Choice and control for people ageing with intellectual disability in group homes

Kåhlin, Ida; Kjellberg, Anette; Hagberg, Jan-Erik

doi:10.3109/11038128.2015.1095235

Cited by 48 publications

(14 citation statements)

References 42 publications

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“…This leads to increased reliance on supportive others when using ICTs and decreased opportunities to demonstrate choice and control over ICT use and related activities. In line with the work of Nader-Grosbois and Lefèvre (2012) and Kåhlin et al (2016), we note the importance of providing individualized support to individuals with ID, without imposing unnecessary control on how ICTs are used. Our findings highlight that digital inclusion for people with ID depends on the interaction between the opportunities provided within their social context and personal skills, as illustrated in Figure 1.…”

Section: Digital Inclusionsupporting

confidence: 83%

Connectedness and ICT: Opening the door to possibilities for people with intellectual disabilities

Barlott

Aplin

Catchpole

et al. 2019

J Intellect Disabil

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This study aimed to investigate the experiences of people with intellectual disability (ID) using information and communication technologies (ICTs) and the ways these technologies foster social connectedness. In partnership with a community mental health organization, this qualitative descriptive study explored the experiences of 10 people with ID using ICTs. Participants described how ICTs Opened the Door to Possibilities in their life – ICTs provided an avenue for connecting with other people, a means to pursue personal interests and a tool for organizing everyday life. Opening the door to possibilities was further understood as movement towards digital inclusion for people with ID, conceptualized as the fit between social opportunity and personal skills. We have identified the prominent role social supports play in creating (and constraining) opportunities for digital inclusion, and that digital inclusion has the potential to enable social connectedness and the development of agency. Consideration of the complex interaction between social opportunity and personal skills, and the mediating influence of supports, will enhance the inclusion of people with ID.

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Section: Digital Inclusionsupporting

confidence: 83%

Connectedness and ICT: Opening the door to possibilities for people with intellectual disabilities

Barlott

Aplin

Catchpole

et al. 2019

J Intellect Disabil

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“…One of the participants provided his/her personal observations of a lack of voice and choice people with ID have in group homes or alike facilities. This finding is supported by Kåhlin, Kjellberg, and Hagberg (2016), who conducted an ethnographic study of how choice and control of persons with ID is performed in the group homes. They concluded that ageing people with ID are vulnerable in regards to maintaining choice and control in group homes, and that choice-making and control are often restricted by staff members.…”

Section: Discussionmentioning

confidence: 69%

Transitions in the Lives of Older Adults With Intellectual Disabilities: “Having a Sense of Dignity and Independence”

Strnadová

2018

Policy Practice Intel Disabi

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Older people with intellectual disabilities (ID) experience numerous transitions in their lives, which include transitions between jobs, places of residence, relationship transitions, and transitions to retirement. Ensuring quality planning for the future is important so that older people with ID can live good lives. Thus, the aim of this study was to explore planning for the future and transitions experienced by older people with ID. The author conducted semi‐structured in‐depth interviews with 17 people with ID aged 40 years and more. The interviews were analyzed using inductive content analysis. The three main themes were types of transitions, planning for future, and barriers to planning for future. The implications for research and practice are discussed, with a focus on enhancing independence and choice‐making.

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“…Our study shows that participants’ management of a broken agreement was characterized by negative emotions that were masked by maintaining a positive exterior and the participants’ positive view of the staff member and her conduct. The imbalance between the level of individual participant choice and staff control is influenced by the uniquely created environment that exists in the care of people with intellectual disabilities (e.g., Kåhlin, Kjellberg, & Hagberg, 2016). This imbalance was described in three themes: being emotionally touched , being aware of the other , and being unclear .…”

Section: Discussionmentioning

confidence: 99%

‘It’s my home and your work’: the views of a filmed vignette describing a challenging everyday situation from the perspective of people with intellectual disabilities

Haugenes

Østby

2018

International Journal of Qualitative Studies on Health and Well

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Purpose: Examining everyday challenges in the interactions between people with intellectual disabilities and their staff, as seen from the user’s perspective, is an important perspective in health care research. Involving people with intellectual disabilities as so-called co-researchers is a relatively unexplored research strategy. In this paper, co-researchers participated in all the steps of the research process, from planning to reporting, in addition to the written reporting of the findings. The aim of this study was to explore how people with intellectual disabilities experienced a filmed vignette of an everyday situation. Method: Based on audio-recorded and transcribed individual and focus-group interviews with people with intellectual disabilities, performed by co-researchers with intellectual disabilities together with researchers, qualitative content analysis was used. Results: The analysis reveals three themes: “being emotionally touched”, “being aware of the other”, and “being unclear”. Conclusions: The results are discussed in light of normalization and participation in society with independence and one’s own decision-making. Regarding the care of people with intellectual disabilities, the main finding is the need to focus not only on greater involvement of this population in their own daily lives, but also to teach self-determination skills. Another finding is the importance of involving people with intellectual impairment as co-researchers.

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Choice and control for people ageing with intellectual disability in group homes

Abstract: Background Many people ageing with intellectual disabilities [ID] age in place in group homes.

Cited by 48 publications

References 42 publications

Connectedness and ICT: Opening the door to possibilities for people with intellectual disabilities

Connectedness and ICT: Opening the door to possibilities for people with intellectual disabilities

Transitions in the Lives of Older Adults With Intellectual Disabilities: “Having a Sense of Dignity and Independence”

‘It’s my home and your work’: the views of a filmed vignette describing a challenging everyday situation from the perspective of people with intellectual disabilities

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