Caring for women with ovarian cancer in the last year of life: A longitudinal study of caregiver quality of life, distress and unmet needs

Butow, Phyllis; Price, Melanie A.; Bell, Melanie L.; Webb, Penelope M.; deFazio, Anna; Friedlander, Michael

doi:10.1016/j.ygyno.2014.01.002

Cited by 99 publications

(107 citation statements)

References 21 publications

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“…Hastanın kanserle ilişkili belirtileri ya da depresyonu ile bakım veren yükü arasındaki ilişkiye ait tutarlı sonuçlar olmasa da hastanın hareketliliğini ve işlevselliğini etkileyerek bağımlılığını artırabilecekleri için, en azından dolaylı bir ilişkiden bahsetmek mümkün olabilir (9). Diğer bir çalışmada hastanın düşük optimistik bakış açısının, sosyal desteğinin, karşılanmayan gereksinimlerinin, fiziksel iyilik halinin ve ölüm zamanının; bakım vericinin mental iyilik hali ve distresi ile ilişkili olduğunu bulunmuştur (8).…”

Section: Hastaların Bireysel Ve Hastalık öZelliklerinin Bakım Veren Yunclassified

“…Yapılan bir çalışmada, kanserli hastaya bakım veren bireyin işlevsel-liğinin, hastanın yaşam kalitesinden ziyade bakım vericinin yaşam kalitesi ve distres düzeyi ile ilişkili olduğu ifade edilmiştir (8).…”

Section: Hastaların Bireysel Ve Hastalık öZelliklerinin Bakım Veren Yunclassified

“…Ayrıca ekonomik gelir sağlanamıyorsa, finansal stres yaşanabilmekte ve geleceğin belirsizliği ile ilişkili kaygı bireylerin yaşamında olumsuz değişimlere yol açabilmektedir. Tüm bunlarla birlikte kanserli bireyin yakınlarının bakım sırasındaki zorlanmasına bağlı fiziksel sağlıktaki bozulma, bakım vericinin mortalite riskini arttırmaktadır (8).…”

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“…Ayrıca bakım verme ile ilgili sorunlar, hastanın fiziksel yetersizliği ve palyatif bakıma gereksiniminin artması ile birlikte artar. Bu nedenle özellikle hastalığın son dönemlerinde bakım vericinin desteklenmesi daha da önem kazanır (8).…”

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Quality of Life and Influencing Factors in Caregivers of Patients with Cancer

Kaya¹,

Bolol²,

Ülgen³

et al. 2018

Clin Exp Health Sci

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GİRİŞHemşirelik, yaşamın tüm evrelerinde ve esenlik/sağlık-hastalık durumlarında, birey ve/veya aile ile birlikte gereksinimleri karşılamaya dayalı bir sağlık disiplinidir (1). Kanser ciddi bir sağlıktan sapma durumudur ve kanserli bireyin bakım ve tedavi gereksinimlerinin karşı-lanmasında ailenin önemli rolü vardır (2, 3).Kanser sorunu olan bireyin bakımı zordur ve bakım veren kişinin yaşam kalitesi tüm boyutları ile çoğu zaman olumsuz etkilenir. Ayrıca ailede kanserli bir bireyin olması durumunda, aile işlevlerinde de önemli değişiklikler meydana gelir ve genellikle bu değişim aileye artı bir yük oluşturacak niteliktedir (3-6).Günümüzde kronik bir hastalık olarak kabul edilen kanserin bakım ve tedavisi sırasında sıklıkla komplikasyonlar gelişebilmektedir. Kanserde uygulanan karmaşık tedaviler, özellikle ülkemizde bakım veren bireyin sorumluluğunun artmasına neden olmaktadır. Bakım veren kişiye yüklenen bu sorumluluklar, bireyin fiziksel, psikolojik, mental, sosyal, spiritüel ve emosyonel sağlığını olumsuz etkilemektedir (4, 5, 7). Dolayısı ile kanserli bir bireyin bakımı sırasında aile üyeleri tüm boyutları ile desteğe gereksinim duymaktadır. AbstractObjective: The aim of our study was to define the factors influencing the quality of life in caregivers of patients with cancer. It was a descriptive cross-sectional study. Methods: Using a simple random sampling, we recruited 112 patients with cancer hospitalized in Ear Nose Throat (ENT) inpatients department at a university hospital and their caregivers. Data was collected by administering Patient and Caregiver Information Form and Quality of Life Family Version. Results: It was found that mean Quality of Life Family Version scores of caregivers were within the midrange. Factors related to the patient as ''whether they have children or not, the number of children they have, employment status, level of income, certain symptoms'' and factors related to caregivers as ''gender, whether they have children or not, living in same house with the patient, being diagnosed with a chronic disease, being responsible for care of more than one individual'' were found to affect life quality of caregivers. Conclusion: There are biological, psychological, sociocultural, environmental and political-economic factors which have an effect on life quality of primary caregivers of patients with cancer. These factors should be taken into consideration when meeting the needs of patients with cancer and their caregivers. Keywords: Caregivers, cancer, quality of life Öz Amaç: Araştırma, kanserli bireyin bakımından sorumlu yakınlarının yaşam kalitesi ve etkileyen faktörleri saptamak amacı ile tanımlayıcı kesitsel türde yapıldı. Yöntemler: Araştırmanın evreni, bir üniversite hastanesinin Kulak Burun Boğaz (KBB) servisinde yatan kanser hastaları ve bakımından sorumlu yakınlarından, örneklem ise gelişigüzel örnekleme yöntemi ile seçilen 112 kanser hastası ve yakınından meydana geldi. Veri toplama aracı olarak Hasta ve Yakını Tanıtım Formu, Aile-Yaşam Kalitesi Ölçeği (AYKÖ) kullanıldı. Bulgular...

