2019
DOI: 10.1245/s10434-018-07120-x
|View full text |Cite
|
Sign up to set email alerts
|

Characterizing the Patient Experience of CS/HIPEC Through In-Depth Interviews with Patients: Identification of Key Concepts in the Development of a Patient-Centered Program

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
1
1
1

Citation Types

0
3
0

Year Published

2019
2019
2021
2021

Publication Types

Select...
6

Relationship

0
6

Authors

Journals

citations
Cited by 7 publications
(3 citation statements)
references
References 12 publications
0
3
0
Order By: Relevance
“…While the optimal form of preoperative counselling for CRS±HIPEC has not been determined, a recent study showed that patients preparing for CRS±HIPEC overwhelmingly requested audiovisual or mixed-type educational information, related to preoperative decision-making and the recovery process, as opposed to just written materials. The study also found that including caregivers as key members of the recovery process within the preoperative counselling programme is essential [13].…”
Section: Preadmission Information Education and Counsellingmentioning
confidence: 85%
“…While the optimal form of preoperative counselling for CRS±HIPEC has not been determined, a recent study showed that patients preparing for CRS±HIPEC overwhelmingly requested audiovisual or mixed-type educational information, related to preoperative decision-making and the recovery process, as opposed to just written materials. The study also found that including caregivers as key members of the recovery process within the preoperative counselling programme is essential [13].…”
Section: Preadmission Information Education and Counsellingmentioning
confidence: 85%
“…These included chronic pain, diet restrictions, ongoing gastrointestinal problems, and sleep difficulties. 40 In other cases, patients described crying spells, depression, and stoma-related problems (e.g., social issues, negative effect on intimate relationships, and constant reminder of disease), 41 as well as uncertainty about the future or death. 42 These symptoms and their impact on QoL can be missed when using questionnaires that are not disease specific.…”
Section: Discussionmentioning
confidence: 99%
“…A close partnership between doctors, patients and their families with transparent and honest informa tion on expected benefits, potential risks and treatment options is therefore of utmost importance to define the optimal treatment for the individual patient by shared decision making. Frequently, there is already a profound misunderstanding between patients and care providers concerning the intent of treatment and prognosis [356][357][358] . Although patients with potentially curable disease are more likely to accept treatment related adverse effects with effects on QoL and functioning, priorities and expectations might be very different in the palliative setting.…”
Section: Quality Of Lifementioning
confidence: 99%