Children with congenital colorectal malformations often require special education or remedial teaching, despite normal intelligence

Hondel, Desiree van den; Aarsen, Femke K.; Wijnen, René; Sloots, Cornelius E. J.; IJsselstijn, Hanneke

doi:10.1111/apa.13154

Cited by 19 publications

(11 citation statements)

References 26 publications

(31 reference statements)

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“…The majority of patients that remained in our database until the age of 18 had a normal intelligence, but their sustained attention was below the norm. This data is consistent with Hondel's studies, which also suggest that these patients should benefit from special education or remedial teaching [29,30]. All the children from our sample were enrolled in normal schools.…”

Section: Discussionsupporting

confidence: 91%

Anorectal Malformations in a Tertiary Pediatric Surgery Center from Romania: 20 Years of Experience

Ciongrad¹,

Aprodu²

2016

Surgery

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Journal of Surgery IntroductionAnorectal malformations (ARMs) are a group of commonly encountered congenital anomalies in pediatric surgery practice, with an incidence of 2 in 1000 to 1 in 5000 live births, but with significant variations between different regions throughout the world, as reported in the literature [1,2]. According to Peña and Bechit there is a wide spectrum of presentation, ranging from low perineal fistula to high anomalies with complex surgical management [3,4]. As Stoll and Moore discussed, ARMs are often associated with a complex range of another anomalies i.e. esophageal atresia, and central nervous system, cardiovascular, urogenital, gastrointestinal and skeletal defects [5,6]. In his report, Holschneider stated that the advances in imaging techniques and improvements in the knowledge of embryology, anatomy and physiology of ARM cases have refined both diagnosis and surgical therapy [7]. Other authors found that the classical approach to this pathology have moved towards PSARP and minimally invasive techniques with a clear goal of improving anatomical and functional outcomes and quality of life [8]. However constipation and fecal incontinence are still the main concerns regarding the long-term outcomes in these patients, as was discussed by de Blaauw et al. [9] Material and MethodsWe performed a retrospective study by analyzing the clinical records of all the ARMs patients managed in the Pediatric Surgery Department of "St. Mary" Children Emergency Hospital of Iasi, Romania over a 20 years period (1996)(1997)(1998)(1999)(2000)(2001)(2002)(2003)(2004)(2005)(2006)(2007)(2008)(2009)(2010)(2011)(2012)(2013)(2014)(2015). The collected data included demographic and social AbstractIntroduction: The main goal of surgery and multidisciplinary behavioral therapy in anorectal malformations (ARMs) is to achieve good anatomical and functional outcomes and a better quality of life. Material and Methods:A retrospective analysis of 146 patients with ARMs was conducted over a 20 years period in our pediatric surgery department. The clinical and demographical data, operative protocols, short and long term outcomes were subject to assessment. Results:The patient series included 85 boys and 61 girls aged between one day and two years, of which 82.19% were diagnosed in the first few days of life by means of clinical examination and current imaging tests. In 26.02% of cases we found associated congenital abnormalities. A total of 142 (97.25%) cases of all our series underwent surgical treatment; four patients died before surgery. For 131 children the definitive treatment involved posterior sagittal anorectoplasty (PSARP) respectively 11 posterior sagittal anorectovaginourethroplasty (PSARVUP). Long-term followup in 115 patients showed good clinical continence in 82 cases (71.30%) but more than half of the teenagers had body dissatisfaction and social difficulties. Conclusions:Through this review of 20 years of experience our findings are consistent with other reports regarding male predominance, low birth we...

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Section: Discussionsupporting

confidence: 91%

Anorectal Malformations in a Tertiary Pediatric Surgery Center from Romania: 20 Years of Experience

Ciongrad¹,

Aprodu²

2016

Surgery

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“…Patients with HSCR have shown an increased need for special education at school when compared with controls, although when assessing intelligence no differences are apparent. 135…”

Section: Quality Of Lifementioning

confidence: 99%

Adult outcomes after surgery for Hirschsprung’s disease: Evaluation of bowel function and quality of life

Granström

Danielson

Husberg

et al. 2015

Journal of Pediatric Surgery

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“…Previous studies of children born with various congenital malformations have reported attention difficulties, such as significantly worse scores in working memory in 41% (17) and sustained attention levels that were lower than the general population (18,19). One study also found that their risk of having high-risk scores for inattention and hyperactivity were three to four times higher than the general population (20).…”

Section: Discussionmentioning

confidence: 97%

Attention difficulties and physical dysfunction common in children with complex congenital malformations: a study of preschool children with VACTERL association

et al. 2018

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Children with congenital colorectal malformations often require special education or remedial teaching, despite normal intelligence

Abstract: Despite normal intelligence, more than half of these patients received special education or remedial teaching. In addition, problems with sustained attention were found. These findings are important for long-term care.

Cited by 19 publications

References 26 publications

Anorectal Malformations in a Tertiary Pediatric Surgery Center from Romania: 20 Years of Experience

Anorectal Malformations in a Tertiary Pediatric Surgery Center from Romania: 20 Years of Experience

Adult outcomes after surgery for Hirschsprung’s disease: Evaluation of bowel function and quality of life

Attention difficulties and physical dysfunction common in children with complex congenital malformations: a study of preschool children with VACTERL association

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