Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol

Hoefman, Renske; Payakachat, Nalin; Exel, Job van; Kuhlthau, Karen; Kovacs, Erica; Pyne, Jeffrey M.; Tilford, John M.

doi:10.1007/s10803-014-2066-1

Cited by 107 publications

(103 citation statements)

References 53 publications

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“…In the agreement of our study findings the study by Hoefman et al, 2014 reported the correlation between QoL scores and subjective burden level and found the impact of QoL positively associated with higher subjective and lower caregivers'' QoL [30].…”

Section: Discussionsupporting

confidence: 92%

Quality of Life and Subjective Burden on Family Caregiver of Children with Autism

Ezzat¹

2017

AJNS

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Abstract:Background: Caring for children with autism has been affected on caregivers' health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.

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Section: Discussionsupporting

confidence: 92%

Quality of Life and Subjective Burden on Family Caregiver of Children with Autism

Ezzat¹

2017

AJNS

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“…Standardised outcome measures evaluating family quality of life, health and stress are also available and include the Care-Related Quality of life instrument (CarerQol) 28 for parents of children with ASD and the Parent Stress Index (PSI) 29 . However, no outcome measure that considers the effect of dysfunction in the occupational performance of children with ASD on family functioning directly 30 could be found. Furthermore due to the cost and the fact that published outcome measures are not standardised on a South African population, they are often not used by occupational therapists in South Africa.…”

Section: Literature Reviewmentioning

confidence: 99%

Development of an Occupational Performance Questionnaire for preschool children with Autistic Spectrum Disorder

Wallace

Franzsen

Potterton

2016

S. Afr. j. occup. ther

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“…Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. 24 Emotional parameter Parent's emotionality is an important parameter changing psychological mindedness to work with their child with ASD and their full involvement in the intervention program. Disturbances in this setting may reduce their efficiency with this regard.…”

Section: Economical Parametermentioning

confidence: 99%

The Peripheral Focus on the Psychological Parameters of Parents of Autistic Children in the Intervention Methods: A Review and Recommending the Strategy, Focusing Psychological Parameters of Parents of Autistic Children in Intervention Methods

Bhagat¹,

Simba²,

Haque³

2015

J YOUNG PHARM

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The experience of parents with an Autism Spectrum Disorders (ASD) can be devastating. Parents and families have to cope with the compound, demanding situation in their life. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parent's in their life situations. Those coping with life complexity with the parents of ASD nudge them into stress later into distress slowly incapacitates them that of their efficiency to deal with this situation. These parents are found with disturbances in their psychological parameters such as social, sexual, economic, and emotional. Perhaps this shatters them from their interpersonal relationship and family life. Indeed, these aspects of parental distress stand lower in position, and the focus goes with the treatment of ASD. Thus, the management of ASD by these parents to their deficit child capacitating to reach their fullest abilities remains questionable. Thus, there is a need for intervention of autistic children with a peripheral focus on psychological parameters of parents of ASD. This review study focuses on division of attention required for the treatment of ASD towards the child with autism and the parents who manage them.

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Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol

Cited by 107 publications

References 53 publications

Quality of Life and Subjective Burden on Family Caregiver of Children with Autism

Quality of Life and Subjective Burden on Family Caregiver of Children with Autism

Development of an Occupational Performance Questionnaire for preschool children with Autistic Spectrum Disorder

The Peripheral Focus on the Psychological Parameters of Parents of Autistic Children in the Intervention Methods: A Review and Recommending the Strategy, Focusing Psychological Parameters of Parents of Autistic Children in Intervention Methods

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