Childhood cancer patients’ baseline for social affiliation as a determining factor for the self-reported impact of person-based exclusion

Carlsen, Line Thoft; Christensen, Sophie Rex

doi:10.1080/07347332.2020.1798577

Cited by 6 publications

(7 citation statements)

References 33 publications

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“…The dilemma lies in trying to balance these benefits with preserving the adolescent's self‐integrity and vulnerability. The study findings reinforce previous studies showing that a strong social support system can diminish stress and enhance psychosocial coping in adolescents with cancer (Abrams et al., 2007; Carlsen & Christensen, 2020; Decker, 2007; Haluska et al., 2002; Kyngäs et al., 2001; Pennant et al., 2019; Soejima et al., 2015; Suzuki & Kato, 2003; Woodgate, 2006). The studies show that adolescents with high levels of perceived social support report fewer health complaints, lower levels of depression, higher optimism, higher self‐esteem, and fewer behavioural problems.…”

Section: Discussionsupporting

confidence: 90%

“…Adolescents highlight the importance of their relationship with healthy peers; however, they describe these relationships as sprinkled with incidents of misconception, loneliness, and bullying (Bessell, 2001; Carlsen & Christensen, 2020; Soejima et al., 2015). Given the developmental aspects of adolescence such as a desire for peer bonding and belonging to a peer group (Carlsen & Christensen, 2020), we hypothesized that social support from healthy peers could enhance coping in adolescents with cancer. Hence, exploring new ways of how adolescents receive and perceive social support from this target group is fundamental in developing appropriate social support systems suited to the specific needs of adolescents during cancer treatment.…”

Section: Introductionmentioning

confidence: 99%

“…Most studies, however, focus on adolescents receiving social support from family, peers with cancer, or healthcare staff rather than from healthy friends (Decker, 2007; McNeil et al, 2019; Pennant et al., 2019). Adolescents highlight the importance of their relationship with healthy peers; however, they describe these relationships as sprinkled with incidents of misconception, loneliness, and bullying (Bessell, 2001; Carlsen & Christensen, 2020; Soejima et al., 2015). Given the developmental aspects of adolescence such as a desire for peer bonding and belonging to a peer group (Carlsen & Christensen, 2020), we hypothesized that social support from healthy peers could enhance coping in adolescents with cancer.…”

Section: Introductionmentioning

confidence: 99%

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A qualitative study of adolescent cancer survivors perspectives on social support from healthy peers – A RESPECT study

Ingersgaard

Fridh

Thorsteinsson

et al. 2021

Journal of Advanced Nursing

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Background Adolescents’ psychosocial development is generally influenced by their peers. Those facing hospital‐based cancer treatment are particularly challenged as they are isolated from their social network and lack sufficient coping resources. Aim This study explores the adolescent cancer survivor's perceptions and experiences with healthy classmate socialization support efforts via hospital co‐admittance, from diagnosis to reinstatement in school, as an intervention of the RESPECT (REhabilitation including Social and Physical Activity and Education in Children and Teenagers with cancer) Study. Design A phenomenological, descriptive study. Methods Using variation sampling, 14 adolescents (aged 14–19), who completed the RESPECT intervention (April 2016–July 2017), participated in qualitative, in‐depth, semi‐structured interviews that were thematically analysed. Findings Four themes emerged: (a) Ambassadors as liaison persons; (b) Ambassadors as promoters of normalization and identity continuity; (c) Ambassadors as ‘behind the scenes’ friends; and (d) feelings of vulnerability and inferiority. Ambassadors reinstated a sense of normalcy in the adolescents’ daily life. They supported identity construction and served as liaison persons who buffered loneliness and social isolation as well as bridging a continued sense of belonging to one's school peer network. In contrast with other peers, ambassadors understood cancer‐related issues, knowledge which they partially gained witnessing the impact of treatment‐related side effects on their hospitalized classmates. However, the consequence of this trade‐off was an asymmetry in their relationship, with the adolescents requiring a certain level of safeguard from their ambassadors to maintain equal power in the relationship. Conclusion The ambassadors enhanced the adolescents’ ability to cope with their altered social position during treatment and to psychosocially reinstate it on their return to school. Impact Future interventions should offer opportunities for healthy peers to be educated in what it means to live with cancer. Future programs to sustain socialization in adolescents with cancer should involve healthy peers for the entirety of the treatment period.

