Caring for Family Members Older Than 50 Years of Turkish and Northwest African Descent

Eechoud, Ineke J. van; Grypdonck, Mieke; Leman, Johan; Noortgate, Nele J. Van Den; Deveugele, Myriam; Verhaeghe, Sofie

doi:10.1097/ncc.0000000000000239

Cited by 10 publications

(25 citation statements)

References 20 publications

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“…[33][34][35][36] However, recent evidence shows that shared cultural and religious values may not predict day-to-day care practices by family members of patients over 50 years who have cancer. 37 Indeed, some studies suggest that sociocultural characteristics that influence medical decision making in general and FI in particular may vary within cultures across families and individuals. 6,11 Such findings indicate that the literature may have neglected ''deeper concepts'' involved in triadic (physician-patient-family) medical consultations.…”

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confidence: 99%

Who Decides: Me or We? Family Involvement in Medical Decision Making in Eastern and Western Countries

et al. 2017

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These results suggest that it is important for health providers to avoid East-West cultural stereotypes. There are meaningful numbers of patients in all 7 countries who want to be individually involved and those individuals tend to prefer lower FI. On the other hand, more interdependent patients are likely to want families involved in many of the countries studied. Thus, individual differences within culture appear to be important in predicting whether a patient desires FI. For this reason, avoiding culture-based assumptions about desired FI during medical decision making is central to providing more effective patient centered care.

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confidence: 99%

Who Decides: Me or We? Family Involvement in Medical Decision Making in Eastern and Western Countries

et al. 2017

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“…Participant 3 described how having other family members around helped her, and used the metaphor of an "army" to describe the power of support she felt by their presence. Similarly, van Eechoud et al [36] in a study that involved Muslim family caregivers of Arab and Turkish origin documented that caregiving tasks were shared between family members.…”

Section: Discussionmentioning

confidence: 99%

“…A finding that relates to caregivers lack of preparedness and feelings of fear, anxiety, stress, inadequacy and uncertainty about their ability of providing home care. [20,[35][36][37][38][39] Furthermore, the literature affirmed that there was no discussion about what to expect in palliative home care and carers felt health professionals were hesitant to discuss difficult issues like managing palliative care at home and end of life care. [40] Thus, they learned caregiving skills by trial and error.…”

Section: Discussionmentioning

confidence: 99%

“…Likewise, the literature showed that faith is an important mechanism for coping to deal with stress, fear, and, uncertainty, it is the bond that gets family members together even during tension. [20,33,36] Engaging in religious acts is believed to please God and facilitate Muslims entrance to heaven. [47] Since all caregivers in this study were Muslims they helped their sick relatives as a way of showing obedience to God which may explain their commitment to caregiving.…”

Section: Discussionmentioning

confidence: 99%

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The experiences of caregivers providing home care for terminally ill family members at the end of life: A phenomenological study in Bahrain

Saleh¹,

O’Neill²

2018

CNS

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Objective: The aim of the study was to explore the lived experience of caregivers providing home care for terminally ill family members, with the objectives of describing their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain. Methods: The study adopted a Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was generated through one to one, in-depth interviews and analyzed using Interpretative Phenomenological Analysis. Results: Three main themes emerged from the data: (1) the burden of care, (2) comforts, and (3) coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens, combined with a lack of professional support. The collective experience was infused with intense emotions because of a lack of structured support, resulting in negative emotions that frequently affected the caregivers' well-being and their ability to care for the ill person. Nevertheless, caregivers tried to maintain care and comforts for their terminally ill relative in the home. They adopted the home environment, arranged resources to ease caring and provided psychological care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members. Conclusions: Caregivers were not prepared for the commitment and burdens of home care when a family member is terminally ill. A recommendation from the study findings is that training be offered on nursing care before patients discharge. In addition, a reactivation of the palliative care clinic hotline service would support family caregivers. A further recommendation is that home nursing care and hospice services be established to improve homecare services for family caregivers in Bahrain.

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“…In an earlier paper, concerning the meaning of caregiving, we reported that cancer is considered a family matter and caregiving had a strong meaning, both moral and practical, for all participants (van Eechoud et al . ). In particular, adult children felt a deeply moral obligation towards caring for the sick parent.…”

Section: Introductionmentioning

confidence: 97%

Balancing truth-telling: relatives acting as translators for older adult cancer patients of Turkish or northwest African origin in Belgium

et al. 2016

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The first generation of Turkish and Northwest African immigrants in Belgium are ageing and at risk for developing cancer. Relatives play an important role and provide both emotional and practical care, including mental support and acting as a contact person and/or a translator for improving access to healthcare, as most patients and their spouses have only a limited command of the language. Although access to professional interpreters has shown to be the best guarantee for qualitative healthcare, oncology health providers working with relatives as interpreters is much more common than professional interpreters. The aim of this study was to provide insight into the process wherein relatives balance truth-telling in translating for an older family member diagnosed with cancer. This was a qualitative research study, with elements of constructivist grounded theory. Twenty-eight loosely structured interviews were conducted. Most relatives consider it their responsibility to contribute to a positive attitude of the patient. Relatives decided to what extent they inform the patient, based on several motives and embedded in their assessment of the patient's emotional strength, understanding and need to be informed. What they decide influences the way they act as a translator and/or a contact person between the patient and health professional(s). Some considered it best to omit medical information while others considered it best to inform the patient fully. The results emphasise the importance for healthcare providers to take into account the complexity and unpredictable character of the process of balancing truth-telling when family members translate for their ill older relative.

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Caring for Family Members Older Than 50 Years of Turkish and Northwest African Descent

Cited by 10 publications

References 20 publications

Who Decides: Me or We? Family Involvement in Medical Decision Making in Eastern and Western Countries

Who Decides: Me or We? Family Involvement in Medical Decision Making in Eastern and Western Countries

The experiences of caregivers providing home care for terminally ill family members at the end of life: A phenomenological study in Bahrain

Balancing truth-telling: relatives acting as translators for older adult cancer patients of Turkish or northwest African origin in Belgium

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