CF-CATS: An uncontrolled feasibility study of using tai chi for adults with cystic fibrosis

Lorenc, Ava; Mian, Awais; Madge, Susan; Carr, Siobhán; Robinson, Nicola

doi:10.1016/j.eujim.2013.09.003

Cited by 6 publications

(12 citation statements)

References 54 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Due to the risk of cross-infection, people with CF are not able to physically meet face to face. This means the Tai Chi must be taught one-on-one, as in our pilot study, (12) which is resource intensive. We therefore propose to test online video teaching of Tai Chi, which, if feasible for individual sessions, has the potential to provide a virtual group environment for teaching people with CF.…”

Section: Discussionmentioning

confidence: 99%

“…The study design of the proposed study has been heavily influenced by the results of our pilot study, (12) including feedback from participants on the relevance and acceptability of various outcome measures [FFMQ; Multidimensional Health Locus of Control (MHLC); Perceived Stress Scale; Modifi ed Borg Dyspnoea Scale; Dyspnoea-12 Scale; PSQI; and MYMOP2]. The feedback suggested that: the CFQ was useful and acceptable, so was retained; the MHLC would not capture effects of Tai Chi; the Perceived Stress Scale was not focused enough; MYMOP2 was perhaps not appropriate for CF; both dyspnoea questionnaires were useful but the Borg Scale was much quicker to complete.…”

Section: Discussionmentioning

confidence: 99%

“…We do not anticipate any problems recruiting this number based on our experience in the feasibility phase. (12) Inclusion criteria will be: (1) diagnosis of CF; (13) (2) able to learn and practice the Tai Chi movements and commit to a 9-month study; (3) living in or near London; (4) able to complete questionnaires in English; (5) 6 years old and above; (7) have internet access. Exclusion criteria will be: (1) participant in the feasibility phase; (2) currently taking part in another interventional research study.…”

Section: Inclusion and Exclusion Criteriamentioning

confidence: 99%

“…(11) Findings from our feasibility study indicate that Tai Chi may improve the treatment constraints and respiratory symptoms domains of the well-validated Cystic Fibrosis Questionnaire-Revised (CFQ-R), and have a relaxing and calming effect, in particular when experiencing breathlessness, and may improve sleep. (12) The aims of this trial are to compare the effectiveness of Tai Chi to standard care for people with CF, and face-to-face and online Tai Chi sessions.…”

mentioning

confidence: 99%

See 3 more Smart Citations

Cystic fibrosis—Children and adults Tai Chi study (CF CATS2): Can Tai Chi improve symptoms and quality of life for people with cystic fibrosis? Second phase study protocol

Lorenc

Ronan

Mian

et al. 2015

Chin. J. Integr. Med.

Self Cite

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Inclusion and Exclusion Criteriamentioning

confidence: 99%

mentioning

confidence: 99%

See 2 more Smart Citations

Cystic fibrosis—Children and adults Tai Chi study (CF CATS2): Can Tai Chi improve symptoms and quality of life for people with cystic fibrosis? Second phase study protocol

Lorenc

Ronan

Mian

et al. 2015

Chin. J. Integr. Med.

Self Cite

View full text Add to dashboard Cite

show abstract

“…The literature about the use of Tai Chi in CF is sparse [11]. A pilot study in adults with CF was undertaken to assess the feasibility and usefulness of individual Tai Chi sessions, taking cross-infection into consideration [12]. The small group of 10 participants not only reported improvements in breathing, sleeping and reduced anxiety, but also the positive benefits of face-to-face contact with the Tai Chi teacher.…”

