Children’s and parents’ perspectives of health-related quality of life in newly diagnosed adolescent idiopathic scoliosis

Kontodimopoulos, Nick; Damianou, Konstantia; Stamatopoulou, Eleni; Kalampokis, Anastasios; Loukos, Ioannis

doi:10.1016/j.jor.2018.02.003

Cited by 16 publications

(13 citation statements)

References 38 publications

(42 reference statements)

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“…В клинико-психологических исследованиях отечественных авторов рассматриваются преимущественно психологические проблемы больных со спинальными травмами [4][5][6], с врожденными формами сколиоза [5,6]. Психологические особенности больных с AIS представлены в основном в работах зарубежных исследователей [7][8][9][10][11][12][13][14][15][16][17][18][19][20] и в отдельных работах отечественных авторов [21][22][23][24][25].…”

Section: анализ проблемыunclassified

“…Первичный отбор включал 16 публикаций, среди которых было два обзорных исследования [26,27], которые отражали анализ литературы с использованием баз данных по проблеме родительского влияния на переживание ребенком посттравматического стресса. Влияние семейно-го фактора на лечение было также представлено в публикациях R.A. Kadier et al [18,28].…”

Section: методология анализа исследований по сколиозуunclassified

“…Медицинские аспекты AIS (эпидемиологические и медико-диагностические вопросы) отражены в работах A.S. Deepak et al [3] и P.-H. Heitz et al [17]. В то же время тема сколиоза (в более широком аспекте -по отношению к различным формам сколиоза) представлена в работах С. Aslan et al [33], F. Jagger et al [34], N. Kontodimopoulosab et al [18]: использование оперативного вмешательства; психологические затруднения и психическая дезадаптация больных сколиозом; качество жизни; особенности психотравмирующей ситуации болезни и факторы, определяющие психосоциальную адаптацию пациента.…”

Section: методология анализа исследований по сколиозуunclassified

“…Kontodimopoulosab et al проводили сравнительный анализ оценки качества жизни подростков с идиопатическим сколиозом и их родителей. Было выявлено, что родители оценивают качество жизни выше, чем их дети [18]. В лонгитюдном исследовании R.A. Kadier et al рассмотрена взаимосвязь оценок качества жизни подростками с недавно диагностированными хроническими заболеваниями и их родителями.…”

Section: анализ публикаций по идиопатическому сколиозуunclassified

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Psychological aspects of treatment and rehabilitation of patients with adolescent idiopathic scoliosis: research analysis

Pyatakova

Викторовна²,

Okoneshnikova

et al. 2019

Pediatr Traum Orthop Reconstr Surg

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Idiopathic scoliosis is a common orthopedic disease of unknown etiology in childhood that limits the patient’s activity for a lifetime. Treatment of idiopathic scoliosis includes both conservative and surgical methods and requires psychological consideration, which is important for the rehabilitation of patient with chronic disease. Systematic research on the psychological aspects of the treatment and rehabilitation of patients with idiopathic scoliosis in the form of analysis allows us to evaluate the medical and psychological approaches to the problem and to identify the factors contributing to the successful adaptation of the patient to chronic disease situation. Methodology. We selected the articles related to the psychological aspects of scoliosis and its treatment between 2017 and 2018. The primary selection included 16 publications, of which 2 were survey studies. Earlier foreign and domestic publications were also included in the analysis in order to compare the changes in treatment and rehabilitation approaches. Literature analysis. Idiopathic scoliosis was considered as a risk factor for psychological discomfort in the forms of stress, negative emotions, anxiety, distortion of the image of “I,” reduced self-esteem, and communication problems. These increase the risk of mental disorders, such as depression, suicidal tendencies, and psychological disadaptation. Discussion. Analysis allows us to highlight the most important topics in the studies of adolescent idiopathic scoliosis in recent years: topic on mental health/ill health in adolescent idiopathic scoliosis (AIS), theme of the psychological component of pain, topic on clinical psychological and social psychological factors that determine the course of the disease of the patients with AIS, quality of life of a child or adolescent with AIS, issues of psychological resources for adaptation to a chronic disease, topic on parents’ perception of their child’s illness, and topic on the psychological accompaniment of patients suffering from AIS. Conclusions. A modern approach to the study of idiopathic scoliosis suggests a point of view from a biopsychosocial model of the disease; therefore, it is necessary to consider various factors affecting the patient’s quality of life, including the psychological component of the disease. Psychological support of the treatment should focus on the formation of the patient’s active position in relation to his or her own life and active coping strategies with chronic disease.

