Challenges in accessing and interviewing participants with severe mental illness

Newman, Daniel; O’Reilly, Pauline; Lee, Siew Hwa; Kennedy, Catriona

doi:10.7748/nr.2017.e1443

Cited by 11 publications

(11 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our research reveals that participants, particularly the younger participants (vulnerable group), felt more relaxed and less intimidated because the online group interview felt safe and nonintrusive. This finding counteracts the usual feelings of intimidation, lack of trust and being shy to speak up for vulnerable participants (Newman et al, 2017). The key factors that contributed to them feeling comfortable included being in a safe environment (i.e.…”

Section: Benefits Of Online Group Interviewsmentioning

confidence: 66%

“…Vulnerable groups are often hard to access and difficult to engage in research (Flanagan and Hancock, 2010; Hepi et al , 2017). Furthermore, vulnerable participants often find the research process intimidating (Newman et al , 2017; Kirkevold and Bergland, 2007) and researchers interviewing vulnerable groups and participants can be affected emotionally (Jafari et al , 2013). The proposed framework provides recommendations and insights to help mitigate some of these issues enabling researchers interested in a research context that focusses on vulnerable people and transforming people's lives, a safe and effective way of researching.…”

Section: Framework For Researching Vulnerable Participants In a Tsr C...mentioning

confidence: 99%

“…adolescence), whose physical, mental, emotional, social, spiritual and financial well-being are most at risk, are critical to understand (Mechanic and Tanner, 2007; De Chesnay, 2008). Yet, these individuals are hard to reach and effectively engage in research (Flanagan and Hancock, 2010; Hepi et al , 2017), and often feel vulnerable, intimidated and have a lack of trust in the research process (Newman et al , 2017; Kirkevold and Bergland, 2007). Further, the issues or topic surrounding these individuals tend to be very sensitive adding an extra level of complexity (Marsh et al , 2017).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Adapting research methodology during COVID-19: lessons for transformative service research

Dodds

Hess

2020

JOSM

198

172

View full text Add to dashboard Cite

PurposeCoronavirus disease 2019 (COVID-19) has created a challenging, yet opportunistic, environment in which to conduct transformative service research (TSR) and assess research methodology. The purpose of this paper is to evaluate and gain important new insights of a group interviewing method with vulnerable people and their support group, adapted and transferred online during COVID-19.Design/methodology/approachThis research examines the experiences of 35 participants (nine family groups composed of parents and young people), involved in a research project that explores a sensitive topic, youth alcohol consumption and family communication, that was moved online during lockdown. Researcher reflections on running group interviews face-to-face prior to COVID- 19 and online during lockdown are included in the data.FindingsThematic analysis of participant interviews and researcher reflections reveals four key benefits and three limitations of online group interviews with vulnerable people and their support group. The benefits include being comfortable, non-intrusive and safe; engaging and convenient; online communication ease and easy set-up. The limitations relate to lack of non-verbal communication, poor set-up, and privacy and access issues.Practical implicationsThe global environment is uncertain and being able to implement effective qualitative research online is essential for TSR and service research in the future. This paper provides a step by step procedure for an innovative online group interviewing technique that can be used by TSR and qualitative service researchers.Originality/valueConducting research during a pandemic has provided unprecedented insights into qualitative research approaches and methodology. This paper contributes to literature on service and TSR methodology by providing a framework for researchers to investigate vulnerable groups online in an effective, safe and non-intrusive way. The framework also has the potential to be applied to other service contexts.

show abstract

Section: Benefits Of Online Group Interviewsmentioning

confidence: 66%

Section: Framework For Researching Vulnerable Participants In a Tsr C...mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Adapting research methodology during COVID-19: lessons for transformative service research

Dodds

Hess

2020

JOSM

198

172

View full text Add to dashboard Cite

show abstract

“…However, studies suggest that the quality of data collected from face‐to‐face and telephone interviews may be comparable 26 . Interviewing vulnerable individuals such as patients with SMI can be seen as challenging; careful planning can maximise the opportunities to gather in‐depth qualitative information 48 . As recommended in the literature, 48 the lead researcher took steps to ensure that the researcher–participant relationship created a safe space for the disclosure of sensitive information and allowed patients to tell their stories.…”