Section: Introductionmentioning

confidence: 99%

Children and Adults Tai Chi Study (CF-CATS2): a randomised controlled feasibility study comparing internet-delivered with face-to-face Tai Chi lessons in cystic fibrosis

et al. 2018

Self Cite

View full text Add to dashboard Cite

Virtual healthcare is fast entering medical practice. Research into the feasibility of using it to teach treatment regimens such as exercise has not been explored. Maintaining an exercise regime can be difficult in cystic fibrosis: group classes risk potential infection, yet motivation is hard to maintain when alone. Tai Chi is a low-impact exercise and involves gentle, demanding movements. This study aimed to assess the feasibility, safety and acceptability of learning Tai Chi via an internet-based approach and compared patient-reported outcomes.Children and adults with cystic fibrosis were recruited to a randomised, comparative effectiveness trial. Participants learnt eight Tai Chi movements; teaching was delivered in eight lessons over 3 months: delivered either via the internet or face-to-face. Assessments were at 3-monthly intervals over 9 months. Outcomes included health status, quality of life, sleep, mindfulness and instructor-led questions.40 adults and children completed the eight sets of Tai Chi lessons. The median age was 22.8 years (range 6.1–51.5 years); 27 patients were female. The cohort comprised 26 adults (aged >16 years), six teenagers and eight children (aged <12 years). The groups were well matched. Feasibility and safety were demonstrated. Participants showed significant improvements in self-reported sleep, cough (both daytime and night-time), stomach ache and breathing. No differences in lung function, health status, quality of life, sleep or mindfulness was shown before or after completing the lessons.Tai Chi was safe and well tolerated; it was feasible to deliver individual lessons via the internet, reducing concerns regarding cross-infection, and appeared to improve self-reported symptoms.

show abstract

Me, myself, and I: A systematic review of cystic fibrosis and self‐concept

Harrigan,

Jessup,

Bennett

et al. 2024

Pediatric Pulmonology

View full text Add to dashboard Cite

Given extensive pertinent disease factors and evolving medical treatments, this systematic review explores qualitative and quantitative cystic fibrosis (CF) research surrounding self‐concept, an overarching perception of self. Research methodologies, self‐concept dimensions, prominent self‐concept findings and clinical recommendations are identified. Preferred Reporting Items for Systematic Review and Meta‐analyses guidelines were applied. PubMed, Scopus, Medline, Psycinfo, CINAHL (ebsco), and CENTRAL Cochrane electronic databases were searched from 2012 to 2022. Methodological quality was assessed using the critical appraisal skills program. Data‐based convergent synthesis was applied to analyze and report on qualitative and quantitative studies in parallel. Thirty‐seven publications met the inclusion criteria, most of which employed a cross‐sectional, single‐center design within an adolescent and adult population. Self‐efficacy, self‐esteem, and self‐identity studies were dimensions of self‐concept identified, with studies relating to self‐efficacy surrounding physical health management most prevalent. All three dimensions were positively associated with improved treatment adherence and psychosocial health. Efficacy tested intervention programs to enhance self‐concept are limited; however, an extensive range of clinical recommendations are offered, highlighting the importance of clinician self‐concept awareness, quality clinician–patient conversations and online CF peer‐support. Self‐concept is an important mechanism to optimize patient outcomes. Further CF self‐concept research is required, particularly multicenter, longitudinal, and interventional studies. Early childhood, post lung transplant and the older adult CF population in particular, lack research attention. Given the potential impact of rapidly evolving CF transmembrane conductance regulator modulator drugs on many aspects of self, future self‐concept research beyond the dimension of self‐efficacy may be beneficial.

show abstract

CF-CATS: An uncontrolled feasibility study of using tai chi for adults with cystic fibrosis

Cited by 6 publications

References 54 publications

Cystic fibrosis—Children and adults Tai Chi study (CF CATS2): Can Tai Chi improve symptoms and quality of life for people with cystic fibrosis? Second phase study protocol

Cystic fibrosis—Children and adults Tai Chi study (CF CATS2): Can Tai Chi improve symptoms and quality of life for people with cystic fibrosis? Second phase study protocol

Children and Adults Tai Chi Study (CF-CATS2): a randomised controlled feasibility study comparing internet-delivered with face-to-face Tai Chi lessons in cystic fibrosis

Me, myself, and I: A systematic review of cystic fibrosis and self‐concept

Contact Info

Product

Resources

About