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Section: Discussionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

A qualitative study of adolescent cancer survivors perspectives on social support from healthy peers – A RESPECT study

Ingersgaard

Fridh

Thorsteinsson

et al. 2021

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

“…Another study also stressed that most children with cancer experienced a varying degree of social exclusion. Whenever possible, it is important to maintain social relationships for children with cancer [ 34 ], as social distance from friends contributes to psychosocial illness [ 35 ]. Healthcare professionals’ care should thus support the child’s functioning in everyday life [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care

Flon

Glaffey

Jarl

et al. 2021

IJERPH

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Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account.

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“…The data used in this study are part of a larger study, "Social Consequences of Childhood Cancer," other results of which have been published previously. [13][14][15] The aim of this study was fulfilled by developing a classic grounded theory to describe the social process that families affected by childhood cancer undergo through an inductive, qualitative approach.…”

Section: Setting Participants and Recruitmentmentioning

confidence: 99%

From well‐known to changed everyday family life in families with childhood cancer: A grounded theory of disrupted family dynamic

Christensen

Carlsen

2021

Psycho-Oncology

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Objective: Families affected by childhood cancer need to adapt either temporarily or permanently. This study identifies variables that influence this adaption in positive or negative ways by presenting a classic grounded theory. Methods:This inductive, qualitative study included 69 childhood cancer patients, 39 siblings, 42 parents, and 24 childhood cancer survivors from 104 families. Results:The families enter a social process after diagnosis characterized by either shuttling between the well-known and the new or being in a situation with both aspects. The extent depends on the stage of the treatment (initial phase, during treatment, or the end of the course of treatment) and on four variables: (1) the diagnosis and prognosis; (2) the course of the disease, including duration of treatment or hospitalizations, and separation from the remaining family; (3) the child's current state, including symptoms, hospitalizations, and current risk of death or relapse; and (4) whether previous and current needs have been met. Conclusions:These variables offer a possible explanation of insufficient coping strategies, and they should be used to identify potentially vulnerable families. The dynamic of the variables imply that families should be reevaluated during each of the three phases, as the risk of changes to the family's everyday life may increase and therefore their needs may also change. K E Y W O R D Schildhood cancer, child health, family, grounded theory, oncology nursing, psycho-oncology | INTRODUCTIONEvery year approximately 300,000 children (aged 0 to 19 years) are diagnosed with cancer. 1 This condition affects the everyday life and routines in the entire family to varying degrees, and a change in family roles occurs as the parental attention is shifted to the child with cancer. 2,3 Consequently, all family members must deal with changes in responsibilities, intense feelings, and communication to manage the family challenges directly linked to the childhood cancer. [4][5][6] Research has demonstrated that some families adapt while others do not, 4,7,8 and it is the families who do not adequately adapt who are at risk of problems at both the individual and family levels. 4,[9][10][11][12] This study aims to clarify why some families do not have the ability to adapt sufficiently either temporarily or permanently. In addition, the study aims to identify variables that influence this adaption in either a positive or negative way. Three research questions were used to investigate (1) how the disruption caused by childhood cancer affects the family, how they process the disruption, and where the disruptions are experienced; (2) what factors influence 282 -

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Childhood cancer patients’ baseline for social affiliation as a determining factor for the self-reported impact of person-based exclusion

Cited by 6 publications

References 33 publications

A qualitative study of adolescent cancer survivors perspectives on social support from healthy peers – A RESPECT study

A qualitative study of adolescent cancer survivors perspectives on social support from healthy peers – A RESPECT study

The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care

From well‐known to changed everyday family life in families with childhood cancer: A grounded theory of disrupted family dynamic

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