2022
DOI: 10.1016/j.ejon.2021.102077
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“Changed our lives”: Psychosocial issues experienced by families of early adolescents with leukemia

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Cited by 7 publications
(3 citation statements)
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“…Social burden was the lowest-scoring subcategory for caregivers of adult patients [ 33 ], whereas emotional burden was the lowest-scoring subcategory for family caregivers of children with cancer. In contrast to this study's findings, a previous study on emotional burden found that family caregivers of children with hematologic and oncologic disease experienced higher levels of emotional distress, including feelings of worry, guilt, and depression [ 34 ]. Family caregivers of pediatric patients, who are often their parents or mothers, experience severe emotional challenges from the moment of diagnosis due to fear of losing their child.…”
Section: Discussioncontrasting
confidence: 99%
“…Social burden was the lowest-scoring subcategory for caregivers of adult patients [ 33 ], whereas emotional burden was the lowest-scoring subcategory for family caregivers of children with cancer. In contrast to this study's findings, a previous study on emotional burden found that family caregivers of children with hematologic and oncologic disease experienced higher levels of emotional distress, including feelings of worry, guilt, and depression [ 34 ]. Family caregivers of pediatric patients, who are often their parents or mothers, experience severe emotional challenges from the moment of diagnosis due to fear of losing their child.…”
Section: Discussioncontrasting
confidence: 99%
“…The families in the current study may have experienced emotional reactions, including shock, difficulty in acceptance, and worry about the child's health and life. This finding is supported by previous research studies (Qiu et al, 2021;Wiener et al, 2017) that confirm that the diagnosis and treatment of childhood leukaemia are a significantly stressful event for parents, consistent with the observation of families from Western cultures (Chodidjah et al, 2022). However, difficulty in acceptance and worry were found to be more pronounced in Chinese only-child families in this study compared to Western cultures.…”
Section: Discussionsupporting
confidence: 92%
“…The emotional burden during the initial treatment phase, characterized by its unpredictability and the need for rapid adjustment to a child's hospitalization, significantly contributes to this distress (24). This aligns with broader literature indicating that caring for children with serious illnesses universally imposes significant psychological stress on parents (25).…”
Section: Discussionsupporting
confidence: 55%