Caring for Aged Parents: Phenomenology and Relationships

Paul, Lindsay

doi:10.5172/jfs.5.2.207

Cited by 6 publications

(18 citation statements)

References 3 publications

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“…Howe & Singh. 1997) and caregiving research has traditionally been a women's issue (Rosenman, TiIse, Le Brocque & Grasso, 1993) undertaken predominantly by women about women (Paul, 1999;Cahill, 1999;Cahill, 1997). In the United States, an emerging body of literature has led to a description of men in caring roles as 'misunderstood caregivers' (HaITis, 1993), Harris argues for the need for more exploratory research on male caregivers.…”

Section: Literature Reviewmentioning

confidence: 99%

Elderly Husbands Caring at Home for Wives Diagnosed With Alzheimer's Disease: Are Male Caregivers Really Different?

Cahill¹

2000

Aust J Social Issues

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In Australia, there is a dearth of literature available on men as principal corers despite reports which show that in the 60 + age group, looking after a sick spouse becomes the major form of caregiving and men as carers predominate (ABS, 1993). The paper reports findings from a study of26 aged husbands who cared at home for their cognitively impaired wives. In- depth interviews collected quantitative and qualitative data about men s caregiving experiences. Findings challenge the literature about the role gender plays in evoking care and service responses. Results show how men demonstrated a strong injunction to care, perfonned intimate personal care tasks competently, received limited govemment support and derived some satisfaction from the caregiving role. Despite similarities between male and female caregivers being noted, some gender differences in the way in whichmen approached the care role are described. The need for community care policies to be more sensitive to the gendered context of elderly care provision is discussed.2. The MBI is a ten item scale: a score of 0 to 20 suggests total dependence, 21-60, severe dependence, 61-90, moderate dependence and 91-99 slight dependence.

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Section: Literature Reviewmentioning

confidence: 99%

Elderly Husbands Caring at Home for Wives Diagnosed With Alzheimer's Disease: Are Male Caregivers Really Different?

Cahill¹

2000

Aust J Social Issues

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“…In both dyads, the caregiving relationship was often perceived as based on reciprocity and mutual support 20 21 26. Mutual support meant, for instance, that dying parents who were cared for at home offered help to their adult child caregivers.…”

Section: Resultsmentioning

confidence: 99%

“…This enabled them to continue with the ascribed parent role and to feel a sense of dignity and autonomy 18 20. Reciprocity was found in adult children’s caregiving behaviour that depended on the response and willingness of the parent to allow their child to take care 26. Likewise, a caregiving mother described caregiving as a process co-constructed with her dying son 17…”

Section: Resultsmentioning

confidence: 99%

“…Caregiving was described as ‘a process that grows within and beyond relationships’ 26. Sometimes, caregiving offered the opportunity to rediscover the parent as a different person26 or to revalue the adult child’s personhood and special qualities 15 27. During caregiving, estranged relationships were restored 15 26 27.…”

Section: Resultsmentioning

confidence: 99%

“…Sometimes, caregiving offered the opportunity to rediscover the parent as a different person26 or to revalue the adult child’s personhood and special qualities 15 27. During caregiving, estranged relationships were restored 15 26 27. Mothers also experienced their home caregiving for their dying adult sons as a return to the relationship they had when their sons were children 17 21.…”

Section: Resultsmentioning

confidence: 99%

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Adult Child-Parent Dyadic Interactions at the End of Life: A Scoping Review

Herbst

Gawinski

Schneider

et al. 2019

BMJ Support Palliat Care

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BackgroundBeing terminally ill affects not only the life of patients but also that of their loved ones. Dyads of adult children and their parents at the end of life may face specific challenges with regard to their relationship and interactions that need to be further examined.AimThe aim was to identify, describe and summarise available evidence on adult child–parent interaction and psychosocial support needs at the end of life. Research gaps in the existing literature are disclosed and recommendations for future research are presented.DesignA type 4 scoping review according to Arksey and O’Malley’s (2005) methodological framework was conducted. The review includes studies regardless of study design and provides a descriptive account of foci of available research.Data sourcesThe PubMed, PsycINFO, CINAHL, Google Scholar and Web of Science databases were searched from inception to 16 August 2018. An additional hand search was conducted. A highly sensitive search strategy was employed to cover all potentially relevant results.ResultsThe authors screened 1832 records by title and abstract, retrieved 216 full-text articles and included 15 studies from the database search. One study was identified by way of hand search. The review identified six major themes: (1) adult child–parent relationship, (2) adult child–parent communication, (3) involvement in caregiving, (4) benefit and burden of caregiving, (5) coping strategies and (6) support and information for caregivers.ConclusionsThe scoping review accentuates the paucity of studies that address both patients’ and their parent/adult child caregivers’ relationship, interaction and psychosocial support needs.

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Communication in dyads of adult children at the end of life with their parents and parents at the end of life with their adult children: Findings from a mixed‐methods study

et al. 2021

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Objective Patient–family member communication plays a decisive role in coping with an end‐of‐life situation and is strongly influenced by the dyadic relationship. There is a lack of research exploring and comparing the specifics of communication between (1) terminally ill adult children and their parents and (2) terminally ill parents and their adult children. The present study aimed at describing and comparing communication specifics within these two dyads. Methods As part of the research project Dy@EoL on parent–adult child interactions, this mixed‐methods study combined qualitative interviews and the Berlin Social Support Scales self‐report questionnaire. Participants in both dyads were recruited via 12 inpatient and ambulatory palliative/hospice care providers between February 2018 and September 2019. Results Participants included 65 patients (dyad 1: 19; dyad 2: 46) and 42 family members (dyad 1: 13; dyad 2: 29). Qualitative interviews revealed communication changes in the terminal illness situation and provided insight into each dyad partner's perception of openness and avoidance in the dyadic communication. The quantitative results showed that patients in both dyads provided significantly less informational support relative to family members. A strong similarity present in both dyads was the central motivation for limiting information sharing. Conclusions Individual preferences for information sharing suggest that the divergent needs of dyad partners must be carefully negotiated to ensure that patients are able to address important topics without putting too great an emotional burden on their family members. Tailored psychosocial support measures are needed to achieve this goal. The study was registered prospectively in the German Clinical Trials Register (registration N° DRKS00013206).

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Caring for Aged Parents: Phenomenology and Relationships

Cited by 6 publications

References 3 publications

Elderly Husbands Caring at Home for Wives Diagnosed With Alzheimer's Disease: Are Male Caregivers Really Different?

Elderly Husbands Caring at Home for Wives Diagnosed With Alzheimer's Disease: Are Male Caregivers Really Different?

Adult Child-Parent Dyadic Interactions at the End of Life: A Scoping Review

Communication in dyads of adult children at the end of life with their parents and parents at the end of life with their adult children: Findings from a mixed‐methods study

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