Caring for Dying Children and Their Families: MFTs Working at the Gates of the Elysian Fields

Ungureanu, Ileana; Sandberg, Jonathan G.

doi:10.1007/s10591-008-9059-1

Cited by 7 publications

(8 citation statements)

References 24 publications

(56 reference statements)

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“…These results indicate that supporting family relationships from the point of diagnosis throughout the disease's progression has important impacts, not only on quality of life for a range of family members, but also on mortality. However, support for families has tended to be focused on those with a child receiving palliative care (Ungureanu and Sandberg 2008;Tyndall et al 2012).…”

Section: Discussionmentioning

confidence: 99%

Clinical Implications for Supporting Caregivers at the End-of-Life: Findings and from a Qualitative Study

Forbat

McManus²,

Haraldsdottir³

2012

Contemp Fam Ther

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Despite families providing considerable care at end of life, there are substantial gaps in the provision of supportive care. A qualitative interview study was conducted with 17 caregivers of people supported by an adult hospice to explore the support needs of families. Family members readily identified the ways in which the diagnosis of a life-limiting illness impacted on them and the family as a whole, not just the patient. Implications for practice demonstrate the need to intervene at a family and relational level prior to bereavement, in order to mitigate complicated grief for the surviving family members. Such an approach offers a fruitful prospective alternative to supporting caregivers post-bereavement

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Section: Discussionmentioning

confidence: 99%

Clinical Implications for Supporting Caregivers at the End-of-Life: Findings and from a Qualitative Study

Forbat

McManus²,

Haraldsdottir³

2012

Contemp Fam Ther

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“…MedFT training has grown from one summer institute in its early years (University of Rochester Medical Center 2011) to eight training programs, including two doctoral programs (East Carolina University 2011; University of Nebraska-Lincoln 2011). With the expansion of training programs (Ungureanu and Sandberg 2008), a need exists to establish a foundational curriculum. Published articles have focused on the availability (Brucker et al 2005) and development of internship sites (Grauf-Grounds and Sellers 2006), as well as specific skills needed to supervise students in medical settings (e.g., Edwards and Patterson 2006).…”

Section: Medft Curriculum and Core Competenciesmentioning

confidence: 99%

Medical Family Therapy: A Theoretical and Empirical Review

et al. 2012

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Medical Family Therapy (MedFT) is a relatively young sub-specialty founded initially at the intersection of Family Therapy and Family Medicine. The purpose of this article is to synthesize and review scholarly literature covering almost 30 years of history, growth, and available research on MedFT. Eighty-two articles that met specific inclusion criteria were reviewed and the literature was categorized into four distinct themes: (a) Emergence of MedFT in the literature; (b) Contemporary MedFT skills and applications; (c) Punctuating the ''family therapy '' in MedFT; and (d) MedFT effectiveness and efficacy research. What was learned was that MedFT is growing so rapidly there is now a need for a current definition, identification of core curriculum standards and competencies for training, as well as a commitment to produce rigorous research on its effectiveness and efficacy. Recommendations to advance efforts across the foci are provided.

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“…A recent study (Wilson-Vacik et al 2001) suggests that research in the area of child life curriculum content and practical preparation is limited. Additionally, the literature related to the impact of caring for dying children comes almost exclusively from the nursing field, primarily from pediatric oncology nursing or pediatric palliative care (Ungureanu and Sandberg 2008). Therefore, the purpose of this research was to find out to what extent death and dying is taught in child life specialist undergraduate, graduate and other higher education programs.…”

Section: Introductionmentioning

confidence: 99%

End-of-Life Issues in US Child Life Specialist Programs

Parvin

Dickinson

2009

Child Youth Care Forum

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A professional outlet in most children's hospitals for seriously-ill children is the child life specialist. Our objective in this study was to determine the extent that dying and death is emphasized in child life programs in the United States. Therefore, we surveyed via snail mail the 35 child life programs on the website of the Child Life Council. A response rate of 74% revealed that all programs offer something on this topic and over twothirds have a separate course for the topic of dying and death, with an average of 33 course content hours of instruction per program. The lecture mode is the most frequent teaching method, and the child life specialist is most often the instructor.

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Caring for Dying Children and Their Families: MFTs Working at the Gates of the Elysian Fields

Cited by 7 publications

References 24 publications

Clinical Implications for Supporting Caregivers at the End-of-Life: Findings and from a Qualitative Study

Clinical Implications for Supporting Caregivers at the End-of-Life: Findings and from a Qualitative Study

Medical Family Therapy: A Theoretical and Empirical Review

End-of-Life Issues in US Child Life Specialist Programs

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