Caring for an intimate stranger: parenting a child with psychosis

Darmi, E; Bellali, Thalia; Papazoglou, Irene; Karamitri, Ioanna; Papadatou, Danai

doi:10.1111/jpm.12367

Cited by 16 publications

(42 citation statements)

References 40 publications

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“…Themes that were found in the qualitative studies suggested that illness perception was related to a redefinition of the parent-child relationship [40, 46]. A parental perception of the patient as being responsible for his/her illness was related to less parental differentiation between the patient and the illness [42] and to more negative parent-patient communication [47].…”

Section: Resultsmentioning

confidence: 99%

“…A mental illness, in comparison to a physical illness, was shown to be perceived by the parent as more devastating, unexpected, chronic, stigmatizing, and leading to the loss of the patient's organic personality [43]. It should be noted that parents' perceptions of their child's illness have been shown to change over time, ranging from their normalizing of the illness in the prodromal stage to seeing the illness as having an unpredictable outcome in the more chronic stages [40].…”

Section: Characteristics Of Illness Perception Among Parents Accordinmentioning

confidence: 99%

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Illness representations among parents of children and adults with serious mental disorders: A systematic review and theoretical model

et al. 2019

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Objective:Cognitive representations of an illness have an important impact on psychological outcomes. The current systematic review explored 1) the characteristics of illness representations held by parents of children and adults with serious mental illness (SMI), and 2) the associations of these representations with both parents’ and patients’ psychological outcomes.Method:PSYINFO and PUBMED were screened for eligible studies published between January 2000 and August 2018. Selection was based on PRISMA guidelines. Reference lists of these papers were checked for additional references. Two independent coders extracted all relevant data.Results:The search resulted in 31 relevant studies, which were divided, by type of methodology, into three sections: quantitative, qualitative, and mixed quantitative-qualitative. In each section, findings were divided in accordance with the two research questions.Conclusion:Parents struggle to make meaning of their child’s illness, often holding stigmatizing ideas about the illness and blaming themselves for its existence. More longitudinal studies that include both of the child’s parents, as well as interventional studies, are needed to expand our knowledge of ways to help parents construct more beneficial representations of their children’s illnesses.

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Section: Resultsmentioning

confidence: 99%

Section: Characteristics Of Illness Perception Among Parents Accordinmentioning

confidence: 99%

Illness representations among parents of children and adults with serious mental disorders: A systematic review and theoretical model

et al. 2019

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“…As shown in Fig. 1, 26 23 papers were selected: 12,16, 16 reported on the experiences of carers only, 12,16,[34][35][36][37][38][39][40][41][42][43][44][45][46][47] while seven reported on the experiences of patients, carers and other stakeholders. [27][28][29][30][31][32][33] Study characteristics are summarised in supplementary Table 1 including quality appraisal results that show that 20 of the 23 papers were rated as high-quality studies.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Twelve papers reported on studies conducted in the UK (6 in England, 16,29,30,32,34,35 1 in Wales, 36 2 in Northern Ireland, 28,31 1 in Scotland, 12 and 2 not specified 37,38 ), with the remaining studies conducted elsewhere in Europe (Germany, 39,40 Greece, 41 Norway, [42][43][44] and the Republic of Ireland 33 ), Canada, 45 the USA 46 and Australia. 27,47 Although most studies reported on detention in general psychiatric hospitals, three papersall conducted in the UKreported on carers' experiences of assessment and treatment units and forensic services.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…For others, feelings of relief were undermined by the realisation that mental health professionals were unable to provide a 'radical cure' or clear answers about the aetiology of their relative's illness. 41 'Some …ended up frustrated because of the lack of treatment or experiencing the hospital stay as "only storage." The gap between expectations and actual experiences could result in retrospective regrets, feelings of blame, and moral distress about initiating the hospitalization process.'…”

Section: Emotional Impact Of Detentionmentioning

confidence: 99%

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Carers' experiences of involuntary admission under mental health legislation: systematic review and qualitative meta-synthesis

et al. 2020

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Background Carers are key providers of care and support to mental health patients and mental health policies consistently mandate carer involvement. Understanding carers' experiences of and views about assessment for involuntary admission and subsequent detention is crucial to efforts to improve policy and practice. Aims We aimed to synthesise qualitative evidence of carers' experiences of the assessment and detention of their family and friends under mental health legislation. Method We searched five bibliographic databases, reference lists and citations. Studies were included if they collected data using qualitative methods and the patients were aged 18 or older; reported on carer experiences of assessment or detention under mental health legislation anywhere in the world; and were published in peer-reviewed journals. We used meta-synthesis. Results The review included 23 papers. Themes were consistent across time and setting and related to the emotional impact of detention; the availability of support for carers; the extent to which carers felt involved in decision-making; relationships with patients and staff during detention; and the quality of care provided to patients. Carers often described conflicting feelings of relief coupled with distress and anxiety about how the patient might cope and respond. Carers also spoke about the need for timely and accessible information, supportive and trusting relationships with mental health professionals, and of involvement as partners in care. Conclusions Research is needed to explore whether and how health service and other interventions can improve the involvement and support of carers prior to, during and after the detention of family members and friends.

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Parents of adult children with long-term mental disorder: Their experiences of the mental health professionals' approach and feelings of alienation – A cross sectional study

Johansson

Anderzén‐Carlsson

Ewertzon

2019

Archives of Psychiatric Nursing

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Caring for an intimate stranger: parenting a child with psychosis

Cited by 16 publications

References 40 publications

Illness representations among parents of children and adults with serious mental disorders: A systematic review and theoretical model

Illness representations among parents of children and adults with serious mental disorders: A systematic review and theoretical model

Carers' experiences of involuntary admission under mental health legislation: systematic review and qualitative meta-synthesis

Parents of adult children with long-term mental disorder: Their experiences of the mental health professionals' approach and feelings of alienation – A cross sectional study

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