Children’s complex health: Maternal experiences of care and decision making

Willis, Eleanor; Godbold, Rosemary

doi:10.1177/13674935231158456

Cited by 3 publications

(1 citation statement)

References 39 publications

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“…The normalization of conditions increases mothers' hope for the future of their child's life despite the disorder. This acceptance is effective in decision-making and informed choices and creates a way to establish more communication and interaction with caregivers and increase life expectancy in mothers (28). Numerous studies, both in hearing and deaf populations, show how lack of access to language affects children's emotional development (29).…”

Section: Discussionmentioning

confidence: 99%

Adaptation of mothers of hearing-impaired children to cochlear implantation: A qualitative study for identification of effective factors

Ravanyar,

Hashemian,

Mostafavi

et al. 2024

J Multidiscip Care

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<strong data-sider-select-id="23310f00-5dfa-480a-a4ff-ada7c69c0c78">Background and aims: Studies have indicated a considerable change in the trend of families’ adaptation to the hearing impairment of their children following the application of hearing screening programs in the past few years. This study was conducted in line with increased rehabilitation service quality and family-based intervention. It was performed to identify factors affecting the adaptation of mothers to hearing-impaired (HI) children with cochlear implants. <strong data-sider-select-id="15b3b513-cd15-4b53-8df8-f7a27ec30b17">Methods: This qualitative-descriptive research was performed with a phenomenological approach and involved 16 mothers of two to seven-year-old HI children with cochlear implants. The research setting was the centers for speech therapy of HI children in Shiraz, Iran. Data were collected through in-depth interviews with the subjects, and data analysis was performed in MAXQDA (2018) using Colaizzi’s seven-step method. <strong data-sider-select-id="f166576e-379c-4e0c-a498-612f4d8a6ac7">Results: The mean age of the subjects was 34 years, and the children of these parents were two to seven years old. The mean age of the earliest known diagnosis was 12 months. Moreover, the mean age at cochlear implantation was 2.5 years. Based on the subjects’ experiences, the researchers extracted factors affecting mothers’ adaptation, leading to four main themes. These factors facilitated mothers’ adaptation and included the quality of medical services, condition normalization, individual capabilities of mothers, and effective use of the environment. <strong data-sider-select-id="c47ad3f8-8f76-4323-9e3f-13eec76bdee1">Conclusion: Improving the quality of medical services, condition normalization, individual capabilities of mothers, and effective use of the environment led to an improvement in mothers’ adaptation to HI children with cochlear implants.

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Section: Discussionmentioning

confidence: 99%

Adaptation of mothers of hearing-impaired children to cochlear implantation: A qualitative study for identification of effective factors

Ravanyar,

Hashemian,

Mostafavi

et al. 2024

J Multidiscip Care

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‘I don’t want him to always be so far behind’: Parental perceptions of child independence in the context of extreme prematurity; a qualitative study

Suonpera,

Gallagher,

Marlow

et al. 2024

J Child Health Care

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This study addresses the paucity of research on parents of extremely preterm adolescents (born <27 weeks of gestation) and their experiences within the framework of parental determinism. We conducted semi-structured interviews with twenty-two mothers and one father. Data were analysed thematically, revealing three overarching themes and eight subthemes shaping parental accounts. These themes centred on parental ambitions for their children, their perceptions of their child’s abilities, and the parenting behaviours employed to support parental aspirations. Parents’ actions were influenced by their ambitions and the belief that they could impact their child’s future independence. While some parents adopted ‘trusting’, non-intensive parenting behaviours, those anticipating challenges for their child’s future independence resorted to intensive parenting practices. These findings align with the concept of parental determinism, emphasising the perceived causal link between present parental actions and future child outcomes. In the context of extreme prematurity, a nuanced understanding of parental perceptions regarding their child’s future independence aligned with a delicate balance between hope and realistic aspiration is crucial for enhancing parental support and well-being.

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Cerebral palsy risk in relation to parental age: insights from a matched case-control study

Fafolahan,

Davis,

Sodipo

et al. 2024

Bull Fac Phys Ther

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Background Cerebral palsy, a prevalent childhood physical disability, exhibits complex multifactorial causes. This case-control study explores the role of parental age in cerebral palsy risk and associated patterns. Methods A case-control study comparing children with cerebral palsy at ages 3 months to 3 years with age-matched healthy control subjects was conducted between January 2022 and August 2023 at Federal Medical Centre, Abeokuta, Nigeria. Cases were recruited from the pediatric physiotherapy outpatient clinic, while controls were selected from pediatric and children emergency wards. Data were collected retrospectively from electronic medical records. Risk factors were evaluated using conditional logistic regression models. Results We studied 134 subjects with cerebral palsy and 134 age-matched control subjects. Significant risk factors for cerebral palsy included the maternal age 35–39 years (odds ratio 2.16, P < 0.005), maternal age ≥ 40 years (odds ratio 3.83, P < 0.005), paternal age 41–45 (odds ratio 2.00, P < 0.05), paternal age ≥ 46 (odds ratio 6.80, P < 0.05), primiparous (odds ratio 2.2, P < 0.05), paternal low income (odds ratio 2.49, P < 0.05), paternal primary education (odds ratio 24.61, P < 0.05), and maternal primary education (odds ratio 2.39, P < 0.05). Conclusions This research contributes to our understanding of parental age as risk factors associated with cerebral palsy in children. The results also underscore the importance of demographic and socioeconomic factors, especially father’s level of income, maternal parity, and parental education. These findings can guide future research and public health interventions aimed at reducing the burden of cerebral palsy.

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Children’s complex health: Maternal experiences of care and decision making

Cited by 3 publications

References 39 publications

Adaptation of mothers of hearing-impaired children to cochlear implantation: A qualitative study for identification of effective factors

Adaptation of mothers of hearing-impaired children to cochlear implantation: A qualitative study for identification of effective factors

‘I don’t want him to always be so far behind’: Parental perceptions of child independence in the context of extreme prematurity; a qualitative study

Cerebral palsy risk in relation to parental age: insights from a matched case-control study

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