknowledging that the experiences of individuals who comprise relationally close dyads are often interdependent 12 . Moreover, a family comorbidity perspective recognizes how co‐occurring health issues within families influence both individual and collective wellbeing 13 . Many existing studies of patients and caregivers in the context of cancer compare the experiences between racial groups.…”

Section: Introductionmentioning

confidence: 99%

“…12 Moreover, a family comorbidity perspective recognizes how co-occurring health issues within families influence both individual and collective wellbeing. 13 Many existing studies of patients and caregivers in the context of cancer compare the experiences between racial groups. While racially comparative studies have merit, these studies are not sufficient for investigating and understanding experiences of people within specific racial groups.…”

Section: Introductionmentioning

confidence: 99%

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Symptom distress and quality of life among Black Americans with cancer and their family caregivers

Ellis

Hecht

et al. 2021

Psycho-Oncology

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Objective Black Americans are disproportionately affected by cancer and chronic diseases. Black patients with cancer and their family caregivers may concurrently experience symptoms that influence their wellbeing. This study investigates the influence of mental and physical symptom distress on quality of life (QOL) among Black Americans with cancer and their family caregivers from a dyadic perspective. Methods One hundred and fifty‐one dyads comprised of a Black American with breast, colorectal, lung or prostate cancer and a Black family caregiver were included in this secondary analysis of pooled baseline data from three studies. Self‐reports of problems managing 13 symptoms were used to measure mental and physical symptom distress. Descriptive statistics and the actor‐partner interdependence model were used to examine symptom prevalence and the influence of each person's symptom distress on their own and each other's QOL. Results Fatigue, sleep problems, pain and mental distress were prevalent. Patients and caregivers reported similar levels of mental distress; however, patients reported higher physical distress. Increased patient mental distress was associated with decreased patient QOL (overall, emotional, social, functional). Increased patient physical distress was associated with decreased patient QOL (overall, physical, emotional, functional) and decreased caregiver emotional wellbeing. Increased caregiver mental distress was associated with decreased caregiver QOL (overall, emotional, social, functional) and decreased patient overall QOL. Increased caregiver physical distress was associated with decreased caregiver QOL (overall, physical, functional), decreased patient emotional wellbeing, and better patient social wellbeing. Conclusions Supporting symptom management in Black patient/caregiver dyads may improve their QOL.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Symptom distress and quality of life among Black Americans with cancer and their family caregivers

Ellis

Hecht

et al. 2021

Psycho-Oncology

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“…Black adults experience poorer health outcomes from chronic health conditions than White adults. 12,13 Moreover, Odonkor & colleagues noted that "Black individuals were less likely to receive care that was concordant with clinical guidelines per the reported literature". 14 Health disparities among Black communities have been recognized for decades, but specific programs meant to address them have yet to become a priority within the medical field.…”

Section: Introductionmentioning

confidence: 98%

Community-Based Culturally Tailored Education Programs for Black Adults with Cardiovascular Disease, Diabetes, Hypertension, and Stroke: A Systematic Review Protocol

Fulton

Singh

Pakkal

et al. 2021

Preprint

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Background: Chronic conditions and stroke disproportionately affect Black adults in communities all around the world due patterns of systemic racism, disparities in care, and lack of resources. To address unequal care received by Black communities, a shift to community-based programs that deliver culturally tailored programs to meet the needs of the communities they serve, including Black adults who tend to have reduced access to postacute services, may give an alternative to a healthcare model which reinforces health inequities. However, community-based culturally tailored programs (CBCT) are relatively understudied but show promise to improve the delivery of services to marginalized communities. The objectives of this review are to: (i) determine key program characteristics and outcomes of CBCT programs that are designed to improve health outcomes in Black adults with cardiovascular disease, hypertension, diabetes, or stroke and (ii) identify which of the five categories of culturally appropriate programs from Kreuter and colleagues have been used to implement CBCT programs. Methods: This is a protocol for a systematic review that will search MEDLINE, CINAHL, and EMBASE databases to identify community-based culturally tailored programs for Black adults with cardiovascular disease, hypertension, diabetes, or stroke. Discussion: Health inequities have disproportionately impacted Black communities and will continue to persist if adjustments are not prioritized within healthcare to provide services, care, and programs meant to address the specific barriers to better health experienced. Many interventions, meant to improve the health outcomes of marginalized groups, are created with little input from target communities leading to interventions that may not address the specific barriers contributing to poor health outcomes and are designed and implemented from an outsider's perspective. The inclusion of community members allows for a deeper understanding of the issues facing the community and provides an opportunity to incorporate cultural values to potentially increase the efficacy, tailoring the intervention to distinct communities. An alternative to current healthcare interventions must be explored to reduce the health gap experienced by Black adults.

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“…Black adults experience poorer health outcomes from chronic health conditions than White adults. 12,13 Moreover,…”

Section: Introductionmentioning

confidence: 99%

Community-based Culturally Tailored Education Programs for Black Adults With Cardiovascular Disease, Diabetes, Hypertension, and Stroke: a Systematic Review Protocol

Fulton

Singh

Pakkal

et al. 2021

Preprint

View full text Add to dashboard Cite

Background: Chronic conditions and stroke disproportionately affect Black adults in communities all around the world due patterns of systemic racism, disparities in care, and lack of resources. Culturally-tailored programs can meet the needs of the communities they serve, including Black adults who tend to have reduced access to postacute services. To address unequal care received by Black communities, a shift to community-based programs that deliver culturally-tailored programs may give an alternative to a healthcare model which reinforces health inequities. However, community-based culturally-tailored programs (CBCT) are relatively understudied but show promise to improve the delivery of services to marginalized communities. The objectives of this review are to: (i) synthesize key program characteristics and outcomes of CBCT programs that are designed to improve health outcomes in Black adults with cardiovascular disease, hypertension, diabetes, or stroke and (ii) identify which of the five categories of culturally appropriate programs from Kreuter and colleagues have been used to implement CBCT programs.Methods: This is a protocol for a systematic review that will search MEDLINE, EMBASE and CINAHL databases to identify CBCT programs for Black adults with cardiovascular disease, hypertension, diabetes, or stroke.Discussion: Health inequities have disproportionately impacted Black communities and will continue to persist if adjustments are not prioritized within healthcare to provide services, care, and programs meant to address the specific barriers to better health. Many interventions meant to improve the health outcomes of marginalized groups are created using an outsider's perspective, with little input from target communities, leading to interventions that may not address the specific barriers contributing to poor health outcomes. The inclusion of community members in the design of CBCT programs allows for a deeper understanding of the issues facing the community and provides an opportunity to incorporate cultural values that may enhance the efficacy, relevance and appropriateness of programs to the target communities. Trial registration: PROSPERO CRD42021245772

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Chronic Disease Among African American Families: A Systematic Scoping Review

Cited by 22 publications

References 52 publications

Symptom distress and quality of life among Black Americans with cancer and their family caregivers

Symptom distress and quality of life among Black Americans with cancer and their family caregivers

Community-Based Culturally Tailored Education Programs for Black Adults with Cardiovascular Disease, Diabetes, Hypertension, and Stroke: A Systematic Review Protocol

Community-based Culturally Tailored Education Programs for Black Adults With Cardiovascular Disease, Diabetes, Hypertension, and Stroke: a Systematic Review Protocol

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