Challenges during long-term follow-up of ICU patients with and without chronic disease

Davies, Hugh; McKenzie, Nicole; Williams, Teresa A.; Leslie, Gavin; McConigley, Ruth; Dobb, Geoffrey; Aoun, Samar

doi:10.1016/j.aucc.2015.04.002

Cited by 6 publications

(3 citation statements)

References 37 publications

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“…In addition, our results may be influenced by survivorship or selection bias. While a loss to follow-up is a challenge in long-term follow-up studies in ICU survivors, 45 our rate compares favourably with other ICU survivor studies (e.g. 20–25 %).…”

Section: Discussionsupporting

confidence: 61%

Psychological symptoms and health-related quality of life in intubated and non-intubated intensive care survivors: A multicentre, prospective observational cohort study

Rai,

Neeman,

Brown

et al. 2024

Critical Care and Resuscitation

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Section: Discussionsupporting

confidence: 61%

Psychological symptoms and health-related quality of life in intubated and non-intubated intensive care survivors: A multicentre, prospective observational cohort study

Rai,

Neeman,

Brown

et al. 2024

Critical Care and Resuscitation

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“…The patient and their family must be involved in the planning process for the transition from the ICU. The long-term follow-up of patients is highly important after passing the critical conditions and transition from the ICU [ 17 ]. Therefore, it is essential to understand the experiences of patients and care providers in order to develop protocols to improve patient transition from the ICU to other wards.…”

Section: Introductionmentioning

confidence: 99%

Challenges of the patient transition process from the intensive care unit: a qualitative study

et al. 2021

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Background:The transition of patients from the intensive care unit (ICU) to the general ward is challenging. Patients and caregivers experience high levels of anxiety during the transition period.This study aimed to explain the challenges that patients face during the transition process. Methods:In this qualitative research of conventional content analysis, data collection was conducted between February 2018 and July 2019 in educational hospitals affiliated with the Iran University of Medical Sciences. After obtaining informed consent, purposive sampling was performed with 22 nurses, intensive care physicians, anesthesiologists, and patients and their families using in-depth semi-structured interviews until data saturation. Results:The data obtained from the interviews indicated their perceptions and experiences, which are expressed scientifically through qualitative research. A total of 504 initial codes were extracted from continuous data analysis. The content analysis yielded three main themes in the challenges patients face during the transition process from the ICU: mixed feelings regarding transition (happiness/hope, worry/uncertainty, abandonment); care break (different atmosphere, the difference between the program and the quality of care, assigning care to the patient and family, and care culture and beliefs); and search for support and information (ineffective communication, self-care capacity of patient and family, ineffective and disrupted training, and weak follow-up programs), which inflicts care shock in the patients. Conclusions:The results showed that patients and their families were in a state of care shock during the ICU transition process and were sometimes disconcerted. It is necessary to design and implement care models according to the needs and challenges patients face during the transition period from ICU (patient-centered), based on the evidence available, and after considering the field of medicine and the accessibility of care in the country. The transition process can be improved and enhanced by obtaining knowledge about ICU transition care and related challenges as well as organizing a learning environment.

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“…Bonevski et al suggests strengthening community partnerships when recruiting socially disadvantaged groups (152). Due to the ongoing nature of health requirements in chronically ill cohorts, Davies et al comments never underestimate the amount of contacting required to engage participants, and how they respond is not always predictable (149). One follow-up clinic that focuses on pediatric neurocritical care patients had a 100% show rate in a report of their experience in administering the clinical program's first six months (110).…”

Section: Supporting Long-term Follow-up and Retentionmentioning

confidence: 99%

Transitions from short to long-term outcomes in pediatric critical care: considerations for clinical practice

Long¹,

Fink²

2021

Transl Pediatr

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Most children are surviving critical illness in highly resourced pediatric intensive care units (PICUs). However, in research studies, many of these children survive with multi-domain health sequelae that has the potential to affect development over many years, termed post-intensive care syndrome-pediatrics (PICS-p). Clinically, there are no recommendations for the assessment and follow-up of children with critical illness as exists for the premature neonatal and congenital heart disease populations. In research studies, primary and secondary outcomes are largely assessed at or prior to hospital discharge, disregarding post-hospital outcomes important to PICU stakeholders. Incorporating longer term outcomes into clinical and research programs, however, can no longer be overlooked. Barriers to outcomes assessments are varied and generalized vs. individualized, but some PICU centers are discovering how to overcome them and are providing this service to families-sometimes specific populations-in need. Research programs and funders are increasingly recognizing the value and need to assess long-term outcomes post-PICU. Finally, we should seek the strong backing of the PICU community and families to insist that long-term outcomes become our new clinical standard of care. PICUs should consider development of a multicenter, multinational collaborative to assess clinical outcomes and optimize care delivery and patient and family outcomes. The aim of this review is to present the potential considerations of implementing long-term clinical follow-up following pediatric critical illness.

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Challenges during long-term follow-up of ICU patients with and without chronic disease

Cited by 6 publications

References 37 publications

Psychological symptoms and health-related quality of life in intubated and non-intubated intensive care survivors: A multicentre, prospective observational cohort study

Psychological symptoms and health-related quality of life in intubated and non-intubated intensive care survivors: A multicentre, prospective observational cohort study

Challenges of the patient transition process from the intensive care unit: a qualitative study

Transitions from short to long-term outcomes in pediatric critical care: considerations for clinical practice

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