Caring about women and cancer (CAWAC)

Veronesi, Umberto; Kleist, S. von; Redmond, Kathy; Costa, Alberto; Delvaux, Nathalie; Freilich, G.; Glaus, A; Hudson, T.; McVie, J.G.; Macnamara, C; Meunier, Françoise; Pecorelli, Sërgio; Serin, D.

doi:10.1016/s0959-8049(99)00170-7

Cited by 42 publications

(2 citation statements)

References 29 publications

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“…Furthermore, undergoing specialized treatment in healthcare can cause patients’ to feel that they are being delayed [1] and from the healthcare professionals’ point of view the fragmentation of care seems to contribute to patients feeling overwhelmed [5,6]. Surveys from the UK and Denmark indicate that some patients with cancer might wish for more help in these areas [7-9], but we lack scientific studies showing who can make use of the extra help offered.…”

Section: Introductionmentioning

confidence: 99%

Gynecological cancer patients’ differentiated use of help from a nurse navigator: a qualitative study

Thygesen

Pedersen

Kragstrup

et al. 2012

BMC Health Serv Res

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Background: Fragmentation in healthcare can present challenges for patients with suspected cancer. It can add to existing anxiety, fear, despair and confusion during disease trajectory. In some circumstances patients are offered help from an extra contact person, a Nurse Navigator (NN). Scientific studies showing who will benefit from the extra help offered are missing. This study aims to explore who could benefit from the help on offer from a nurse appointed as NN in the early part of a cancer trajectory, and what would be meaningful experiences in this context. Methods: A longitudinal study with a basis in phenomenology and hermeneutics was performed among Danish women with gynecological cancer. Semi-structured interviews provided data for the analysis, and comprehensive understanding was arrived at by first adopting an open-minded approach to the transcripts and by working at three analytical levels.

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Section: Introductionmentioning

confidence: 99%

Gynecological cancer patients’ differentiated use of help from a nurse navigator: a qualitative study

Thygesen

Pedersen

Kragstrup

et al. 2012

BMC Health Serv Res

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“…Patients with cancer do not receive the help they could wish for [1–3]. According to national surveys from Denmark and the UK lack of communication, care and respect are experienced in relation to healthcare professionals [1, 2].…”

Section: Introductionmentioning

confidence: 99%

Benefits and challenges perceived by patients with cancer when offered a nurse navigator

Thygesen¹,

Pedersen²,

Kragstrup³

et al. 2011

Int J Integr Care

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IntroductionLack of communication, care and respect from healthcare professionals can be challenges for patients in trajectories of cancer, possibly accompanied by experienced fragmentation of the care, anxiety and worries. One way to try to improve delivery of care is additional help from nurse navigators (NN) offered in a predefined shorter or longer period, but patients’ experiences with this have seldom been investigated.AimsTo explore experiences of nurse navigation offered in a short period of a longer subsequent part of cancer trajectories by patients who can use the help on offer.MethodsThe NNs worked from one hospital department with patients in the transition between primary care and a university hospital before admission. A phenomenological-hermeneutical longitudinal study was performed from referral and until two months after discharge from the hospital. Semi-structured interviews with five patients who could use the help from an NN provided data for the analysis, which started open-minded.ResultsAffectional bonds were made to the NN and patients felt that they benefited from her presence and her help, which they requested until one month after discharge. They were disappointed and felt rejected when the contact to the NN stopped.ConclusionIn efforts to increase quality of care for patients with cancer we recommend an increased awareness of cultural areas within the healthcare system, which may be an impediment to good communication. Moreover, we recommend paying special attention to critical periods in cancer patients’ trajectories, as well as to the theory of attachment to supplement thoughts of continuity of care and coordination in the care for women. In short, it is fine to offer additional help to those who can use it, but in practice as well as in research we recommend awareness of how and when to stop the help, to prevent patients from feeling hurt.

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Women's perceptions and experience of adjuvant tamoxifen therapy account for their adherence: breast cancer patients' point of view

Pellegrini

Sarradon-Eck²,

Soussan

et al. 2010

Psycho-Oncology

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Caring about women and cancer (CAWAC)

Cited by 42 publications

References 29 publications

Gynecological cancer patients’ differentiated use of help from a nurse navigator: a qualitative study

Gynecological cancer patients’ differentiated use of help from a nurse navigator: a qualitative study

Benefits and challenges perceived by patients with cancer when offered a nurse navigator

Women's perceptions and experience of adjuvant tamoxifen therapy account for their adherence: breast cancer patients' point of view

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