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Section: Hastaların Bireysel Ve Hastalık öZelliklerinin Bakım Veren Yunclassified

unclassified

See 2 more Smart Citations

Quality of Life and Influencing Factors in Caregivers of Patients with Cancer

Kaya¹,

Bolol²,

Ülgen³

et al. 2018

Clin Exp Health Sci

View full text Add to dashboard Cite

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“…Studies have also been conducted on psychological distress among nursing students [87] and drug users [88][89]. Psychological distress have also been investigated among caregivers particularly of people with chronic obstructive pulmonary disease [90], patients with psychosis [91][92], patients with schizophrenia [93], cancer patients [94], symptomatic lung cancer patients [95], women with ovarian cancer [96], patients with lung cancer [97][98], and individuals with affective disorders [99]. Studies on psychological distress have also been done on caregivers of children with autism spectrum disorder [100][101][102][103] and children with asthma [104], children with a disorder of sex development [105][106].…”

Section: Statement Of the Problemmentioning

confidence: 99%

Mediating Roles of Resilience and Optimism between Work Demand and Psychological Distress among Pre-School Pupils’ Caregivers

Shoaga¹,

Oni²,

Mabekoje³

et al. 2017

IOSR JHSS

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Abstract:Psychological distress has become a serious issue with consequent negative outcomes on individuals and organisations. This study investigated the mediating roles of resilience and optimism between work demand and psychological distress among preschool pupils' caregivers in Ekiti State, Nigeria. A descriptive survey research design was adopted. A sample of 605 caregivers was chosen through stratified random sampling technique. Data were collected using: (i) Demographic Data Form, (ii) Kessler Psychological Distress Scale, (iii) Perceived Work Demand Scale, (iv) Connor-Davison Resilience Scale, and (v) Life Orientation Test Revised. Data were analyzed using Regression Analysis and Pearson Product Moment Correlation Coefficient with result tested for significant at .05 level. Findings revealed, among other things, that there is a significant positive relationship between psychological distress and resilience (r = .263; p <.001), but not between psychological distress and optimism (r = .010; p >.05) and psychological distress and work demand (r = .071; p >.05). There was no significant direct effect of work demand on psychological distress of caregivers, independent of resilience and optimism (coeff = -.043; p >.05). Resilience mediated between work demand and psychological distress of preschool pupils' caregivers. However, neither optimism nor both resilience and optimism did not. The study concluded that resilience and optimism are not significant mediators between work demand and psychological distress of preschool pupils' caregivers. Based on the findings, it was recommended, among others that other factors that could cause a positive relationship between psychological distress and resilience should be identified, isolated, and controlled for further research.

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Caregiver engagement practices in National Cancer Institute Clinical Oncology Research Program settings: Implications for research to advance the field

Nightingale

Sterba

McLouth

et al. 2020

Cancer

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Background Supportive care interventions have demonstrated benefits for both informal and/or family cancer caregivers and their patients, but uptake generally is poor. To the authors' knowledge, little is known regarding the availability of supportive care services in community oncology practices, as well as engagement practices to connect caregivers with these services. Methods Questions from the National Cancer Institute Community Oncology Research Program (NCORP)'s 2017 Landscape Survey examined caregiver engagement practices (ie, caregiver identification, needs assessment, and supportive care service availability). Logistic regression was used to assess the relationship between the caregiver engagement outcomes and practice group characteristics. Results A total of 204 practice groups responded to each of the primary outcome questions. Only 40.2% of practice groups endorsed having a process with which to systematically identify and document caregivers, although approximately 76% were routinely using assessment tools to identify caregiver needs and approximately 63.7% had supportive care services available to caregivers. Caregiver identification was more common in sites affiliated with a critical access hospital (odds ratio [OR], 2.44; P = .013), and assessments were less common in safety‐net practices (OR, 0.41; P = .013). Supportive care services were more commonly available in the Western region of the United States, in practices with inpatient services (OR, 2.96; P = .012), and in practices affiliated with a critical access hospital (OR, 3.31; P = .010). Conclusions Although many practice groups provide supportive care services, fewer than one‐half systematically identify and document informal cancer caregivers. Expanding fundamental engagement practices such as caregiver identification, assessment, and service provision will be critical to support recent calls to improve caregivers' well‐being and skills to perform caregiving tasks.

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Caring for women with ovarian cancer in the last year of life: A longitudinal study of caregiver quality of life, distress and unmet needs

Cited by 99 publications

References 21 publications

Quality of Life and Influencing Factors in Caregivers of Patients with Cancer

Quality of Life and Influencing Factors in Caregivers of Patients with Cancer

Mediating Roles of Resilience and Optimism between Work Demand and Psychological Distress among Pre-School Pupils’ Caregivers

Caregiver engagement practices in National Cancer Institute Clinical Oncology Research Program settings: Implications for research to advance the field

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