Change of Uncertainty in Illness and Unmet Care Needs in Patients With Recurrent Hepatocellular Carcinoma During Active Treatment

Shun, Shiow Ching; Chou, Yun; Chen, Chien Hung; Yang, Jyh‐Chin

doi:10.1097/ncc.0000000000000487

Cited by 9 publications

(9 citation statements)

References 38 publications

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“…( 30 , 32 ) Higher levels of depression are associated with higher rates of unmet supportive needs and uncertainty about illness, and rates of suicidality tend to be higher among patients with cirrhosis than the general population. ( 46 , 47 , 48 ) Patients with AdvLD and their caregivers note major disruptions in their personal and family lives, particularly as their illnesses worsen. ( 30 , 32 , 49 ) Major social burdens faced by patients include financial costs, limited social support, active or former substance use, stigma of having liver disease, impaired sexual health, and perceived burden on other family members.…”

Section: Resultsmentioning

confidence: 99%

Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach

et al. 2021

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Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought to identify priority areas for future research in PC by performing a comprehensive literature review and conducting iterative expert panel discussions. We conducted a literature review using search terms related to AdvLD and key PC domains. Individual reviews of these domains were performed, followed by iterative discussions by a panel consisting of experts from multiple disciplines, including hepatology, specialty PC, and nursing. Based on these discussions, priority areas for research were identified. We identified critical gaps in the available research related to PC and AdvLD. We developed and shared five key priority questions incorporating domains related to PC. Conclusion: Future research endeavors focused on improving PC in AdvLD should consider addressing the five key priorities areas identified from literature reviews and expert panel discussions. (Hepatology Communications 2021;0:1-12).

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Section: Resultsmentioning

confidence: 99%

Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach

et al. 2021

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“…Two studies (Gillespie et al, 2017;Shun et al, 2018) reported the presence of unmet needs of patients with rare digestive cancer.…”

Section: Unmet Needs Of Patients With Rare Digestive Cancermentioning

confidence: 99%

“…In the diagnostic phase, predictive factors associated with a higher number of unmet needs in patients with rare cancers included higher neuroticism, lower instrumental social support and greater social network (Williamson et al, 2018). Predictive factors for unmet needs during treatment and posttreatment phase were somewhat inconsistent and included both younger age (Shun et al, 2018) and older age (V.L. Beesley et al, 2013), but also higher anxiety score (V.L.…”

Section: Predictive Factors For Unmet Needs Throughout the Rare Cancer Disease Trajectorymentioning

confidence: 99%

Unmet supportive care needs of patients with rare cancer: A systematic review

et al. 2021

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Objective: Patients with rare cancers may experience different unmet needs than those with common cancer. The objective of this systematic review was to (1) investigate unmet supportive care needs of rare cancer patients throughout the disease trajectory and (2) identify predictive factors for these unmet needs.Methods: PubMed, PsycINFO and CINAHL were searched for publications (January 2011 to March 2021) focusing on unmet needs of patients with rare cancer. Two reviewers independently selected studies, extracted data and performed quality assessment. Findings were synthesised. Results:The search yielded 4,598 articles, of which 59 articles met eligibility criteria and 57 were of medium or high quality. Rare cancer patients most frequently reported unmet needs in the healthcare system and information domain (up to 95%), followed by the psychological domain (up to 93%) and the physical and daily living domain (up to 80%). Unmet needs were mainly reported in the posttreatment phase.The most frequently identified predictors were higher anxiety, younger age and higher neuroticism. Conclusion:Patients with rare cancer have unmet needs throughout their disease trajectory. Supportive care needs of rare cancer patients should be addressed individually, depending on the rare cancer subdomain and phase of disease and from diagnosis onwards.

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“…Uncertainty in illness refers to a state of doubt and uncertainty caused by the lack of effective cognition of a disease and the lack of control over disease-related situations. It can lead to psychological states such as fear, and an increase in the psychological burden of patients, which can then affect the process of treatment [ 3 , 4 ]. Coping is a kind of cognitive behaviour that patients may use to relieve their psychological stress.…”

Section: Introductionmentioning

confidence: 99%

Uncertainty in illness and the coping styles of severe patients with COVID-19: current status and correlation

2021

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The present study aimed to investigate the characteristics of uncertainty in illness and the coping styles of patients with severe COVID-19 and to explore their relationship to provide effective guidance for clinical nursing. A cross-sectional survey was used to investigate 56 severe patients with COVID-19 in a designated hospital in Wuhan. A general information questionnaire, the Mishel Uncertainty in Illness Scale for Adults (MUIS-A), and the Medical Coping Modes Questionnaire (MCMQ) were used to collect the data. A statistical analysis was performed. The total score of the MUIS-A was a 66.29±17.25 which was at a low level, while the total score of the MCMQ was 54.16±6.39. The scores of facing and avoiding were significantly higher than those in the https://www.cambridge.org/core/terms.

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Change of Uncertainty in Illness and Unmet Care Needs in Patients With Recurrent Hepatocellular Carcinoma During Active Treatment

Abstract: Healthcare providers should take into account each individual's age, levels of psychological need, and symptom distress and should offer personalized information related to psychological needs and symptom management to decrease levels of uncertainty before discharge.

Cited by 9 publications

References 38 publications

Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach

Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach

Unmet supportive care needs of patients with rare cancer: A systematic review

Uncertainty in illness and the coping styles of severe patients with COVID-19: current status and correlation

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