Section: Limitationsmentioning

confidence: 99%

“… 26 Interviewing vulnerable individuals such as patients with SMI can be seen as challenging; careful planning can maximise the opportunities to gather in‐depth qualitative information. 48 As recommended in the literature, 48 the lead researcher took steps to ensure that the researcher–participant relationship created a safe space for the disclosure of sensitive information and allowed patients to tell their stories. Interviews with each individual within the dyad took place at separate points in time and in no particular order.…”

Section: Limitationsmentioning

confidence: 99%

The experiences of the caring dyad: (Un)articulated realities of living with cardiometabolic risk, metabolic syndrome and related diseases in severe mental illness

Sud

Maidment

Bradley

et al. 2021

Health Expectations

View full text Add to dashboard Cite

Background Informal carers play an important role in the care of patients with mental illness. Little is known of the relationship experience of the patient and their informal carer (caring dyad) as the context for the intersection between physical and mental health. Aim This study aimed to explore the impact of comorbid cardiometabolic risk (CMR), metabolic syndrome (MetS) and related diseases and severe mental illness (SMI) on the caring dyad. Design Between October 2018 and March 2020, we conducted 11 in‐depth semi‐structured interviews across 6 adult caring dyads, interviewing each individual separately. Setting Dyads were recruited within the United Kingdom; informal carers were nominated by the patient as a person who provided a significant amount of support. Variable Being Studied Participants were asked about the impacts of illness and caring on daily life. Data Analysis Data were analysed at the dyad level using thematic analysis, comparing and contrasting responses from each individual. Results Themes were identified: enhanced closeness, dissonance and balance within the caring dyad. Discussion and Conclusions This study uses a particular population of patients with comorbid CMR factors, MetS and related diseases and SMI and their informal carers to explore the relevance and utility of caring dyads as an analytical framework to inform practice and policy. Future interventions should consider factors impacting on dyadic relationships to formulate effective and sustainable dyadic care and treatment to improve health outcomes for both patients with SMI and their informal carers. Patient/Public Involvement In this study, patients and informal carers were participants. Topic guides were piloted with a patient and informal carer.

show abstract

The Physical Health of Individuals Receiving Antipsychotic Medication: A Qualitative Inquiry on Experiences and Needs

Cocoman

Casey

2018

Issues in Mental Health Nursing

View full text Add to dashboard Cite

Individuals with a mental illness are reported to have a reduced life expectancy and a greater risk of being affected by preventable physical illnesses such as cardiovascular disease and Type 2 diabetes. This inquiry sought to identify the physical health beliefs, experiences and needs of individuals with mental health problems in receipt of antipsychotic medication who live in the community. A qualitative inquiry was undertaken using three focus groups in a community mental health service in Ireland with 21 participants with mental health problems who were treated with antipsychotic medication. The participants were clear about the importance of good physical health as well as good mental health. They disliked the adverse effects of antipsychotic medication and experienced many barriers in accessing general practitioners/primary care services. They also preferred to receive health advice and self-management advice from the mental health services. The participants in this study were aware of the need to engage in health protective behaviours but were often overwhelmed by their comorbid health issues and the organizational and communication barriers in accessing their general practitioners.

show abstract

Challenges in accessing and interviewing participants with severe mental illness

Cited by 11 publications

References 13 publications

Adapting research methodology during COVID-19: lessons for transformative service research

Adapting research methodology during COVID-19: lessons for transformative service research

The experiences of the caring dyad: (Un)articulated realities of living with cardiometabolic risk, metabolic syndrome and related diseases in severe mental illness

The Physical Health of Individuals Receiving Antipsychotic Medication: A Qualitative Inquiry on Experiences and Needs

Contact Info

Product

Resources

About