Characteristics of informal caregivers of patients with dementia in Alicante province

Toribio-Díaz, M E; Medrano-Martínez, V.; Moltó-Jordà, J M; Beltrán-Blasco, I

doi:10.1016/j.nrleng.2012.03.012

Cited by 19 publications

(10 citation statements)

References 13 publications

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“…A higher proportion of women (39%) than men (33%) report they had no choice in becoming an informal caregiver (Alzheimer's Association, 2014). Reasons for becoming a caregiver included feeling a complex mix of expectation and obligation, along with love, and gratitude for the person with dementia, repaying the care they received as children (Flores et al, 2009;Price, 2011;WardGriffin et al, 2006;Dunham & Cannon, 2008;Toribio-Díaz, 2013). Religious reasons were also cited in more recent papers for voluntarily providing care (Watt et al, 2014;Wezel et al, 2016;Friedmann & Buckwalter, 2014).…”

Section: Cultural Expectationsmentioning

confidence: 99%

The impact of dementia on women internationally: An integrative review

Erol

Brooker

Peel

2016

Health Care for Women International

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Women are disproportionately affected by dementia, both in terms of developing dementia and becoming caregivers. We conducted an integrative review of English language literature of the issues affecting women in relation to dementia from an international perspective. The majority of relevant studies were conducted in high income countries, and none were from low-income countries. The effects of caregiving on health, wellbeing and finances are greater for women; issues facing women, particularly in low and middle-income countries need to be better understood.Research should focus on building resilience to help people adjust and cope long term.Dementia is a global public health issue that disproportionately affects women, either through developing the condition themselves, or as a carer for someone with dementia. The effects on women of living with or caring for someone with dementia from an international perspective needs to be more fully understood. In our review of the published literature, we explore the impact of dementia on changing roles, identity, wellbeing and finances for women in both high-income and low-and middle income countries. An improved understanding of these factors can support research, and policy developments, that address the issues specifically relevant to women.As age is the greatest risk factor for dementia, and women have a greater life expectancy worldwide than men, a larger number of people with dementia are women (Alzheimer's Association, 2014).There are also clinical differences between genders in disease risk and severity, especially in relation to dementia and cognition (Carter et al., 2012). There is a significant association between age, gender, and dementia in many areas of the world, with women showing a higher prevalence rate for dementia than men (Bamford, 2011;Takeda et al., 2011; Alzheimer's Disease International, 2015) expectation that women will assume caregiving roles (Godfrey & Warshaw, 2009;Lantz, 2009;Gibbons et al., 2014). In many studies of dementia caregivers, all or most participants are women, reflecting the disproportionate extent to which women are relied upon as carers, although few reports focus on gender specifically (Robinson et al., 2014). Therefore the assumption that women provide informal care to people with dementia is embedded (often implicitly) in much of the existing research.The financial impact of providing dementia care on family caregivers is substantial; caregivers in the United States reported that they were reluctant to take time off work to provide care, or took on additional work to cover caregiving costs, which had increased because of the recent economic downturn (Evercare, 2009). Women may also have the responsibility of caring for young children alongside caring for a parent with dementia -referred to as the 'sandwich generation' (Solberg et 3 al., 2014). Despite this (often dual) caring responsibility, families often prefer , for a variety of cultural, obligational and practical reasons to continue to provide care at ho...

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Section: Cultural Expectationsmentioning

confidence: 99%

The impact of dementia on women internationally: An integrative review

Erol

Brooker

Peel

2016

Health Care for Women International

View full text Add to dashboard Cite

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“…Women, as opposed to the masculine gender, are in charge of caring for their relative within the home, establishing a certain inequality with respect to this characteristic in care . Generally, it is the daughters and wives who assume the care and among the main reasons that lead them to take on the family members; this caregiver role is the moral obligation than dignification and personal satisfaction that takes them to take care of a member of their family . The average dedication of a caregiver is 10 hours a day and in years, between 7 and 10 years …”

Section: Introductionmentioning

confidence: 99%

Evaluation of the perceived health of caregivers of patients in mild-to-moderate stage Alzheimer's disease

Fernández¹,

Galán

2018

Perspect Psychiatr Care

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“…Taking care of a dependent person who suffers from Alzheimer’s Disease and Related Disorders (ADRD) is a long-term activity that usually falls on close kin, and mainly on women. Even when the caring activity is provided by professional carers, women mainly dominate the network of caregivers (Toribio-Díaz, Medrano-Martínez, Moltó-Jordá, & Beltrán-Blasco, 2013).…”

Section: Introductionmentioning

confidence: 99%

“…Some of them are obsolete due to the time they were conducted and sample they used (Casado-Marín, García-Gómez, & López-Nicolás, 2010; Rubio & Solórzano, 2004). And others are performed with a clearly lower sample and in a reduced area (Olazarán Rodríguez, Sastre Paz, & Martín Sánchez, 2012; Toribio-Díaz et al, 2013). In any case, none of these four papers addressed the topic of the aim of our research.…”

Section: Introductionmentioning

confidence: 99%

Factors associated with living situation among Alzheimer’s caregivers in the south of Spain that affect the election of external support services

Reina

Aguilera

2017

Dementia

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Alzheimer's is a syndrome mainly suffered by women and the care they need is also mainly provided by other women. The aim of this paper is to describe the profile of users of professional support services and to find out if some socio-demographic factors are linked with those elections. The study was conducted from January to June 2012 thanks to the cooperation of over 41 Alzheimer's Associations in Andalusia, in the south of Spain. A person trained by the main researcher (a social worker or a psychologist) completed the questionnaire during an interview with the caregiver. Seven hundred and seventy-eight questionnaires were analysed. Contrary to previous findings, the use of external services is not infrequent. The most commonly used services are Day Care Centres (22.4%) and Cognitive Workshops (19.2%), but Home Assistance Services are the most frequently used either alone or in combination with the other two (27.5%). A higher level of education increases the probability of choosing a nursing home. The two main factors for looking for external support are non-cohabitation and working outside the home. Among caregivers under 40 years old this is the main profile. Using no services or in low and medium intensity in service hours leads to informal caregivers being the main caregivers. The potential labour market for professional caring is reduced by a crowding-out effect. Employment reduces the chance of being a caregiver.

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Characteristics of informal caregivers of patients with dementia in Alicante province

Cited by 19 publications

References 13 publications

The impact of dementia on women internationally: An integrative review

The impact of dementia on women internationally: An integrative review

Evaluation of the perceived health of caregivers of patients in mild-to-moderate stage Alzheimer's disease

Factors associated with living situation among Alzheimer’s caregivers in the south of Spain that affect the election of external support services

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