Caregiving roles: when will they be routinely recognized and supported?

Onwumere, Juliana; Kuipers, Elizabeth

doi:10.1080/09638237.2017.1301649

Cited by 8 publications

(10 citation statements)

References 42 publications

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“…EI services aim to provide a rapid response to clinical signs of deterioration to minimise risk of further disability, including hospital admission (Marshall and Rathbone, 2011). An important, yet often neglected, area of work in this process of deinstitutionalisation has been the development and delivery of interventions for informal caregivers of people with psychosis (Onwumere and Kuipers, 2017). Evidence suggests that informal caregivers (also referred to as unpaid caregivers or family caregivers) may become the principal source of social support for many people with psychosis (Palumbo et al, 2015), and may be expected to manage heightened levels of risk at home without dedicated support or expert training (Chan, 2008;Hanzawa et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

“…An understanding of the potential frequency and impact of violent incidents in caregiving interactions in the early stages of psychosis might inform decisions about whether and when to offer interventions for caregivers, and of what these should comprise (Lobban et al, 2013;Onwumere et al, 2014;Yesufu-Udechuku et al, 2015). Reported risk of violence might represent a means by which to identify caregivers in need of more intensive statutory psychological support within putative triaging systems for caregiver interventions (Onwumere and Kuipers, 2017).…”

Section: Introductionmentioning

confidence: 99%

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Caregiver correlates of patient-initiated violence in early psychosis

Smith

Onwumere

Craig

et al. 2018

Psychiatry Research

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Caregiver correlates of patient-initiated violence in early psychosis

Smith

Onwumere

Craig

et al. 2018

Psychiatry Research

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“…Furthermore, technology provides access to others for building support and knowledge through positive engagement [ 125 ]. Reportedly, the potential impact of communication technologies on caregivers’ well-being is ubiquitous and may guide their behavior toward the care recipient [ 126 ].…”

Section: Discussionmentioning

confidence: 99%

Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review

Jansen¹,

Reid²

2020

JMIR Mhealth Uhealth

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Background Caregivers of adolescents with mental health issues experience challenges that may result in the caregivers having a variety of unmet needs. There is a growing need to support these caregivers. Effective support to strengthen positive caregiving behavior in caregivers may address their challenges. Communication technologies offer novel opportunities to assist these caregivers and may contribute to strengthening caregiver behavior. However, little is known about the use of communication technologies among caregivers of adolescents with mental health issues. Objective The study aimed to answer the question: “What is the best evidence available to strengthen positive behavior of caregivers of adolescents with mental health issues using communication technology.” Methods A systematic review of articles published between January 2007 and August 2018 was conducted. Searches included articles of multiple study designs from EBSCO Host and Scopus platforms with prespecified eligibility criteria. Methodological quality was evaluated using the applicable Critical Appraisal Skills Programme and Joanna Briggs Institute assessment tools. Results The search yielded 1746 articles. Altogether, 5 articles met the eligibility criteria and were included in the review for data synthesis. Data analysis and synthesis identified three thematic conclusions reflecting the types of communication technologies used, caregivers as the target population, and strengthening of positive behavior through determinants of the Integrated Model of Behavior Prediction. Conclusions The review reported the usefulness of communication technology by caregivers. Caregivers also demonstrated improvement in self-efficacy, knowledge, parent-child communication, and parental skills reflecting positive behavior. Although the use of communication technology is expanding as a supportive intervention to address caregivers’ needs, the evidence for usefulness among caregivers of adolescents with mental health issues is still scarce. More research and information related to preferred methods of communication delivery among caregivers of adolescents is still needed.

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“…The available literature suggests that mental health carers can all too often feel marginalized by service providers (38, 39) despite their reported need to be more involved and treated as partners in patient care, where their unique roles and expertise are recognized (40, 41). Though there are no specific guidelines on how best to support carers to address and cope with the impact of physical health comorbidity in SMI, the literature does offer some helpful indications.…”

Section: Recommendations For Improving Physical Health Outcomes In Smmentioning

confidence: 99%