Characterizations of Resilience in Poststroke Aphasia

Pompon, Rebecca Hunting; Mach, Helen

doi:10.1097/tld.0000000000000285

Cited by 6 publications

(2 citation statements)

References 85 publications

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“…Clients come to the rehabilitation process with not only their values and interests before their stroke, but also in a fluctuating state of adjustment to their new disability. Following the sudden onset of stroke and aphasia, clients experience sadness, fear and an altered sense of self (Moss et al., 2021; Theadom et al., 2019), as well as feelings of hope and resilience (Bright et al., 2020; Hunting Pompon & Mach, 2022). Particularly in the acute phrase of recovery, this ongoing process of adjustment and coping to their new reality sets the context for one's stage of readiness and needs for engaging in the rehabilitation process.…”

Section: Discussionmentioning

confidence: 99%

‘It's been an extraordinary journey’: Experience of engagement from the perspectives of people with post‐stroke aphasia

Tierney‐Hendricks,

Miller,

Lopez

et al. 2023

Intl J Lang & Comm Disor

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BackgroundEngagement is recognized as an important factor in aphasia treatment response and outcomes, yet gaps remain in our understanding of engagement and practices that promote engagement from the client perspective.AimsThe purpose of this phenomenological study was to explore how clients with aphasia experience engagement during their inpatient aphasia rehabilitation.Methods & ProceduresAn interpretative phenomenological analysis approach guided the study design and analysis. Data were collected through in‐depth interviews with nine clients with aphasia, recruited through purposive sampling, during their inpatient rehabilitation admission. Analysis was completed using a variety of analytic techniques including coding, memoing, triangulation between coders and team discussion.Outcomes & ResultsThe analysis revealed that for clients with aphasia in the acute phrase of recovery, the rehabilitation process resembles travelling on a journey through a foreign land. Successful engagement in the journey was accomplished when one had a therapist who served as a trusted guide and was able to be a friend, invested, adaptable, a co‐creator, encouraging and dependable.Conclusions & ImplicationsEngagement is a dynamic, multifaceted and person‐centred process involving the client, provider and rehabilitation context. Findings from this work have implications for measuring engagement, training student clinicians to be skilled facilitators in engaging their clients and implementing person‐centred practices that promote engagement within clinical settings.WHAT THIS PAPER ADDSWhat is already known on the subject Engagement is recognized as an important factor in rehabilitation treatment response and outcomes. Prior literature suggests that the therapist plays a critical role in facilitating engagement within the client–provider relationship. Communication impairments associated with aphasia may negatively impact a client's ability to develop interpersonal connections and participate in the rehabilitation process. There is a dearth of research directly exploring the topic of engagement in aphasia rehabilitation, particularly from the perspective of clients with aphasia. Capturing the client perspective can provide novel insights regarding practices to foster and maintain engagement in aphasia rehabilitation.What this paper adds to existing knowledge This interpretative phenomenological study revealed that for individuals with aphasia in the acute phase of recovery, the rehabilitation process resembles travelling on a sudden and foreign journey. Successful engagement in the journey was accomplished when one had a therapist who served as a ‘trusted guide’ and was able to be a friend, invested, adaptable, a co‐creator, encouraging and dependable. Through the client experience, engagement is seen as a dynamic, multifaceted and person‐centred process involving the client, provider and rehabilitation context.What are the potential or actual clinical implications of this work? The current study highlights the complexity and nuance of engagement within the rehabilitation context, which has implications for measuring engagement, training student clinicians to be skilled in engaging their clients and implementing person‐centred practices that promote engagement within clinical settings. It is necessary to recognize that client and provider interactions (and thus engagement) are embedded in and influenced by the broader healthcare system. With this in mind, a patient‐centred approach to engagement in aphasia care delivery cannot be achieved through individual efforts only and may require prioritization and action at the systems level. Future work is needed to explore barriers and facilitators to enacting engagement practices, in order to develop and test strategies to support practice change.

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Section: Discussionmentioning

confidence: 99%

‘It's been an extraordinary journey’: Experience of engagement from the perspectives of people with post‐stroke aphasia

Tierney‐Hendricks,

Miller,

Lopez

et al. 2023

Intl J Lang & Comm Disor

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“…Next, Diedrichs et al (2022) discuss the results of their scoping review investigating the relationship between treatment response and nonlinguistic cognitive factors in people with aphasia. Hunting Pompon and Mach (2022) provide a review of the literature related to resilience, coping, and adaptation and treatment outcomes for people with aphasia. Similarly, Weatherill et al (2022) conducted another scoping review focused on motivation and predicting treatment outcomes for people with aphasia.…”

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confidence: 99%

Considering Personal Variables as Predictors of Aphasia Rehabilitation Outcomes

2022

Topics in Language Disorders

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The Feasibility and Benefits of a Virtual Yoga Practice for Stroke Survivors With Aphasia

Bislick

Dietz

Duncan

et al. 2023

Am J Speech Lang Pathol

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Purpose: The purpose of this study was to (a) examine the feasibility of a virtual, adapted, aphasia-friendly yoga program for people with aphasia; (b) evaluate evidence of improvement in patient-reported outcomes and word retrieval; (c) explore the immediate impact of a yoga session on participant subjective emotional state; and (d) assess participant motivation and perceived benefits of participating in a yoga program. Method: This feasibility study employed a mixed-method design to document the feasibility of a virtual, 8-week adapted yoga program. A pre-/posttreatment design was used to assess patient-reported outcome measures for resilience, stress, sleep, and pain, as well as word-finding abilities. Semistructured interviews with participants were thematically analyzed to provide insight into participants' motivation and perceptions regarding their experience. Results: Comparisons of pre- and postprogram group means suggest that participation in an 8-week adapted yoga program may positively impact perceptions of resilience (large effect), stress (medium effect), sleep disturbance (medium effect), and pain (small effect) for people with aphasia. Findings from within-session reports and brief, semistructured interviews with participants indicated positive outcomes and subjective experiences and suggest that people with aphasia are motivated to participate in yoga for a variety of reasons. Conclusions: This study is an important first step in confirming the feasibility of an adapted, aphasia-friendly yoga program offered via a remote platform for people with aphasia. The findings support recent work suggesting that yoga may be a potent adjunct to traditional rehabilitation efforts to improve resilience and psychosocial aspects in persons with aphasia. Supplemental Material: https://doi.org/10.23641/asha.22688125

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Characterizations of Resilience in Poststroke Aphasia

Cited by 6 publications

References 85 publications

‘It's been an extraordinary journey’: Experience of engagement from the perspectives of people with post‐stroke aphasia

‘It's been an extraordinary journey’: Experience of engagement from the perspectives of people with post‐stroke aphasia

Considering Personal Variables as Predictors of Aphasia Rehabilitation Outcomes

The Feasibility and Benefits of a Virtual Yoga Practice for Stroke Survivors With Aphasia

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