Changing the Narrative, Starting With Us

Wiltshire, Ashley; Jackman, Janelle M.; Moreta, Latisha E.; Ghidei, Luwam

doi:10.1007/s43032-022-00915-0

Cited by 2 publications

(1 citation statement)

References 24 publications

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“…[4][5][6] The underlying causes of these inequities are not well understood but likely involve factors such as limited fertility knowledge, misconceptions, and mistrust of the health care system among Black women, compounded by physician bias based on longstanding stereotypes. 7 A recent study using a validated fertility-knowledge questionnaire found that non-Hispanic Black women scored significantly lower than non-Hispanic White women in overall fertility awareness, including areas such as natural fertility, infertility risk factors, and infertility treatment. 8 Women who self-identified as a race and ethnicity different than non-Hispanic White were more likely to overestimate the age at which a woman's ability to conceive declines most rapidly.…”

Section: Who Is Formally Diagnosed With Infertility?mentioning

confidence: 99%

Navigating Unequal Paths

Weiss,

Marsh

2023

Obstetrics &Amp; Gynecology

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Infertility is one of the most emotionally devastating conditions experienced during the reproductive window. Although not life-threatening, it significantly erodes quality of life for those with the diagnosis. Disturbingly, data demonstrate the existence of profound racial disparities that persist along the entire journey of infertility. Though most of the scientific literature emphasizes disparities in clinical outcomes after infertility treatment, it is important to recognize that these inequities are the downstream effect of a series of distinct challenges encountered by historically marginalized people on their path to parenthood. In this review, we explore the current state of knowledge concerning the inequities at each “step” in the path to overcome infertility challenges and propose solutions to create a future in which reproductive medicine is truly equitable, accessible, and supportive for everyone.

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Section: Who Is Formally Diagnosed With Infertility?mentioning

confidence: 99%

Navigating Unequal Paths

Weiss,

Marsh

2023

Obstetrics &Amp; Gynecology

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Preserving Fertility in People With Rheumatic Diseases

Leavitt,

Adeleye,

Edens

2024

J Clin Rheumatol

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Rheumatology patients historically were told they “can't” or “shouldn't” become pregnant. Improved rheumatic diagnostics and treatments have led to decreased morbidity and mortality and increased quality of life resulting in an opportunity to focus on fertility and its preservation. In the same vein as rheumatic disease care, assisted reproductive technology (ART), which includes freezing of egg and sperm as well as in vitro fertilization, has made considerable strides in the recent past. ART is safe for those with rheumatic diseases and has comparable outcomes to the general public, but may take additional effort due to optimal timing, rheumatic medications, and other nuances. In a specialty that treats chronic inflammatory diagnoses using teratogens and gonadotoxins, it is important to address family building desires with patients so their goals can be met. Rheumatologists have little knowledge of ART and how it impacts or applies to their patients; however, patients want their rheumatologist to be the source of knowledge for this information (Arthritis Rheumatol. 2022;74:suppl 9). Many barriers to ART exist and will be explored, with the financial burden being paramount (Glob J Health Sci. 6;1:181–191). Future efforts to examine the future fertility of rheumatology patients in an era of biologics and “treat-to-target” are needed to better understand who would most benefit from this costly and not without risk medical treatment. Given the changing landscape of financial support for ART due to insurance mandates, rheumatologists should not modify counseling based on the anticipated ability of patients to afford care. Preservation should also be broached with patients without partners and those from the LGBTQAI+ community. In addition to expanding the education of rheumatologists regarding this topic and its incorporation into clinical care, advocacy for ART access and insurance coverage is a much-needed future direction.

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Changing the Narrative, Starting With Us

Cited by 2 publications

References 24 publications

Navigating Unequal Paths

Navigating Unequal Paths

Preserving Fertility in People With Rheumatic Diseases

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