Carer perspectives of people diagnosed with borderline personality disorder: A scoping review of emergency care responses

Acres, Kristy; Loughhead, Mark; Procter, Nicholas

doi:10.1016/j.auec.2018.12.001

Cited by 9 publications

(25 citation statements)

References 25 publications

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“…In addition, many carers describe not receiving an explanation of the consumer's diagnosis and not being appropriately involved in treatment decisions [25]. Carers identified wanting more information about personality disorder and how to respond to crises, and express that they are often expected to make treatment decisions without having sufficient knowledge [26].…”

Section: Introductionmentioning

confidence: 99%

Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences

Barr

Jewell²,

Townsend

et al. 2020

bord personal disord emot dysregul

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Background: Despite effective treatments for personality disorders being developed, consumers and carers often report negative experiences of mental health services, including challenges accessing these treatments. Methods: This qualitative study used separate focus groups to compare the unique perspectives of consumer and carers, and to investigate how to improve services for individuals with personality disorders. Reflexive thematic analysis was used to analyze the data. Results: Both consumers and carers (N = 15) discussed the value of providing appropriate information to consumers when they are diagnosed with personality disorder. Consumers and carers described the importance of creating a safe environment for consumers when they present to the emergency department. Both groups discussed experiencing positive and negative treatment from mental health professionals, and suggested that professionals should be trained to understand personality disorder. Limited accessibility and quality of services, and offering peer support to consumers were also described by consumers and carers. Consumers and carers also had perspectives which were unique to their group. Consumers identified the importance of psychological treatment, having a strong therapeutic relationship with a mental health professional, and the benefit of long term psychotherapy with the same professional. Broadening the scope of psychotherapies including creative, animal-assisted, and physical therapies was recommended by consumers. Carers described the importance of assessing for personality disorder and intervening early. Involvement in the assessment, diagnosis, and intervention process was important to carers. The desire to be recognized and supported by mental health professionals was discussed by carers. Conclusions: This research contributes to the concern that consumers with personality disorder and their carers experience stigma and low quality care within mental health services. In line with these findings, we recommend guidelines for health professionals who work with consumers with personality disorder.

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Section: Introductionmentioning

confidence: 99%

Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences

Barr

Jewell²,

Townsend

et al. 2020

bord personal disord emot dysregul

View full text Add to dashboard Cite

show abstract

“…Due to the nature of BPD related distress, carers can experience significant levels of grief and uncertainty (Acres et al., 2019a). Carers, when they are accepted by the consumer as a key supporter, need nursing and health professionals to connect and communicate regarding what is occurring and to offer information about BPD.…”

Section: Discussionmentioning

confidence: 99%

“…Due to the nature of BPD related distress, carers can experience significant levels of grief and uncertainty (Acres et al, 2019a). Carers, when they are accepted by the consumer as a key supporter, need nurs- Collaborative care involving both the consumer and carer can minimise return visits to the ED, as carers can be better informed towards assisting a consumer in supportive responses and in safety planning (Bailey & Grenyer, 2013;SA Mental Health Commission, 2017).…”

Section: Discussionmentioning

confidence: 99%

“…The central finding to emerge from this research is that carers experience a lack of standardised capacity in South Australian EDs to manage BPD related suicidal crisis effectively and reliably. This is something that may be linked to an erosion of service values and standards (Acres et al., 2019a). Furthermore, these findings highlight and suggest that the traditional “Biomedical model of care” remains common practice within the ED, with little consideration for the ‘Biopsychosocial model of clinical care” despite its introduction into clinical practice over some forty years ago (Borrell‐Carrio, 2004).…”

Section: Relevance For Clinical Practicementioning

confidence: 99%

“…The ED has an important role in support of people with BPD, and emergency nurses are often the first point of contact with a person in distress (National Health and Medical Research Council (NHMRC), 2012). However relatively few nurses have received adequate training and education to identify and respond to a mental health crisis (Acres et al., 2019a).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

From the community to the emergency department: A study of hospital emergency department nursing practices from the perspective of carers of a loved one with Borderline Personality Disorder

Acres

Loughhead

Procter

2021

Health Social Care Comm

Self Cite

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Internationally prevalence rates vary from 4.4% to as high as 20% within the community (Bailey & Grenyer, 2013). These rates however are likely to be significantly higher in inpatient mental health units, with estimates as high as 50% prevalence (Fonagy et al., 2015). The vast discrepancy in rates is likely related to the controversy and reluctance of applying BPD as a diagnosis. This reluctance can present implications in accessing appropriate care and management (Fonagy et al., 2015). One significant implication is the rate of death by suicide for people with BPD are between 3% and 10%, a rate higher

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Effectiveness of family connections intervention for family members of persons with personality disorders in two different formats: Online vs face-to-face

Guillén

Fonseca-Baeza

Felipe

et al. 2022

Internet Interventions

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Carer perspectives of people diagnosed with borderline personality disorder: A scoping review of emergency care responses

Cited by 9 publications

References 25 publications

Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences

Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences

From the community to the emergency department: A study of hospital emergency department nursing practices from the perspective of carers of a loved one with Borderline Personality Disorder

Effectiveness of family connections intervention for family members of persons with personality disorders in two different formats: Online vs face-to-face

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