Caregiving experiences of primary family caregivers caring for family members affected by COVID‐19 during home isolation: A phenomenology study

Abstract

During home isolation due to the coronavirus disease, family caregivers assumed the responsibility of caring for infected family members; however, the full extent of the difficulties and challenges they encountered remains unclear. This study applied a descriptive phenomenology approach, using semi‐structured, one‐on‐one, in‐depth interviews to explore the experiences of 16 primary family caregivers during home isolation amid the coronavirus disease. The key themes identified were as follows: (1) protecting family, comprising anxiety over preventing infection and bearing the responsibility of caregiving and a concern about the diagnosis; (2) seeking stability, encompassing the impact of epidemic control policies on daily routines, strategies to overcome obstacles caused by quarantine measures, and gathering resources and receiving support; and (3) reflections on life, including favoring love over discrimination, rediscovering oneself, cherishing family, and acknowledging personal growth and dedication. This study highlights that family members who took on caregiving roles due to obstacles or health risks faced significant pressure to protect their family members during isolation and actively sought professional consultation and acquired caregiving skills to enhance their confidence and adaptability.

Technologies' Potential And Difficulties In Assisting Family Caregivers Of Patients With Somatoform Diseases

“…Somatoform disorders are a collection of psychiatric diseases marked by the presence of physical symptoms that cannot be entirely explained by medical conditions (What Is Somatic Symptom Disorder?, n.d.). Family caregivers are essential in providing support to individuals with these diagnoses (Sun et al, 2024). Due to the severe and incapacitating nature of the symptoms, which can seriously affect every day functioning and quality of life, somatoform illnesses frequently present substantial obstacles for both patients and the people who care for them (Nielsen et al, 2024).…”