Child Centred Care: Challenging Assumptions and Repositioning Children and Young People

Ford, Karen; Dickinson, Annette; Water, Tineke; Campbell, Steven; Bray, Lucy; Carter, Bernie

doi:10.1016/j.pedn.2018.08.012

Cited by 58 publications

(86 citation statements)

References 25 publications

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“…This in turn may enhance the healthcare professional's understanding and interpretation of a child's actions in a particular situation and what alternatives to offer the child. Embracing a CCC approach means that healthcare professionals recognise the child as a social being capable of taking part in situations within its own competence (Ford et al, ; Söderbäck et al, ; Wimo et al, ). The child belongs to a family, of which the child is the key agent in the partnerships.…”

Section: Discussionmentioning

confidence: 99%

“…In the CCC approach, the child is the prime focus of care delivery. The child's right to actively participate in healthcare matters are recognised, and care is tailored to reflect the needs and wishes of the child (Coyne, Hallstrom, & Soderback, ; Ford et al, ; Wimo, Fagerdahl, & Mattsson, ). To enhance children's active participation, it requires healthcare professionals to embrace a child perspective, which include attention towards the child's perspective (the child's understanding of the situation) in the healthcare settings (Söderbäck, Coyne, & Harder, ; Sommer, Samuelsson, & Hundeide, ).…”

Section: Introductionmentioning

confidence: 99%

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Children's active participation in decision‐making processes during hospitalisation: An observational study

Quaye

Coyne

Söderbäck

et al. 2019

Journal of Clinical Nursing

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Aims and objectives The aim was to explore and describe the child's active participation in daily healthcare practice at children's hospital units in Sweden. Objectives (a) Identify everyday situations in medical and nursing care that illustrate children's active participation in decision‐making, (b) identify various ways of active participation, actual and optimal in situations involving decision‐making and (c) explore factors in nursing and medical care that influence children's active participation in decision‐making. Background Despite active participation being a fundamental right for children, they are not always involved in decision‐making processes during their health care. There still remains uncertainty on how to support children to actively participate in decisions concerning their health care. Design A qualitative study with overt, nonparticipant observations fulfilling the COREQ checklist criteria. Methods Observations of interactions between children aged 2 and 17 years with both acute and chronic conditions, their parents, and healthcare professionals were conducted at three paediatric hospitals in Sweden. The Scale of Degrees of Self Determination was used to grade identified situations. The scale describes five levels of active participation, with level one being the least and level five being the most active level of participation. Normative judgements were also made. Results Children's active participation was assessed as being generally at levels four and five. Children demonstrated both verbal and nonverbal ways of communication during decision‐making. Findings indicated that children's, parents' and healthcare professional's actions influenced children's active participation in decision‐making processes involving healthcare. Conclusions Healthcare professionals specialised in paediatrics need to embrace both a child perspective and a child's perspective, plan care incorporating key elements of a child‐centred care approach, to ensure children's active participation at a level of their choosing. Relevance to clinical practice There is a need for awareness creation to help healthcare professionals facilitate children's active participation in their care and decision‐making.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Children's active participation in decision‐making processes during hospitalisation: An observational study

Quaye

Coyne

Söderbäck

et al. 2019

Journal of Clinical Nursing

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“…Children have, for some time, lagged behind in the global response to HIV [1,2]. However, the recent increase in advocacy for child-centred approaches in HIV programmes is anticipated to mitigate this problem through being responsive to the needs of HIV seropositive children [2][3][4][5][6]. This is fuelled by the global paradigm shift from disease-focused care and healthcare worker (HCW) paternalism to patient-centred care [7].…”

Section: Introductionmentioning

confidence: 99%

“…The Institute of Medicine (IOM) defines patient-centred care as: "Providing care that is respectful of, and responsive to, individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions" [8]. Childcentred care is built on the principle of patient-centred care [6,9]. The United Nations Convention on the Rights of the Child (UNCRC) serves as the Magna Carta of the child-rights based approach in promoting the provision of child-centred healthcare [6,10].…”

Section: Introductionmentioning

confidence: 99%

“…Childcentred care is built on the principle of patient-centred care [6,9]. The United Nations Convention on the Rights of the Child (UNCRC) serves as the Magna Carta of the child-rights based approach in promoting the provision of child-centred healthcare [6,10]. It integrates children's rights, parents' rights and contemporary child protection policies [9][10][11].…”

Section: Introductionmentioning

confidence: 99%

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User-provider experiences of the implementation of KidzAlive-driven child-friendly spaces in KwaZulu-Natal, South Africa

2020

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Background: KidzAlive is a child-centred intervention aimed at improving the quality of HIV care for children in South Africa. Through this intervention, 10 child-friendly spaces were created in 10 primary healthcare centres (PHCs) in KwaZulu-Natal to enhance child-centred HIV care. However, the user-provider experiences of these childfriendly spaces in these facilities have not been explored. This paper addresses this gap. Methods: We conducted qualitative interviews with children (n = 30), their primary caregivers (PCGs) (n = 30), and KidzAlive trained healthcare workers (HCWs) (n = 20) using and providing child-friendly spaces, respectively. Data were generated, using a semi-structured interview guide printed in both English and IsiZulu. The interviews were audio-recorded transcribed and translated to English by a research team member competent in both languages. Data were imported to NVivo 10 for thematic analysis. The COREQ checklist was used to ensure that the study adheres to quality standards for reporting qualitative research. Results: Child-friendly spaces contributed to the centredness of care for children in PHCs. This was evidenced by the increased involvement and participation of children, increased PCGs' participation in the care of their children and a positive transformation of the PHC to a therapeutic environment for children. Several barriers impeding the success of child-friendly spaces were reported including space challenges; clashing health facility priorities; inadequate management support; inadequate training on how to maximise the child-friendly spaces and lastly the inappropriateness of existing child-friendly spaces for much older children. Conclusion: Child-friendly spaces promote HIV positive children's right to participation and agency in accessing care. However, more rigorous quantitative evaluation is required to determine their impact on children's HIV-related health outcomes.

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Principles of Care Planning

Corkin,

Cardwell

2023

Care Planning in Children and Young People's Nursing 2e

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Child Centred Care: Challenging Assumptions and Repositioning Children and Young People

Cited by 58 publications

References 25 publications

Children's active participation in decision‐making processes during hospitalisation: An observational study

Children's active participation in decision‐making processes during hospitalisation: An observational study

User-provider experiences of the implementation of KidzAlive-driven child-friendly spaces in KwaZulu-Natal, South Africa

Principles of Care Planning

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