Caregiving Out-of-Pocket Costs Study

Skufca, Laura; Rainville, Chuck

doi:10.26419/res.00473.001

Cited by 20 publications

(22 citation statements)

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“…4 Caregivers who identify as Black or Latinx report greater financial strain. 5 We propose a scoping review to examine financial interventions across chronic illness types and healthcare contexts. This will fill a research gap because there are no existing scoping reviews addressing financial interventions in family caregivers.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

“…According to Schulz, out-of-pocket costs have been a substantial contributor to financial burden of family caregivers 4. Most family caregivers suffer steep out-of-pocket expenses related to caregiving, spending over US$7000 on average for direct medical costs and indirect costs including food and meals, household goods, travel costs, home modifications and legal fees 3–5…”

Section: Introductionmentioning

confidence: 99%

“…Over half of employed caregivers of all ages have found it challenging to balance their work and caregiving duties; they report coming in late, leaving early or taking time off to fulfil their caregiving role 5 6. Over 75% of individuals who retired early due to family caregiving would have prolonged their engagement in the workforce if they had access to alternative work arrangements such as flexible hours/shifts, telecommuting, compressed schedules, paid leave or phased retirement 5 6. Family caregivers who either disrupt their careers or leave the work force completely to fulfil their caregiving role can experience substantial economic risk and both short-term and long-term financial strains 3.…”

Section: Introductionmentioning

confidence: 99%

“…Financial distress is also a health equity issue, with women being more likely to suffer from poverty and/or rely on public assistance services due to their caregiving responsibilities 4. Caregivers who identify as Black or Latinx report greater financial strain 5…”

Section: Introductionmentioning

confidence: 99%

“…4 Most family caregivers suffer steep out-of-pocket expenses related to caregiving, spending over US$7000 on average for direct medical costs and indirect costs including food and meals, household goods, travel costs, home modifications and legal fees. [3][4][5] Over half of employed caregivers of all ages have found it challenging to balance their work and caregiving duties; they report coming in late, leaving early or taking time off to fulfil their caregiving role. 5 6 Over 75% of individuals who retired early due to family caregiving would have prolonged their engagement in the workforce if they had access to alternative work arrangements such as flexible hours/shifts, telecommuting,…”

Section: Introductionmentioning

confidence: 99%

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Financial interventions for family caregivers of individuals with chronic illness: a scoping review protocol

et al. 2022

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IntroductionThere are 53 million caregivers in the USA providing informal care for individuals with chronic illnesses. These caregivers contribute significantly to the healthcare system, yet they may experience adverse consequences due to caregiving, including financial burden. The purpose of this scoping review is to fill a research gap on understanding the nature and effect of financial interventions for family caregivers.Methods and analysisThis study will use the Arksey and O’Malley scoping review framework to systematically search for articles in MEDLINE, PubMed, CINAHL Complete, Cochrane Library, PsycINFO, Dissertations & Theses Global, and Web of Science during April 2022. Articles published from 1997 to the present will be included for the review. Data from articles will be extracted and summarised for financial intervention nature, scope, measurement, effect and health system context.Ethics and disseminationThis study does not include human subjects; therefore, no ethical review will be undertaken. Findings will be disseminated in scholarly journals and at caregiving and ageing conferences, such as the Gerontological Society of America.

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Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Financial interventions for family caregivers of individuals with chronic illness: a scoping review protocol

et al. 2022

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Considering Caregivers’ Needs in Hospital at Home Programs

2022

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What contextual factors account for anxiety and depressed mood in hospice family caregivers?

et al. 2021

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Objective End‐of‐life caregiving is associated with poorer mental health compared with other caregiving. The objective of this study was to examine the association between contextual characteristics and appraisal factors on family caregivers' mental health and well‐being. Methods Family hospice caregivers were recruited across four states using a non‐probabilistic sampling approach. This study analyzed contextual (demographic, caregiving, economic) and appraisal factors (Medical Outcomes Study Social Support Survey, Zarit Burden Interview) on caregivers' anxiety and depression (Hospital Anxiety and Depression scale, and positive affect and well‐being (Positive Affect and Well‐being Scale). Hierarchical linear regression models were generated in SPSS version 24. Results Data from 102 family caregivers were analyzed. On average, participants were 58.93 years of age (SD = 14.24), mostly female (72.55%), spouses/partners (51.96%), and non‐Hispanic White (78.43%). Most (75.49%) described their financial situation as comfortable or more than adequate. Younger age (B = −0.11, 95% CI = −0.18 to −0.05) and increased caregiving burden (B = 0.18, 95% CI = 0.09 to 0.27) were associated with increased anxiety, while lower perceived financial adequacy (B = −1.19, 95% CI = −2.07 to −0.32), lower social support (B = −0.04, 95% CI = −0.06 to −0.01), and increased caregiving burden (B = 0.15, 95% CI = 0.08–0.22) were associated with worsened depression. Greater social support (B = 0.10, 95% CI = 0.05–0.14) and lower caregiving burden (B = −0.19, 95% CI = −0.32 to −0.07) were associated with greater positive affect and well‐being. Conclusions Findings suggest significant impact of contextual factors on mental health and well‐being, and support the need for holistic assessment of hospice caregivers' wellbeing and programs and policies providing social services and economic support to caregivers.

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Caregiving Out-of-Pocket Costs Study

Abstract: Up to 30% off base rates, plus a free upgrade on compact through full-size car class bookings,* a discounted Garmin GPS rate, and an additional driver at no cost in the U.S. and Canada.

Cited by 20 publications

References 0 publications

Financial interventions for family caregivers of individuals with chronic illness: a scoping review protocol

Financial interventions for family caregivers of individuals with chronic illness: a scoping review protocol

Considering Caregivers’ Needs in Hospital at Home Programs

What contextual factors account for anxiety and depressed mood in hospice family caregivers?

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