Caring Through Uncertainty: A Qualitative Exploration of Older Colorectal Cancer Caregivers' Experiences During Palliative Chemotherapy

Abstract

Purpose: Despite the growing body of research on cancer patient caregivers, the unique experiences of spouses caring for elderly colorectal cancer patients remain underexplored. This study aimed to fill this gap by examining the caregiving experiences of spouses during palliative chemotherapy for elderly Chinese colorectal cancer patients. Methods: Using a qualitative descriptive design, we recruited spousal caregivers of elderly colorectal cancer patients undergoing palliative chemotherapy. Semistructured interviews were conducted, and thematic analysis was employed to analyse the data. Results: Sixteen caregivers aged 60 to 82 years participated in the interviews. The analysis revealed three main themes: ambivalence, multiple role adaptation to conflicts, and the coexistence of hope and pressure. These themes shed light on the behaviors of older caregivers and the challenges they face, including physical and psychosocial issues associated with aging. Conclusion: This study highlights the significant stress and challenges experienced by older caregivers, characterized by intertwined emotions such as anxiety about their spouses’ health deterioration, exhaustion from long-term care responsibilities, and anticipation of treatment outcomes. These findings can inform future interventions and research aimed at understanding and supporting the unique needs of older spousal caregivers.