Caregiving in Multiple Sclerosis

Hillman, Lynda

doi:10.1016/j.pmr.2013.06.007

Cited by 34 publications

(29 citation statements)

References 20 publications

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“…The lower depersonalization scores can be interpreted as the caregivers of schizophrenia patients being able to cope with burnout without depersonalization; they might have forced themselves to treat the patients well despite emotional exhaustion, or they could avoid mentioning their depersonalization. As underlined above, there is not much known about depersonalization and our explanations about that dimension are only predictions (22,29,30). Another concept of burnout measured by the MBI is personal accomplishment.…”

Section: Discussionmentioning

confidence: 99%

Burnout in caregivers of patients with schizophrenia

Kokurcan¹,

Özpolat²,

Göğüş³

2015

Turk J Med Sci

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Background/aim: To evaluate the burnout of schizophrenia patients' caregivers and to determine the possible relationships between sociodemographic characteristics, symptomatology, perceived social support, and the burnout profile of the caregivers. Materials and methods:Subjects included in the study are 76 schizophrenia patients, diagnosed according to DSM-IV-TR criteria, and their caregivers. A sociodemographic form, the Scale for the Assessment of Positive Symptoms, and the Scale for the Assessment of Negative Symptoms were applied to evaluate the severity of the symptoms. The Maslach Burnout Inventory for Caregivers and the Multidimensional Scale of Perceived Social Support were applied to the caregivers of the patients. The collected data were analyzed via Student's t-test, one-way analysis of variance, and Pearson's correlation analysis. Results:The burnout profile of the caregivers was highly correlated with the perceived social support of the caregivers and was also correlated with negative symptoms of the patients. Lower perceived social support was related to all subscales of the Maslach Burnout Inventory. Conclusion:Perceived social support is a major factor for caregiver burnout and it was highly correlated with all subscales in our study. We think that having social support provides caregivers with better feelings and so they provide better help to the patients. Appropriate approaches should be taken to intervene in the social and clinical factors that may exacerbate the burnout process.

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Section: Discussionmentioning

confidence: 99%

Burnout in caregivers of patients with schizophrenia

Kokurcan¹,

Özpolat²,

Göğüş³

2015

Turk J Med Sci

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“…22 However, care partners are estimated to provide 80% of the care to patients with MS, 23 and this trend is expected to grow during the next 20 years. 1,[24][25][26] We aimed to understand the biopsychosocial ramifications of being an MS care partner in a sample of 1333 MS care partners.…”

Section: Discussionmentioning

confidence: 99%

Care Partners and Multiple Sclerosis

Mckenzie

Quig

Tyry

et al. 2015

International Journal of MS Care

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Background: Caring for someone with multiple sclerosis (MS) can be a stressful experience that requires clinical attention. We investigated the impact of caregiver stress on the emotional well-being and physical health of the MS care partner using the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry. Methods: Care partners of NARCOMS participants were invited to complete an online questionnaire that captured demographic characteristics, health status, caregiver burden as measured by the Zarit Caregiver Burden Interview, and impact of caregiving on employment. Results: Of 1446 care partners who agreed to participate, 1333 had complete data. Most were men (n = 825, 61.9%), with a mean (SD) age of 51.1 (11.2) years. The mean (SD) Zarit total score was 24.6 (15.1), placing the overall group in the mild caregiver burden range. Compared with male care partners, female care partners reported higher levels of burden and stress and more medication use for stress/anxiety and mood disorders. Male care partners were more likely to report physical concerns. Care partners of people with primary progressive MS reported greater perceived burden than did partners of people with secondary progressive MS and relapsing-remitting MS. More than 40% of care partners (559 of 1288) had missed work during the past year owing to caregiving responsibilities. Conclusions: Care partners of people with MS have substantial physical and psychological health concerns and experience an adverse impact on employment. Future research should evaluate how to mitigate the adverse effects of caregiving and evaluate positive aspects of the role.

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“… 7 – 9 Identifying and managing the caregiver burden require a greater understanding of the caregiver population and their needs. While the medical literature is replete with studies that have characterized the caregiver burden among discrete care recipient populations, i.e., specific diseases or conditions, 10 – 13 less has been published on the population level, especially among an employed population. Therefore, the aims of this study are to identify family caregivers in the US workforce and characterize their burden with regard to work productivity, comorbidities, health care resource utilization, and mental health.…”

Section: Introductionmentioning

confidence: 99%

The burden of family caregiving in the United States: work productivity, health care resource utilization, and mental health among employed adults

Hopps¹,

Iadeluca²,

McDonald³

et al. 2017

JMDH

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BackgroundFamily caregiving is an increasingly important component of care for patients and the elderly.ObjectiveThe aim of this study is to characterize the burden of family caregiving among employed adults.MethodsEmployed adults (≥18 years) from the 2013 US National Health and Wellness Survey (NHWS) were classified as family caregivers if they reported currently caring for at least one adult relative. Chi-square tests and one-way analyses of variance assessed whether employed caregivers, weighted to the US population, differed from employed non-caregivers on behavioral characteristics, workplace productivity, and health care resource utilization.ResultsEight million workers were family caregivers in the United States, more often female than male (51% vs. 49%, P < 0.05), and 53% were between 40 and 64 years of age. Eighteen percent of caregivers were Hispanic compared with 15% of non-caregivers (P < 0.05). Similar behavioral characteristics between caregivers and non-caregivers included daily alcohol consumption (6% vs. 5%) and lack of vigorous exercise (25% vs. 29%), but caregivers had a higher prevalence of smoking (26% vs. 19%, P < 0.05). Caregivers reported a higher mean percentage of work time missed (8% vs. 4%, P < 0.05) and greater productivity impairment (24% vs. 14%, P < 0.05). Some form of depression was reported by 53% of caregivers compared with 32% of non-caregivers (P < 0.05), and more caregivers had self-reported insomnia than non-caregivers (46% vs. 37%, P < 0.05). The number of self-reported diagnosed comorbidities was higher among caregivers compared with that of non-caregivers (5.0 vs. 3.1, P < 0.05), as was the mean number of outpatient visits in the previous 6 months (4.1 vs. 2.7, P < 0.05).ConclusionFamily caregiving is associated with a multidimensional burden that impacts caregivers and has implications for employers and the health care system. Clinicians and employers need to recognize and understand this burden. Characterization of caregivers as reported in this study can inform development of targeted programs to help mitigate the burden.

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Caregiving in Multiple Sclerosis

Cited by 34 publications

References 20 publications

Burnout in caregivers of patients with schizophrenia

Burnout in caregivers of patients with schizophrenia

Care Partners and Multiple Sclerosis

The burden of family caregiving in the United States: work productivity, health care resource utilization, and mental health among employed adults

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