Celiac Disease: An Academy of Nutrition and Dietetics Evidence-Based Nutrition Practice Guideline

McDermid, Joann M.; Almond, M. Angie; Roberts, Kristen M.; Germer, Emily M.; Geller, Marilyn G.; Taylor, Theresa A.; Sinley, Rachel C.; Handu, Deepa

doi:10.1016/j.jand.2023.07.018

Cited by 2 publications

(2 citation statements)

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“…For Celiac disease (CD) is a permanent autoimmune disorder triggered by gluten ingestion by genetically predisposed individuals, affecting approximately 1% of the worldwide population ( 1 , 2 ). CD is considered a public health problem and may cause malabsorption, leading to nutritional deficiencies, liver and bone diseases, gastrointestinal symptoms, growth deficiency, or several other consequences ( 1 , 3 , 4 ).…”

Section: Introductionmentioning

confidence: 99%

“…Until now, the only safe treatment for CD is a life-long glutenfree diet (GFD) (1,3) and usually, GFD compliance improves the quality of life (QoL) in most of CD patients due to symptom remission, nutritional deficiencies and other CD-related health consequences avoidance, and mortality reduction. However, multiple factors influence GFD compliance, such as acceptance, access, availability, and cost of gluten-free products; dietary restrictions; socialization difficulties; and economic burden, among others, potentially negatively impacting CD QoL (5)(6)(7)(8)(9).…”

Section: Introductionmentioning

confidence: 99%

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Health-related quality of life among celiacs in Portugal: a comparison between general and specific questionnaires

Chaves,

Zandonadi,

Raposo

et al. 2024

Front. Immunol.

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ObjectiveThis study aimed to compare the 36-Item Short Form Survey Instrument version 2 (SF-36-v2) (generic) and Celiac Disease Questionnaire (CDQ) (specific) questionnaires used to evaluate the quality of life (QoL) in celiac Portuguese adult individuals.MethodsThis cross-sectional study used non-probabilistic sampling based on Portuguese celiac patients who accessed the online survey in 2022. The online data collection used a self-reported instrument composed of three parts: (i) socioeconomic, health, and gluten-free diet (GFD) adherence questions; (ii) SF-36 v2 – Portuguese version (generic questionnaire) and (iii) Celiac Disease Questionnaire (CDQ) (specific questionnaire).ResultsA total of 234 individuals who accessed the survey completed the questionnaire. Seven of the eight SF-36 domains positively correlated to the specific questionnaire CDQ. The “General Health” domain (domain 4) showed a negative correlation with the CDQ. Differences in content between the two instruments might be able to explain this finding since the CDQ explores issues regarding the specificities of celiac disease (CD) and the lifelong GFD burden. About half of the sample from this study displayed poor diet adherence, it is possible that the SF-36 could not reflect the impact of CD treatment - the complete elimination of gluten from the diet - on patients’ health. Therefore, this issue should be carefully evaluated in future research.ConclusionSpecific validated questionnaires for CD individuals, such as the CDQ, contemplate social, economic, and clinical variables that permeate the patient’s life context. Therefore, these instruments may be more suitable for evaluating QoL in this public. However, using a general questionnaire such as the SF-36 would be indicated for comparing QOL between celiac patients and the general population or even between CD and other disease individuals. In this case, we recommend assessing GFD compliance for control parallelly.

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