Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months

Han, Yongtao; Liu, Yilan; Zhang, Xuelin; Tam, Wilson W.S.; Mao, Jing; Lopez, Violeta

doi:10.1111/jocn.13793

Cited by 52 publications

(83 citation statements)

References 32 publications

(58 reference statements)

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“…In this study, caregivers bore considerable burden at T1, consistent with the previous study on Chinese ischaemic stroke survivors from Han et al (). It is a social norm to take care of patients while in the hospital because of the family obligation and filial piety culture in China.…”

Section: Discussionsupporting

confidence: 91%

“…Years of education for patients and employment status were predictors for burden in Hong Kong (Tang, Lau, Mok, Ungvari, & Wong, ). The physical dependence of patients, caregivers' age, hours of caring per day, and depressive symptoms of caregivers were also reported to be predictors for burden (Han et al, ). However, the findings above are insufficient to draw a whole picture of caregiver burden.…”

Section: Introductionmentioning

confidence: 99%

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Determinants of caregiver burden of patients with haemorrhagic stroke in China

Zhu

Jiang

2018

Int J of Nursing Practice

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Aim The aim of this study was to assess the caregiver burden over time of patients with haemorrhagic stroke and the determinants of this. Background Identification of the predictors for caregiver burden can be used to improve the outcomes of stroke survivors and caregivers. Few studies focus on the caregiver burden of patients with haemorrhagic stroke and how this changes over time. Design This was a prospective longitudinal study. Methods A convenience sample of 202 stroke survivor/caregiver pairs were recruited in the neurosurgery unit from March 2015 to March 2016. The participants were assessed at three different times by face to face or telephone interview. Caregiver burden was assessed using the Bakas Caregiver Outcomes Scale. Sociodemographic data and other characteristics of the pairs were also collected. Multiple linear regression was performed to identify the determinants. Results Caregiver burden decreased from T1 to T3 significantly. The physical function, depression of stroke survivors, and self‐rated burden of caregivers were the most important determinants for overall caregiver burden. The factors identified explained 41.6% to 67.4% of overall burden. Conclusion Caregiver burden decreased over time, affected by factors from patients and caregivers. More professional caregivers are needed to support informal carers.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Determinants of caregiver burden of patients with haemorrhagic stroke in China

Zhu

Jiang

2018

Int J of Nursing Practice

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“…Although several studies have been conducted on stroke caregivers’ QOL, anxiety, depression and burden, only a few of them have been longitudinal, examining these variables during the first year from when the survivor is discharged home after the stroke and the caregiver starts to experience caregiving (Chuluunbaatar, Chou, & Pu, ; Godwin et al., ; Jonsson, Lindgren, Hallstrom, Norrving, & Lindgren, ; Kruithof et al., ; Nir, Greenberger, & Bachner, ). Also, only few studies (Han et al., ; Kruithof et al., ; Malhotra et al., ; Pucciarelli et al., ) have identified with a longitudinal design predictors of stroke caregivers’ QOL, anxiety, depression and burden. The first year after a stroke has been shown to be the most challenging for both stroke survivors and their caregivers (Chuluunbaatar et al., ; Jonsson et al., ) because, during this year, stroke survivors struggle with their disabilities (de Weerd, Rutgers, Groenier, & van der Meer, ) and caregivers must assume a new role in their lives (Simeone et al., ).…”

Section: Introductionmentioning

confidence: 99%

Quality of life, anxiety, depression and burden among stroke caregivers: A longitudinal, observational multicentre study

Pucciarelli

Ausili

Galbussera

et al. 2018

Journal of Advanced Nursing

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“…Han et al, 2017). There is clearly some consideration that needs to be made related to the inclusion of families in care delivery at the end of life in acute hospital settings.…”

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confidence: 99%

End of life in acute hospital setting—A systematic review of families' experience of spiritual care

Hennessy

Neenan

Brady

et al. 2020

Journal of Clinical Nursing

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Aims and objectives To systematically review qualitative studies exploring families' experiences of spiritual care at the end of life in acute hospital settings. Background Although there is a widespread belief that the consideration of spiritual and religious needs is outdated in the context of secularism, from a practical perspective patients and families appear to benefit from spiritual support at the end of life. Methods Six key databases, CINAHL, MEDLINE, EMBASE, Global Health Library, Web of Science and Applied Social Sciences Index and Abstracts (ASSIA), were searched, and three reviewers independently extracted the data and coded them into themes and subthemes. The Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) was used as a reporting framework. Results Five main themes emerged: anticipating needs; honouring the family by honouring the patient; personal connection; lack of sensitivity; and making space for religious and spiritual practices. Conclusions Families experiencing end‐of‐life care in acute hospital settings may benefit from spiritual care. While this can also be considered as fundamental care, understanding this through the lenses of spiritual care allows for incorporation of religious and spiritual practices that many seek at this time, irrespective of their faith perspectives. Relevance to clinical practice Although hospice care is well established internationally, many families experience end‐of‐life care in acute hospital settings. Nurses usually get to know families well during this time; however, the demands of the clinical environment place restrictions on family care and perceptions of lack of communication, limited support and/or limited sensitivity can compound families' suffering. Consideration of families' spiritual needs can help to support families during this time. Nurses are ideally placed for this and can anticipate and plan for patient and family needs in this regard, or refer to a specialist, such as the Healthcare Chaplain.

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Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months

Abstract: Nurses need to be aware of and understand caregivers' cultural values and beliefs about family obligations when considering an intervention to support them in their role at home.

Cited by 52 publications

References 32 publications

Determinants of caregiver burden of patients with haemorrhagic stroke in China

Determinants of caregiver burden of patients with haemorrhagic stroke in China

Quality of life, anxiety, depression and burden among stroke caregivers: A longitudinal, observational multicentre study

End of life in acute hospital setting—A systematic review of families' experience of spiritual care

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