Caring for the elderly mentally infirm at home: a survey of the supporters.

Gilleard, Chris; Gilleard, Esen; Gledhill, Kris; Whittick, Janice E.

doi:10.1136/jech.38.4.319

Cited by 65 publications

(48 citation statements)

References 7 publications

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“…Overall, little relationship has been found between the severity of the care recipients' cognitive impairments and caregiver psychological wellbeing (Greene et al, 1982;Gilleard et al, 1984;Pagel et al, 1985;Fitting et al, 1986;George and Gwyther, 1986;Clipp and George, 1990;Baumgarten et al, 1994;Hadjistavropoulos et al, 1994). In contrast, Ballard et al (1995) report an association between dementia severity and depression in coresident carers.…”

Section: Subject Clinical Predictorsmentioning

confidence: 99%

“…A poor previous relationship, an older dependant, being coresident, a child rather than a spouse carer, being female, younger or employed, the caregivers themselves being disabled and coping strategies characterized by high levels of expressed emotion are proposed as risk factors for adverse caregiver outcomes (Gilleard et al, 1984;George and Gwyther, 1986;Zarit et al, 1986;Eagles et al, 1987;Morris et al, 1988a,b;Braithwaite, 1990;Bledin et al, 1990;Morris et al, 1991;Jones and Peters, 1992;Yeatman et al, 1993). Potential protective factors include access to a con®ding relationship, an instrumental approach to the provision of care, ascribing the subject's dependency and behaviour to the disease (and not the relationship), the capacity to disengage from the caregiving role and the ability to ®nd meaning in, and have feelings of maintaining control of the caregiving situation (Zarit et al, 1986;Kinney and Stephens, 1989;Morris et al, 1991;Hadjistavropoulos et al, 1994;Livingstone et al, 1996).…”

Section: Sociodemographic Caregiver and Relationship Predictorsmentioning

confidence: 99%

“…There may be a link between the informal support received by the caregiver and caregiver wellbeing. Receipt of formal services has been associated with both adverse and improved caregiver outcomes (Gilleard et al, 1984;Bass et al, 1996).…”

Section: Sociodemographic Caregiver and Relationship Predictorsmentioning

confidence: 99%

“…Informants then completed a 41-item behaviour checklist, adapted from Gilleard et al (1984), in which the frequency of subject problem behaviours (0Ðnever to 4Ðdaily or more) and the eects of each (0Ðno problem to 2Ðmajor problem) on the informant were recorded. The product of frequency and impact of the behaviour was calculated and each item was rescaled to the range 0±1.…”

Section: Personality and Behavioural Variablesmentioning

confidence: 99%

See 3 more Smart Citations

Clinical diagnoses and disability of cognitively impaired older persons as predictors of stress in their carers

Cullen

Grayson

Jorm

1997

Int. J. Geriat. Psychiatry

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Section: Subject Clinical Predictorsmentioning

confidence: 99%

Section: Sociodemographic Caregiver and Relationship Predictorsmentioning

confidence: 99%

Section: Sociodemographic Caregiver and Relationship Predictorsmentioning

confidence: 99%

Section: Personality and Behavioural Variablesmentioning

confidence: 99%

See 2 more Smart Citations

Clinical diagnoses and disability of cognitively impaired older persons as predictors of stress in their carers

Cullen

Grayson

Jorm

1997

Int. J. Geriat. Psychiatry

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“…109,113,[119,120], 127 Jutras and Veilleux 113 concentrated on informal support rather than formal services and Rosa et al 127 assessed the use of paid immigrant help in Italy, which is not representative of the types of services generally available but which may have increasing significance with the influx of migrant workers to the UK from EU accession countries. Gilleard et al 109 did find a weak but significant positive effect of weekly home help on strain but not burden, although items were very similar to those used in burden measures (sleep disturbance, worry, depression, frustration, health, disruption to household routine, embarrassment, demand for attention, lack of pleasure in caring, fear of accidents). This positive effect was found only in older carers over the age of 65 years and not in those under 65 years.…”

Section: In-home Supportmentioning

confidence: 98%

Systematic review of respite care in the frail elderly

Shaw

McNamara²,

Abrams³

et al. 2009

Health Technol Assess

103

152

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How to obtain copies of this and other HTA programme reports An electronic version of this publication, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable CD-ROM is also available (see below).Printed copies of HTA monographs cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our Despatch Agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per monograph and for the rest of the world £3 per monograph.You can order HTA monographs from our Despatch Agents:-fax (with credit card or official purchase order) -post (with credit card or official purchase order or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you either to pay securely by credit card or to print out your order and then post or fax it. Contact details are as follows: Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to Direct Mail Works Ltd and drawn on a bank with a UK address. Paying by credit cardThe following cards are accepted by phone, fax, post or via the website ordering pages: Delta, Eurocard, Mastercard, Solo, Switch and Visa. We advise against sending credit card details in a plain email. Paying by official purchase orderYou can post or fax these, but they must be from public bodies (i.e. NHS or universities) within the UK. We cannot at present accept purchase orders from commercial companies or from outside the UK. How do I get a copy of HTA on CD?Please use the form on the HTA website (www.hta.ac.uk/htacd.htm). Or contact Direct Mail Works (see contact details above) by email, post, fax or phone. HTA on CD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTA NIHR Health Technology Assessment programmeT he Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service'. The HTA programme is needs led in that it fills gaps in the evidence needed by the NHS. There are three routes to the start of projects. First is the commissioned route. Suggestions for research are actively sought from people working in ...

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Eliciting user perspectives on what works

Stalker

Gilliard

Downs

1999

Int. J. Geriat. Psychiatry

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Social care research has moved gradually in recent years to include the subjective perspective. Dementia care, which in many ways is still in its infancy, has lagged behind in this development, and much research has been informed by the carer rather than the person with dementia. As a young subject area, it is right that dementia care should look around for lessons that can be learned from other disciplines. This paper will consider how research with people with learning difficulties has developed a culture for hearing the views of service users. It will outline various methodologies, with considerations of their strengths and weaknesses. The paper will then review research in dementia care which features the subjective experience, and will finally draw out lessons and identify possible ways forward. Copyright © 1999 John Wiley & Sons, Ltd.

show abstract

Caring for the elderly mentally infirm at home: a survey of the supporters.

Cited by 65 publications

References 7 publications

Clinical diagnoses and disability of cognitively impaired older persons as predictors of stress in their carers

Clinical diagnoses and disability of cognitively impaired older persons as predictors of stress in their carers

Systematic review of respite care in the frail elderly

Eliciting user perspectives on what works

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