Children with specific sensory impairments

Dale, Naomi; Edwards, Lindsey

doi:10.1002/9781118381953.ch47

Cited by 2 publications

(3 citation statements)

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“…Prevalence rates between 33% and 58% have also been noted in children with cerebral palsy (CP), hydrocephaly and periventricular white matter injury (PVL) [ 12 – 16 ], supporting the link between early brain insult and CVI. Several studies, based on optometrist/ophthalmologist assessment have also reported an increased risk of visual impairment in children with neurodevelopmental disorders [ 2 , 17 – 22 ], although evidence on associations between specific types of neurodevelopmental disorders and CVI is limited.…”

Section: Introductionmentioning

confidence: 99%

Towards population screening for Cerebral Visual Impairment: Validity of the Five Questions and the CVI Questionnaire

et al. 2019

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IntroductionCerebral Visual Impairment (CVI) is the most common cause of visual impairment in children in the developed world and appears to be more prevalent in children with additional support needs (ASN). There is an urgent need for routine screening for CVI, particularly in children with ASN, however, current screening questionnaires for CVI have limited validation. The aim of this study was to evaluate two screening tools: the Five Questions and the CVI Questionnaire. Additionally, the distribution of CVI across neurodevelopmental disorders is unknown. This too was investigated.MethodsAn online survey was completed by 535 parents. The survey was advertised via social media, CVI websites and parent email systems of four schools. The survey comprised of the Five Questions, the CVI Questionnaire and additional questions regarding the child’s diagnoses. Whether or not a child had a diagnosis of CVI and/or additional neurodevelopmental disorders was based on parental report.ResultsBased on parent reports, both the screening tools accurately screened for CVI diagnoses in children. The Five Questions and the CVI Questionnaire have construct validity (as determined through factor analysis), high internal consistency (as determined by Cronbach’s alpha) and convergent validity (as determined by correlation analysis of the raw scores of each questionnaire). This study also highlights that among children with neurodevelopmental disorders, a large proportion have parent-reported CVI (23%-39%) and potential CVI (6.59–22.53%; as identified by the questionnaires).ConclusionThe current study demonstrates that the Five Questions and CVI Questionnaire have good convergent validity, internal consistency and a reliable factor structure and may therefore be suitable as screening tools. The study also highlights that reported or potential CVI is evident in a large proportion of children with neurodevelopmental disorders.

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Section: Introductionmentioning

confidence: 99%

Towards population screening for Cerebral Visual Impairment: Validity of the Five Questions and the CVI Questionnaire

et al. 2019

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“…Childhood onset VI has significant impact on the developing person, with cumulative consequences for their social-emotional functioning, cognitive development, education, and future prospects. [22][23][24][25][26] Most visually impairing disorders affecting children in developed countries are not currently treatable or preventable, so a substantial focus of paediatric ophthalmology is on support, visual habilitation and maintenance of vision of affected children, rather than restorative treatments. 27,28 A critical part of the ongoing support provided by paediatric ophthalmology services is understanding children's own assessment of the impact of their visual impairment on their daily lives, measured routinely and over time, to complement objective clinical assessments (such as acuity).…”

Section: Need For Vision-specific Proms In Paediatric Ophthalmologymentioning

confidence: 99%

“…15,18 Thus, understanding of typical developmental stages should inform age thresholds for age-appropriate questionnaire versions; however this is not straight forward because of the individual variations within age groups. 18 In terms of visually impaired children, superimposed on this is the challenge that VI from birth or infancy results in delay in key developmental milestones 23…”

Section: Theoretical Underpinning Of Prom Constructsmentioning

confidence: 99%

One size doesn’t fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology?

Tadić

Rahi

2017

Eye

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The purpose of this article is to summarise methodological challenges and opportunities in the development and application of patient reported outcome measures (PROMs) for the rare and complex population of children with visually impairing disorders. Following a literature review on development and application of PROMs in children in general, including those with disabilities and or/chronic condition, we identified and discuss here 5 key issues that are specific to children with visual impairment: (1) the conflation between theoretically distinct vision-related constructs and outcomes, (2) the importance of developmentally appropriate approaches to design and application of PROMs, (3) feasibility of standard questionnaire formats and administration for children with different levels of visual impairment, (4) feasibility and nature of self-reporting by visually impaired children, and (5) epidemiological, statistical and ethical considerations. There is an established need for vision-specific age-appropriate PROMs for use in paediatric ophthalmology, but there are significant practical and methodological challenges in developing and applying appropriate measures. Further understanding of the characteristics and needs of visually impaired children as questionnaire respondents is necessary for development of quality PROMs and their meaningful application in clinical practice and research.

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Children with specific sensory impairments

Cited by 2 publications

References 92 publications

Towards population screening for Cerebral Visual Impairment: Validity of the Five Questions and the CVI Questionnaire

Towards population screening for Cerebral Visual Impairment: Validity of the Five Questions and the CVI Questionnaire

One size doesn’t fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology?

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