2005
DOI: 10.3748/wjg.v11.i7.1028
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Childhood inflammatory bowel disease: Parental concerns and expectations

Abstract: Parents of children and adolescents with IBD have many common concerns regarding their child's condition. On-going attention to holistic care, including psychosocial and educational elements for patients and families, is appropriate in the context of the chronic and unpredictable nature of IBD.

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Cited by 21 publications
(19 citation statements)
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“…Accordingly, we may suggest that not only specific disease conditions are of importance for the development of burnout but also common stress factors associated with the chronic disease situation. Both these diseases last over time, influence everyday life and may lead to serious complications (27,28). For example, it seems that the child’s physical limitations have an important impact on mothers of children with T1DM and other diseases as expressed by high stress scores (24,25,27).…”
Section: Discussionmentioning
confidence: 99%
“…Accordingly, we may suggest that not only specific disease conditions are of importance for the development of burnout but also common stress factors associated with the chronic disease situation. Both these diseases last over time, influence everyday life and may lead to serious complications (27,28). For example, it seems that the child’s physical limitations have an important impact on mothers of children with T1DM and other diseases as expressed by high stress scores (24,25,27).…”
Section: Discussionmentioning
confidence: 99%
“…Anxiety, depression, and antisocial and dependent behavior are all common. Anxiety and depression may be related to concerns about differences from other children and progression of their illness such as relapse of the disease or complications of disease requiring surgery or stoma formation [29] . Difficulty interacting with peers may result from school absenteeism and may be compounded by low self esteem due to delayed growth and development [2,30] .…”
Section: Patientsmentioning
confidence: 99%
“…If not anticipated and addressed, this can cause the child to fall behind in school. All of the above mentioned problems can be exacerbated if the educational needs of the child with a chronic illness are overlooked [3,29,30] .…”
Section: Patientsmentioning
confidence: 99%
“…Day, Whitten, and Bohane (2005) determined that information distribution is vital in the management of children with chronic GI conditions such as IBD, and they advocate for educational activities as one of the essential roles of an IBD clinic. Many pediatric patients have had little experience with disease, and the diagnosis of a chronic illness that needs long-term therapy requires a period of adjustment.…”
Section: At Diagnosismentioning
confidence: 99%