“Changed our lives”: Psychosocial issues experienced by families of early adolescents with leukemia

Chodidjah, Siti; Kongvattananon, Puangpaka; Liaw, Jen Jiuan

doi:10.1016/j.ejon.2021.102077

Cited by 7 publications

(3 citation statements)

References 25 publications

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“…Social burden was the lowest-scoring subcategory for caregivers of adult patients [ 33 ], whereas emotional burden was the lowest-scoring subcategory for family caregivers of children with cancer. In contrast to this study's findings, a previous study on emotional burden found that family caregivers of children with hematologic and oncologic disease experienced higher levels of emotional distress, including feelings of worry, guilt, and depression [ 34 ]. Family caregivers of pediatric patients, who are often their parents or mothers, experience severe emotional challenges from the moment of diagnosis due to fear of losing their child.…”

Section: Discussioncontrasting

confidence: 99%

Relationships among self-esteem, ego-resilience, and caregiver burden among families of children with hematologic and oncologic disease: A cross-sectional study

Kim,

Park

2023

Heliyon

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Section: Discussioncontrasting

confidence: 99%

Relationships among self-esteem, ego-resilience, and caregiver burden among families of children with hematologic and oncologic disease: A cross-sectional study

Kim,

Park

2023

Heliyon

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“…The families in the current study may have experienced emotional reactions, including shock, difficulty in acceptance, and worry about the child's health and life. This finding is supported by previous research studies (Qiu et al, 2021;Wiener et al, 2017) that confirm that the diagnosis and treatment of childhood leukaemia are a significantly stressful event for parents, consistent with the observation of families from Western cultures (Chodidjah et al, 2022). However, difficulty in acceptance and worry were found to be more pronounced in Chinese only-child families in this study compared to Western cultures.…”

Section: Discussionsupporting

confidence: 92%

Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia

Huang

Chen

Zhang

et al. 2023

Journal of Clinical Nursing

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Aims and Objectives:To develop a conceptual framework that explores the process of building family resilience among Chinese families with children diagnosed with leukaemia. Background:The diagnosis of childhood leukaemia has a devastating effect on the family. Nonetheless, some families were able to positively respond to the crisis. The process through which Chinese families bounce back has received little attention. Design: Grounded theory. Methods: This study used purposive and theoretical sampling to select 16 parents who agreed to participate in semistructured interviews after children were diagnosed with leukaemia. Data collection and analysis occurred simultaneously. Data were analysed through a process of open, axial and selective coding. The COREQ checklist was followed for reporting. Results: A core category of 'finding family resilience in adversity' was generated. The core category was underpinned by a transition process between two fluid stages: (a) Disrupting the family system, informed by subcategories of negative emotional disturbances and challenges of the diagnosis and treatment journey; (b) Cultivating resilience in families, informed by subcategories of increasing positive attitudes; establishing new family routines; activating good support systems; and practising open family communication. Conclusions: The transition process from the disruption of the family system to the cultivation of family resilience is perceived as a complex family dynamic in response to childhood leukaemia. Our findings can form the basis for further research about resilience-based family interventions that promote family well-being during the early stages of a childhood leukaemia diagnosis. Relevance to Clinical Practice: It is necessary for healthcare professionals to provide essential support for families to face the challenges of diagnosis and treatment to facilitate the successful transition to family resilience. By understanding the dynamic process of developing family resilience, healthcare professionals are able to focus on | 5161 HUANG et al.

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“…The emotional burden during the initial treatment phase, characterized by its unpredictability and the need for rapid adjustment to a child's hospitalization, significantly contributes to this distress (24). This aligns with broader literature indicating that caring for children with serious illnesses universally imposes significant psychological stress on parents (25).…”

Section: Discussionsupporting

confidence: 55%

Psychological Distress, Coping Strategies and Social Support in Parents of Children with Leukemia

Tariq,

Dildar Muhammad,

Sardar Ali

et al. 2024

JHRR

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Background: Leukemia poses significant distress for affected children and their families, necessitating extensive parental involvement in care. Parents must manage multiple clinic visits, medication administration, and provide emotional support during treatment, impacting their psychological well-being. Objective: To assess the levels of psychological distress, coping strategies, and social support among parents of children with leukemia. Methods: This analytical cross-sectional study was conducted at Bolan Medical Complex and Cenar Cancer Hospital in Quetta, Baluchistan. A total of 341 parents participated, with data collected via three standardized questionnaires: the Coping Health Inventory for Parents (CHIP), Kessler Psychological Distress Scale (K10), and Multidimensional Scale of Perceived Social Support. Ethical approval was granted by the Khyber Medical University Peshawar. Results: Among the participants, 36.1% were aged 25-35 years; 61.9% were male. Educational levels were 73.9% secondary and 23.8% primary. Psychological distress was reported as moderate by 86%, while 76% utilized fair coping strategies, and 95% experienced medium social support. There was no significant correlation between psychological distress and coping strategies; however, a negative association was noted between social support and psychological distress. Conclusion: The study reveals substantial psychological distress among parents, with prevalent fair coping strategies and medium social support. Enhanced social support is negatively associated with psychological distress, highlighting the need for targeted support interventions.

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“Changed our lives”: Psychosocial issues experienced by families of early adolescents with leukemia

Cited by 7 publications

References 25 publications

Relationships among self-esteem, ego-resilience, and caregiver burden among families of children with hematologic and oncologic disease: A cross-sectional study

Relationships among self-esteem, ego-resilience, and caregiver burden among families of children with hematologic and oncologic disease: A cross-sectional study

Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia

Psychological Distress, Coping Strategies and Social Support in Parents of Children with Leukemia

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