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Section: анализ проблемыunclassified

Section: методология анализа исследований по сколиозуunclassified

Section: анализ публикаций по идиопатическому сколиозуunclassified

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Psychological aspects of treatment and rehabilitation of patients with adolescent idiopathic scoliosis: research analysis

Pyatakova

Викторовна²,

Okoneshnikova

et al. 2019

Pediatr Traum Orthop Reconstr Surg

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“…Most studies of adolescent QOL in China have surveyed the per ception of QOL among chronically ill adolescent patients and were conducted in hospital or outpatient settings [22,23]. Recently there has been a growing interest in the study of healthy groups of adolescents, leading to studies being performed in other contexts, such as in schools [24,25], because of a growing awareness of the need to recognize and monitor adolescents who are most vulnerable to a poor healthrelated quality of life [26,27]. In some studies, though the SF-12 and SF-36 were used to investigate per ceived adolescent QOL, it was unclear which of the two scales was more suitable to the age group [21].…”

Section: Introductionmentioning

confidence: 99%

Comparing Psychometric Properties of the SF-36 and SF-12 in Measuring Quality of Life among Adolescents in China: A Large Sample Cross-sectional Study

Lin

Zeng

et al. 2020

Preprint

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Objective: By comparing the psychometric properties of the Short Form 36 (version 1, SF-36) and the Short Form 12 (version 1, SF-12), we supply evidence for the selection of instruments measuring the quality of life (QOL) and decision-making processes of adolescents in China. Methods: Stratified cluster random sampling was adopted, and the SF-36 was administered to assess QOL. The Pearson correlation coefficient was used to show correlation. Cronbach’s alpha and construct reliability (CR) were used to evaluate the reliability of SF-36 and SF-12, while criterion validity and average variance extracted (AVE, convergence validity) were used to evaluate validity. Confirmatory factor analysis was used to calculate the load factor for each item, then to obtain the CR and AVE. The Semejima grade response model (logistic two-parameter module) in item response theory was used to estimate item discrimination, item difficulty, and item average information for each item. Results: 19,428 samples were included in the study. The mean age of respondents was 14.78 years (SD = 1.77). High correlations between the corresponding domains and components of both scales were found. Reliability of each domain of the SF-36 was better than for the corresponding domain of SF-12. The domains of PF, RP, BP, and GH in SF-36 had good construct reliability (CR > 0.6). The criterion validities of SF-36 were a little higher in some corresponding dimensions, except for PCS. The convergence validities of SF-12 were higher than SF-36 in PF, RP, BP, and PCS. The items of BP, SF, RP, and VT in SF-12 had acceptable discrimination of items that were higher than in SF-36. The items’ average amounts of information of BP, VT, SF, RE, and MH in SF-36 and SF-12 were poor. Conclusion: Two component measurements of the SF-12 (PCS and MCS) appeared to perform at least as well as the SF-36 in cross-sectional settings in adolescence, but the reliability and validity of 8 domains of the SF-36 were better than those of SF-12. Some domains, for instance SF and BP, were not suitable for adolescents or need no further study.

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Estime de soi chez l’adolescent atteint d’une scoliose idiopathique et au bénéfice d’un traitement orthopédique par corset associé à de la kinésithérapie : revue de la littérature

Mouchoux¹,

Guillot²

2023

Kinésithérapie, la Revue

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Children’s and parents’ perspectives of health-related quality of life in newly diagnosed adolescent idiopathic scoliosis

Cited by 16 publications

References 38 publications

Psychological aspects of treatment and rehabilitation of patients with adolescent idiopathic scoliosis: research analysis

Psychological aspects of treatment and rehabilitation of patients with adolescent idiopathic scoliosis: research analysis

Comparing Psychometric Properties of the SF-36 and SF-12 in Measuring Quality of Life among Adolescents in China: A Large Sample Cross-sectional Study

Estime de soi chez l’adolescent atteint d’une scoliose idiopathique et au bénéfice d’un traitement orthopédique par corset associé à de la kinésithérapie : revue de la littérature

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