Certification of the service of pediatric hematology-oncology in the subjects of the Russian Federation on the basis of infographic mapping

Kogan, S.; Ердомаева, Я. А.; Серик, Т. Г.; Бирлюкова, Д. В.; Серик, Г. И.; Киргизов, К. И.; Варфоломеева, С. Р.; Румянцев, А. Г.

doi:10.21682/2311-1267-2019-6-1-20-27

Cited by 2 publications

(7 citation statements)

References 13 publications

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Section: Introductionmentioning

confidence: 99%

“…Russia has a high prevalence of childhood cancers, at 77.5 per 100,000 children aged 0–14 years old, 1 with current healthcare reform focused on equitable and appropriate cancer care for children and families 2,3 . Since the 1990s pediatric oncology and hematology in Russia has undergone extensive reform 3 . Modern cancer care in Russia is characterized by multicenter clinical trials, uniform treatment protocols and clinical guidelines, 3 across 68 specialized pediatric onco‐hematology departments 4…”

Section: Introductionmentioning

confidence: 99%

“…Since the 1990s pediatric oncology and hematology in Russia has undergone extensive reform 3 . Modern cancer care in Russia is characterized by multicenter clinical trials, uniform treatment protocols and clinical guidelines, 3 across 68 specialized pediatric onco‐hematology departments 4…”

Section: Introductionmentioning

confidence: 99%

“…Russia is characterized by multicenter clinical trials, uniform treatment protocols and clinical guidelines, 3 across 68 specialized pediatric onco-hematology departments. 4 Mental health is socially stigmatized in Russia and has historically been a low healthcare priority.…”

mentioning

confidence: 99%

“…Psycho-oncology is a bourgeoning field in Russia, with caregivers' needs becoming a research and clinical care priority. 3,13 The internationally developed Psychosocial Standards of Care advocate a patient and family-centered model in pediatric oncology settings. 23 Routine screening of caregiver mental health and provision of appropriate interventions are recommended.…”

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confidence: 99%

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Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

et al. 2020

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Objectives Caregivers are at risk of poor sleep and elevated distress during their child's cancer treatment. Russia is currently underrepresented in the international psycho‐oncology field, with no identified psychosocial standards of care, and limited or inconsistent psychological service provision, particularly for caregivers. This study aimed to determine the prevalence of Russian caregivers' psychological distress and identify factors associated with caregiver sleep duration when staying on the pediatric oncology ward. Methods We recruited 74 caregivers of children with cancer and 74 comparison caregivers in Rostov‐on‐Don, Russia. Participants completed a survey assessing clinical outcomes, sleep (St Mary's Hospital Sleep Questionnaire), and psychological distress (Depression Anxiety Stress Scales‐21 [DASS‐21]). Results Caregivers of children with cancer reported significantly higher scores for all DASS‐21 subscales and higher depression (48.6% vs. 24.6%), anxiety (47.3% vs. 12.3%), and stress (45.9% vs. 0%) scores from “moderate” to “extremely severe.” Caregivers of children with cancer reported significantly shorter sleep duration (5.82 vs. 7.49 h, t[143] = −6.22, p = 0.002), more night‐time awakenings (3.20 vs. 1.25, t[135] = 6.94, p < 0.001) and worse sleep quality (46.5% vs. 9.6%; x2[1] = 24.4, p < 0.001) than comparison caregivers. Caregivers with a higher total DASS‐21 score (B = −1.32, p = 0.032) and those who were closer to diagnosis (B = −1.53, p = 0.012) reported shorter sleep duration. Conclusions Russian caregivers of children with cancer experience high rates of psychological distress and poor sleep on the oncology ward. These findings provide an important target for future research and culturally relevant clinical interventions to improve caregivers' mental health and capacity for care.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

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Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

et al. 2020

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Regional hematology service registration system for the Russian Federation

Gerasimova¹,

Лазарева²,

Chabaeva³

et al. 2021

Gematologiâ i transfuziologiâ

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Introduction. The hematology service registration system describes actual indicators of hematology service infrastructure and target objects of both assigned and affiliated organizations of Russian Federation regions along with its correlations. This system data base makes it possible to collect, save, and analyze information, creating a data storage library about all current existing resources and taking into account concrete, specific conditions of specialized and high-tech hematological medical assistance organizations at the local levels and formed quality and availability optimization proposals.Aim — description and justification of the need to create a unified, complex, available to all users, informational reference system with the possibility of up-to-date maintenance and accounting that allows for the keep and control of the regional characteristics and hematology service indicators of the Russian Federation.General findings. The creation of and development of the hematology service registration system began in 2018, and work on the project continues. Four main phases were selected as the key stages of the hematology service pasportisation: analyses of the current data, verification of information, creation of a user-friendly tool, system updating. Objects to monitor: medical key and related institutions, universities, affiliated organizations, laboratory service. The data working stages: data collection, manual updating, package uploading. The information sources: official websites, data high-tech medical treatment web portal, web portals of the public health authorities, Compulsory Medical Insurance Fund website, The Unified Data Health Care System, license register of the Federal Service for Healthcare Surveillance, data of the Federal State Statistics Service, official documents of Ministry of Public Health. Based on the developed checklists and forms for entering additional information for specialists of the subjects of the Russian Federation, a reference book of the Ministry of Defense (Excel file format) was created. However, in the course of further remote interaction and conducting field events in the regions of the Russian Federation during 2019–2020 new data needs for evaluating hematology services were determined. The increase of additional data inputs and its structure complication became the main reasons for further developing a new platform design concept and data conversion in database framework of the hematology service registration system (Access file format). The current objectives are as follows: authentication of the internal objects identifiers, implementation of the relational database codifier, modification of cartographic display and objects routing. The hematology service registration system contains data both for the key infrastructure nodes of Russian Federation hematology service and correlations within routing of all key system objects. Based on the positive results, the hematology service registration system is planned to be used by experts of specialized medical organizations, regional executive authorities on public health and professional communities, who will be able to accumulate all changes and indicators in dynamics within one system. The expected result is to provide the Ministry of Defense of the Russian Federation regions with methodological and informational support in specialized and high-tech medical care administration.

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Certification of the service of pediatric hematology-oncology in the subjects of the Russian Federation on the basis of infographic mapping

Cited by 2 publications

References 13 publications

Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

Regional hematology service registration system for the Russian Federation

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