Challenging diabetes stigma starts and ends with all of us

Speight, Jane; Holmes‐Truscott, Elizabeth

doi:10.1016/s2213-8587(23)00084-0

Cited by 12 publications

(6 citation statements)

References 9 publications

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“…The resultant sense of stigma added to a reluctance to engage openly with diabetes-related discussions, and potentially acted as a barrier to intrinsic and extrinsic acceptance of diabetes. This corroborates previous evidence exploring the factors underpinning stigma and shame among adults living with type 1 diabetes (Haggar et al, 2023;Browne et al, 2014;Brunton, 2022;Fergie et al, 2016;Ingersgaard et al, 2021;Speight & Holmes-Truscott, 2023).…”

Section: Discussionsupporting

confidence: 91%

“…Research demonstrates that social media is a vehicle that can propel social referencing, body image comparison, and unhelpful peer pressure, which contributes to body dissatisfaction, low self-esteem, and low mood in general populations of young people (Kelly et al, 2018;Kwan et al, 2020). Among young adults living with type 1 diabetes, social media plays a substantial role in perpetuating the experience of stigma through triggering imagery, misinformation, and by driving misconceptions about what diabetes is (Blackwood et al, 2023;Browne et al, 2014;Speight & Holmes-Truscott, 2023). This is concerning, as research demonstrates that the experience of stigma is associated with impaired type 1 diabetes self-management and less healthy blood glucose levels (Brazeau et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

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The role of social media on psychological wellbeing from the perspectives of young people with Type 1 diabetes and their caregivers: a qualitative study

Berry¹,

Cleal²,

Morrissey³

et al. 2022

Preprint

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Social media is an important source of social connection and information acquisition for young people with Type 1 diabetes. This study explores young people with Type 1 diabetes’ online experiences and the impact it has on mental wellbeing. Young people (N=19) with Type 1 diabetes and professional/family caregivers (N=8) took part in online mini-focus groups or an online interview. Thematic analysis was used to analyse the data. All participants reflected on social media’s capacity to facilitate accessible peer learning and emotional support. However, remaining themes for young people with Type 1 diabetes focused on the emotional resonance of diabetes content, which includes the emotional demand of perceiving new products and diets, witnessing diabetes stigma online, and perceiving ‘filtered’ peer profiles. Meanwhile, professional and family caregiver themes focused on the accuracy and trustworthiness of diabetes content. Authenticity was perceived differently between the two participant cohorts. While caregivers perceive that young people often find it difficult to be open about their condition online, young people with Type 1 diabetes value the autonomy that social media provides to choose how and what they engage with online. This study is reflective of the paradoxical nature of social media as a tool which can nourish or challenge psychological wellbeing in young people with Type 1 diabetes. Young people are aware of the nature of the content they perceive, but the task of navigating through less helpful content is emotionally demanding. Co-designing tools to address this emotional burden is discussed in reflection of the findings.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

The role of social media on psychological wellbeing from the perspectives of young people with Type 1 diabetes and their caregivers: a qualitative study

Berry¹,

Cleal²,

Morrissey³

et al. 2022

Preprint

View full text Add to dashboard Cite

show abstract

“…media representation, school education, and public figures with type 1 diabetes). The profile of diabetes stigma has been increasing in recent years, and a global campaign to proactively target diabetes stigma and discrimination has been launched 41 . While it is too early to assess the impact of this campaign, it is hoped that highlighting the impact of stigma, along with other initiatives, will affect positive change and ultimately end diabetes stigma.…”

