Cerebral Palsy Grown Up

Glew, Gwen M.; Bennett, Forrest C.

doi:10.1097/dbp.0b013e3182202d42

Cited by 11 publications

(5 citation statements)

References 47 publications

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“…It is the most common neuro motor developmental disability of childhood, affecting as many as 8000 to 12,000 children born in the USA each year, corresponding to a prevalence rate of between 2 and 3 per 1000 children [3].…”

Section: Introductionmentioning

confidence: 99%

Maternal and foetal risk factors of cerebral palsy among Iraqi children. A case control study

Saadi¹,

Sutan²,

Dhaher³

et al. 2012

OJPM

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Background: The importance of studying cerebral palsy comes from the fact that, this disorder imposes huge burden families psychologically, emotionally, financially and socially. Moreover, it imposes a major burden on the National Health System because it is simply a chronic disorder, which needs a continuous care and multiple financial resources. At the same time, it needs collaborative efforts and team work between many parties and organizations for a good management and rehabilitation. In Iraq, risk factors of cerebral palsy have not been explored before. Our study objective was to measure the association between, maternal factors, foetal and early neonatal factors, and occurrence of cerebral palsy among Iraqi children. Postnatal risk factors of cerebral palsy were excluded in our study. Methods: We did a retrospective case-control study in Baghdad-Iraq. The place of study was The Central hospital of Children of Baghdad. Cases and controls were fully investtigated (retrospectively) for the risk factors of cerebral palsy using a self-administered questionnaire. The sample size was 300. Number of cases in our study was 100 while the number of controls in our study was 200. Results and conclusion: 84% of the mothers of Cerebral Palsy children were employed compared to 49% of the mothers of normal children who were employed (P value 0.00). After using a multiple logistic regression model, the final adjusted odd ratios included 6 variables which were, employment of mother (OR 8.05, 95% CI 0.98 - 6.62), Primigravida(OR 0.24, 95% CI 0.10 - 0.60), gender of the child(OR 0.15, 95% CI 0.04 - 0.51 ), asphyxia (OR 10.58, 95% CI 3.59 - 31.21), hypoglycemia (OR 40.99, 95% CI 6.93 - 242.27) and hypocalcaemia (OR 27.91, 95% CI 2.04 - 380.96). Our study came to a conclusion that neonatal asphyxia, hypoglycemia and hypocalcaemia were still the major risk factors for cerebral palsy In Iraq

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Section: Introductionmentioning

confidence: 99%

Maternal and foetal risk factors of cerebral palsy among Iraqi children. A case control study

Saadi¹,

Sutan²,

Dhaher³

et al. 2012

OJPM

View full text Add to dashboard Cite

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“…For the age-based analysis, enrollees aged 45 years or younger were labeled as the young group, whereas enrollees aged 46 years and above were labeled as the older group. We chose a lower than usual age cut off to take into account an early onset of age-related health conditions they often experience (Glew & Bennett, 2011; Haak et al, 2009; Turk, 2009) and the progressive nature of some of their primary disabilities (Klingbeil et al, 2004; Yorkston et al, 2010).…”

Section: Methodsmentioning

confidence: 99%

Health Service Utilization and State Costs Among Adults Aging With Early-Acquired Physical Disabilities in Medicaid Managed Care

et al. 2018

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Objective: We evaluated the impact of Medicaid managed care (MMC) on health service use and state costs among adults with early-acquired physical disabilities. Method: Using claims data, we tracked utilization of the emergency department (ED), inpatient admissions, outpatient physician visits, and state expenditures on enrollees who transitioned to MMC ( n = 881). The inverse propensity score weight and a difference-in-differences regression model were used to estimate the impact of MMC using their counterparts who remained in fee-for-service ( n = 1,552) as the comparison group. Results: MMC reduced ED use by 3.2% points/month ( p < .001). Relative to younger enrollees (age ⩽45 years), MMC reduced inpatient admissions of older enrollees (age ⩾46 years) by 3.3% points/month ( p < .001), and state expenditures by US$839/month ( p < .01). Discussion: MMC could reduce the hospital service use of and state spending on enrollees with early-acquired physical disabilities. This impact may vary depending on the enrollees’ age.

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“…The TMC uses an electronic health record (EHR) for medical documentation that has the ability to electronically prescribe, track all laboratory testing results, and contains built-in safety checks. Evidence-based guideline templates are used when applicable -such as for Down syndrome [16], cerebral palsy [17], and spina bifida [18] -and the TMC continually tries to create guidelines where none exist, such as for some of the rarer genetic diagnoses. The care team has weekly case management meetings and has a patient registry organized by disease.…”

Section: Clinic Operations and Managementmentioning

confidence: 99%

Implementation of an academic adult primary care clinic for adolescents and young adults with complex, chronic childhood conditions

Berens

Peacock

2015

Journal of Pediatric Rehabilitation Medicine

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PURPOSE: For the growing population of adolescents and young adults with chronic childhood conditions (AYACCC), the transition from pediatric to adult health care contains many barriers and appropriate adult-based health care options are few. In 2005, the Transition Medicine Clinic (TMC), affiliated with Baylor College of Medicine, was established in Houston, Texas. It is one of the first clinics of its kind and serves AYACCC by providing a medical home in the adult health care system. This article describes the development and implementation of the TMC, its patient population and their resource needs, and lessons learned along the way. METHODS: We retrospectively examined the electronic health records of 332 patients that established care in the TMC prior to July, 2011. Data were collected describing multiple facets of the patient population and their resource utilization, both in aggregate and for several subgroups. RESULTS: The most common primary diagnoses were cerebral palsy, spina bifida, Down syndrome, genetic conditions, and autism. Patient characteristics demonstrated the unique challenges faced by the clinic: more than 80% received Medicaid, 65% had an intellectual disability, 41% used a wheelchair, and most had multiple secondary diagnoses. Compared to typical adult primary care practices, a larger amount of clinical resources, medical technology, and specialists were used, especially for those with the most medically fragile conditions. CONCLUSIONS: The results suggest that a clinic serving AYACCC requires physicians and support staff familiar with the aforementioned issues that are willing to spend a considerable amount of time and effort outside of routine office visits in health care coordination. Because many of these patients are covered by publicly funded health insurance, enhanced reimbursement must be considered to keep clinics like the TMC self-sustaining. Future research is needed to demonstrate adult-based care delivery models, develop clinical care guidelines, and evaluate key clinical outcomes.

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Cerebral Palsy Grown Up

Cited by 11 publications

References 47 publications

Maternal and foetal risk factors of cerebral palsy among Iraqi children. A case control study

Maternal and foetal risk factors of cerebral palsy among Iraqi children. A case control study

Health Service Utilization and State Costs Among Adults Aging With Early-Acquired Physical Disabilities in Medicaid Managed Care

Implementation of an academic adult primary care clinic for adolescents and young adults with complex, chronic childhood conditions

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