Changing trends in cerebral palsy prevalence: an opportunity to consider etiological pathways

Villamor, Eduardo

doi:10.1111/dmcn.15223

Cited by 3 publications

(3 citation statements)

References 5 publications

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“…This latter category of person-centered activities includes seeing, moving, manipulating, communicating, and learning developmental, social adaptive, and regulatory behaviors. This use of multicenter registries is best highlighted in the Australia Cerebral Palsy Register (ACPR) [34,35]. A key outcome of these informed biopsychosocial information systems is to understand, on a population level, how children and families are faring with respect to optimizing their health, developmental functioning, and behavior outcomes [36,37].…”

Section: Beginnings: Partnering With Familiesmentioning

confidence: 99%

Family Reflections on a Lifecourse Journey after Neonatal Intensive Care: Neurodiversity, Enablement and Hope

Msall

2024

Children

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In 1969, my sister Christianne was born late preterm with a genetic disorder and given a very pessimistic prognosis. I will describe, from a family perspective, some lifecourse lessons about neurodiversity using the World Health Organization International Classification Model of Functioning (WHO-ICF). This model emphasizes that, in communicating about the complexity of outcomes of disability, attention must be paid to facilitators and barriers for optimizing health, functioning in daily life, and participation in the community. I will describe several developmental lifecourse lessons learned in negotiating fragmented systems of health, education, and community care. I will suggest ways to improve physician–parent communication, focusing on enablement to decrease a family’s sense of isolation and despair. I have benefitted from my parents’ archives, discussions with all my seven sisters (including Christianne), and discussions with my brother and sister-in law. They all have provided invaluable feedback from a family perspective during Christianne’s lived lifecourse journey with neurodiversity.

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Section: Beginnings: Partnering With Familiesmentioning

confidence: 99%

Family Reflections on a Lifecourse Journey after Neonatal Intensive Care: Neurodiversity, Enablement and Hope

Msall

2024

Children

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“…In recent years, an increased focus on interventions that promote perinatal and maternal well-being have been found with a lower incidence of CP [ 10 , 11 ]. The main known risk factors are birth weight deficiency and preterm labor [ 12 , 13 ].…”

Section: Causes Of Cerebral Palsymentioning

confidence: 99%

Adults with Cerebral Palsy: Navigating the Complexities of Aging

Kumar,

Perez,

Friel

2023

Brain Sciences

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The goal of this narrative review is to highlight the healthcare challenges faced by adults with cerebral palsy, including the management of long-term motor deficits, difficulty finding clinicians with expertise in these long-term impairments, and scarcity of rehabilitation options. Additionally, this narrative review seeks to examine potential methods for maintaining functional independence, promoting social integration, and community participation. Although the brain lesion that causes the movement disorder is non-progressive, the neurodevelopmental disorder worsens from secondary complications of existing sensory, motor, and cognitive impairments. Therefore, maintaining the continuum of care across one’s lifespan is of utmost importance. Advancements in healthcare services over the past decade have resulted in lower mortality rates and increased the average life expectancy of people with cerebral palsy. However, once they transition from adolescence to adulthood, limited federal and community resources, and health care professionals’ lack of expertise present significant obstacles to achieving quality healthcare and long-term benefits. This paper highlights the common impairments seen in adults with cerebral palsy. Additionally, it underscores the critical role of long-term healthcare and management to prevent functional decline and enhance quality of life across physical, cognitive, and social domains.

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“…Advances in maternal and perinatal care in Europe and Australia have led to a decrease in prenatal and perinatal cerebral palsy. [1][2][3] The decrease may change the landscape of cerebral palsy care. Prenatal and perinatal cerebral palsy is often associated with higher proportion of spastic diplegic cerebral palsy and higher Gross Motor Functional Classification System (GMFCS) levels (IV and V).…”

Section: We Live In a Changing Worldmentioning

confidence: 99%

What's New in Orthopaedic Management in Neuromuscular Disorders

Whitaker¹

2022

Journal of the Pediatric Orthopaedic Society of North America

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Over 6,000 articles were published in 2021-2022 between our Pediatric Orthopaedic Society of North America (POSNA) meetings in the neuromuscular space. This work reviews these influential papers covering the spectrum of neuromuscular orthopaedics, comments on the presentations during Neuromuscular Subspecialty Day at POSNA on May 12, 2022, and suggests potential changes in our practice in the future.

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Changing trends in cerebral palsy prevalence: an opportunity to consider etiological pathways

Abstract: This commentary is on the original article by Smithers‐Sheedy et al. on pages 1114–1122 of this issue.

Cited by 3 publications

References 5 publications

Family Reflections on a Lifecourse Journey after Neonatal Intensive Care: Neurodiversity, Enablement and Hope

Family Reflections on a Lifecourse Journey after Neonatal Intensive Care: Neurodiversity, Enablement and Hope

Adults with Cerebral Palsy: Navigating the Complexities of Aging

What's New in Orthopaedic Management in Neuromuscular Disorders

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