Children who ‘grow up’ in hospital: Inpatient stays of six months or longer

Davies, Dawn; Hartfield, Dawn; Wren, Tara

doi:10.1093/pch/19.10.533

Cited by 15 publications

(9 citation statements)

References 14 publications

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“…Prolonged hospitalization which is linked to the moderate and severe or complex cases can explain this. Long hospitalization periods for infants and CYP related to complex conditions, including severe cardiac conditions, could increase the mortality rate and cause psychosocial issues in these CYP (Davies et al, 2014). Another explanation could be that the development of emotional problems in CYP with moderate-to-severe CHD is related to the genetic link between the heart and the child’s emotions as it was identified in velocardiofacial syndrome, a heart-related condition (Gothelf et al, 2004).…”

Section: Discussionmentioning

confidence: 99%

Behaviour and emotions of children and young people with congenital heart disease: A literature review

Dahlawi

Milnes

Swallow

2019

J Child Health Care

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Congenital heart disease (CHD) is one of the common types of birth defects. Children and young people (CYP) with CHD might exhibit behavioural and emotional changes related to undergoing different medical treatments and hospitalization. Therefore, a literature review was conducted from January 2000 to June 2017 that aimed to understand and evaluate current international literature focusing on CYP’s behavioural and emotional status as patients with CHD. A comprehensive search of Medline, PsycINFO and CINAHL databases was undertaken. Eight quantitative studies were reviewed following strict eligibility criteria. The Mixed Methods Appraisal Tool (MMAT) was used to assess the quality of the reviewed studies. Parents provided proxy reports on their children’s behaviour and emotions in all studies. Half of the reviewed studies presented the self-perceptions of children who were over seven years old. CYP with CHD exhibited internalizing and externalizing behavioural problems, withdrawal, depression, social, and attention problems. CYP with more severe CHD reported greater behavioural and emotional problems than CYP with less severe CHD. Moreover, younger children developed more problems than older children. Future more depth research using qualitative designs is required to explore the personal views of children younger than seven years old on the impact of CHD on their behaviour and emotions.

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Section: Discussionmentioning

confidence: 99%

Behaviour and emotions of children and young people with congenital heart disease: A literature review

Dahlawi

Milnes

Swallow

2019

J Child Health Care

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“…These findings were reflective of a general trend for children admitted to pediatric hospitals having increasingly complex care needs, with attendant high resource use [ 7 , 8 , 9 , 10 ]. This data has been further enriched by an elegant, descriptive study [ 11 ] of home-based PPC.…”

Section: Identificationmentioning

confidence: 78%

Palliative Care for Children in Hospital: Essential Roles

Drake

2018

Children

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Palliative care for children in pediatric hospitals is a vital part of the network of services supporting children with severe illness. This has been recognized, with a trend over the past decade for an increased number of pediatric palliative care (PPC) services established in pediatric hospitals. The inpatient team is in the unique position of influencing the early identification of children and their families, across the age and diagnostic spectrum, which could benefit from palliative care. These services have an opportunity to influence the integration of the palliative approach throughout the hospital, and in so doing, have the capacity to improve many aspects of care, including altering an increasingly futile and burdensome treatment trajectory, and ensuring improved symptom (physical and psychological) management.

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“…In fact, a recent study examining paediatric inpatient stays >6 months showed that 88% of the children displaced from their family homes because of medical issues were Aboriginal. These children had health needs that could not be met in the existing home/health care environment (5). When First Nations children do not have timely access to the services ordinarily available to other children, their human, constitutional and treaty rights are violated.…”

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confidence: 99%