Section: Discussionmentioning

confidence: 99%

The impact of stigma on the management of type 1 diabetes: A systematic review

Embick,

Jackson,

Stewart

2024

Diabet Med

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AimsTo systematically review the literature investigating the links between stigma and the management of type 1 diabetes.MethodsA systematic literature review was conducted in accordance with PRISMA guidelines. Both quantitative and qualitative data were considered. Included papers were subject to quality assessment using the Mixed Methods Appraisal Tool (MMAT), and a narrative synthesis of results was reported.ResultsNineteen articles met the inclusion criteria and were included in the final analysis. Amongst these, one study used mixed methods, nine were qualitative, and nine were quantitative. All studies found a negative relationship between stigma and type 1 diabetes management. Qualitative studies provided a further understanding of the effects observed in the quantitative studies and found that stigma can affect self‐care activities, disclosure of diabetes, and the uptake of diabetes technology. Systemic causes of stigma and intersectional stigma were also observed.ConclusionsThis review highlights that people with type 1 diabetes are negatively affected by stigma, irrespective of their age, gender, culture, or use of diabetes technology. Quantitative studies were limited, in that all studies were cross‐sectional, and there was a lack of standardisation across outcome measures. There is a need for interventions to target stigma on both an individual and a systemic level, particularly where people experience multiple intersecting stigmas.

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“…Stigma is a globally recognised barrier to health seeking behaviour, engagement in care and adherence to treatment 25,26 across a range of LTCs, 27 including HIV infection, 28 diabetes, 29 epilepsy 30 . Stigma continues to have a devastating impact on people living with HIV, which one stakeholder described as ‘killing more people than HIV itself’.…”

Section: Discussionmentioning

confidence: 99%

“…In addition, advice from healthcare providers were sometimes difficult to implement as a result of different cultural practices, health beliefs and/or socioeconomic deprivation. A recent Lancet series on race and health 24 Stigma is a globally recognised barrier to health seeking behaviour, engagement in care and adherence to treatment 25,26 across a range of LTCs, 27 including HIV infection, 28 diabetes, 29 epilepsy. 30 Stigma continues to have a devastating impact on people living with HIV, which one stakeholder described as 'killing more people than HIV itself'.…”

Section: March [Fgd3 Female]mentioning

confidence: 99%

Social determinants of health and long‐term conditions in people of Black African and Black Caribbean ethnicity living with HIV in London: A qualitative study

Kolodin,

Barbini,

Onyango

et al. 2024

Health Expectations

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BackgroundPeople living with human immunodeficiency virus (HIV) are disproportionately impacted by socioeconomic deprivation and are at increased risk of developing other long‐term conditions (LTCs). These illnesses require transformative action to tackle the adverse effects on their health. Data on lived experiences of LTCs among people living with HIV of Black African and Black Caribbean ethnicities are sparse, and how people with LTCs are impacted by social determinants of health (SDoH).MethodsThrough a phenomenological study design this qualitative study, conducted in 2022, comprised four focus group discussions (FGDs) with 20 people of Black ethnicities living with HIV were purposively invited from a community organisation (CO) in London, including four semistructured interviews with CO staff. Following transcription, qualitative data were analysed thematically and measures to validate the findings were implemented.ResultsThe findings are presented in terms of the following four levels of SDoH: (1) individual determinants (such as the impact of SDoH on lifestyle modification and self‐management); (2) interpersonal determinants (such as positive experiences of accessing healthcare for LTCs); (3) clinical determinants (such as care pathway barriers) and (4) systemic determinants (such as systemic barriers related to race/ethnicity).ConclusionsIt is necessary to provide ongoing and interactive education to community members who live with HIV, focusing on risks and management of LTCs. Additionally, individuals would benefit from support to navigate increasingly complex and fragmented health services. Health Service staff require cultural competence when caring for patients of Black African and Black Caribbean ethnicities with complex health and psychosocial needs.Patient or Public ContributionThe research team collaborated with an HIV CO in South London from the very start of the project to agree the study design and learn about the realities of their daily lived experiences. Community collaborators helped to develop the semistructured interview and FGD topic guides, and were directly involved in the data gathering, analysis and validation.

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Challenging diabetes stigma starts and ends with all of us

Cited by 12 publications

References 9 publications

The role of social media on psychological wellbeing from the perspectives of young people with Type 1 diabetes and their caregivers: a qualitative study

The role of social media on psychological wellbeing from the perspectives of young people with Type 1 diabetes and their caregivers: a qualitative study

The impact of stigma on the management of type 1 diabetes: A systematic review

Social determinants of health and long‐term conditions in people of Black African and Black Caribbean ethnicity living with HIV in London: A qualitative study

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